CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0001-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Chiari I Malformation	Chiari I Malformation
F0001-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Chiari I Malformation	Chiari I Malformation
F0016-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C00032	C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C00033	C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Chiari I Malformation	Chiari I Malformation
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2138-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21673	C21673	Allergy medication antibiotic reaction type	Type related to allergic reaction to antibiotic medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21674	C21674	Allergy medication antibiotic name	Name to indicate the antibiotic causing the allergy	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21675	C21675	Allergy medication name	Name related to the medication causing allergic reaction	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21676	C21676	Allergy medication reaction type	Type of allergic reaction to medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21677	C21677	Allergy food type text	Free-text field to specify the type of food causing an allergic reaction	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21678	C21678	Allergy food reaction type	Type of reaction caused by food allergy	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21679	C21679	Allergy reaction plastic tape indicator	Indicator related to allergic reaction to plastic tape	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21680	C21680	Allergy reaction latex indicator	Indicator related to allergic reaction to latex	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2138-C21681	C21681	Allergy reaction acrylic indicator	Indicator related to allergic reaction to acrylic	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.