CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 626 - 650 of 883
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18966 EEG activating procedures used other text

The free-text field related to 'EEG activating procedures used type' specifying other text. Type(s) of procedures used to improve the electroencephalogram (EEG) diagnostic yield by inducing or enhancing epileptogenic paroxysms

 Supplemental Short Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C19055 EEG duration other text

The free-text field related to 'EEG duration' specifying other text. The length of time for the Electroencephalography (EEG)

 Supplemental Short Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C19056 EEG data other text

The free-text field related to 'EEG data type' specifying other text. The data type of the Electroencephalography (EEG)

 Supplemental Short Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19504 Family member body uncontrolled movement indicator

Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19505 Family member mental state awareness level unexplained change indicator

Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19506 Family member repeated unusual attack or convulsion other type indicator

Indicator for any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less that a family member has had or told you that you/they had

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19507 Family member seizures or epilepsy indicator

Indicator for someone having told you that you/your family member have seizures or epilepsy

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19508 Source of information queried type

Type of source of information queried

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19509 Pre traumatic brain injury seizure or epilepsy indicator

Indicator for seizures or epilepsy that the patient had prior to the traumatic brain injury

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19510 Post traumatic brain injury diagnosis epilepsy seizure diagnosis indicator

Indicator for the diagnosis of the participant with epilepsy, a seizure disorder, or a single seizure after the date of the traumatic brain injury diagnosis

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19511 Seven days post traumatic brain injury seizure occurrence indicator

Indicator for the occurrence of seizure(s) later than seven days after the date of the traumatic brain injury

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19512 Diagnosis giver type

Type of professional who gave the diagnosis

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C19513 Seizure or epilepsy medication patient reception indicator

Indicator for the patient's reception of medication for seizures or epilepsy

 Supplemental Post-Traumatic Epilepsy Screening Form False Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant was born

 Core General Core False Epilepsy Epilepsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

 Core General Core False Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False Epilepsy Epilepsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Epilepsy Epilepsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Epilepsy Epilepsy
C21483 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest response text

Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False Epilepsy Epilepsy
C21484 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False Epilepsy Epilepsy
C21485 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest item number

Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False Epilepsy Epilepsy
C21486 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial number

Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False Epilepsy Epilepsy
C21487 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial score

Score for the digit span forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False Epilepsy Epilepsy
Displaying 626 - 650 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.