CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 12871
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00005 Birth country name

Name for country where the participant/subject was born

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Traumatic Brain Injury Comprehensive
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Traumatic Brain Injury Comprehensive
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00024 Language primary ISO code

Code (ISO 639-2) for the language the participant/subject speaks most often

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00025 Language primary text

Text for the language the participant/subject speaks most often

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00026 Language spoken Fluent text

Text for each language that the participant/subject speaks fluently

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00027 Language written Fluent text

Text for each language that the participant/subject writes fluently

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00029 Language written fluent ISO code

Code (ISO 639-2) for each language that the participant/subject writes fluently

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Traumatic Brain Injury Comprehensive
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Core Demographics Traumatic Brain Injury Comprehensive
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Traumatic Brain Injury Comprehensive
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Core Demographics Traumatic Brain Injury Comprehensive
C18385 Birth time

Time the subject was born

Supplemental Demographics Traumatic Brain Injury Comprehensive
C18386 Less three years age value

Number of months from zero to thirty-six months of age

Supplemental Demographics Traumatic Brain Injury Comprehensive
C18732 Language primary other text

The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often

Supplemental Demographics Traumatic Brain Injury Comprehensive
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Core Demographics Traumatic Brain Injury Comprehensive
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Basic Socioeconomic Status Traumatic Brain Injury Comprehensive
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

Basic Socioeconomic Status Traumatic Brain Injury Comprehensive
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Socioeconomic Status Traumatic Brain Injury Comprehensive
C00018 Education service type

Type of educational services received

Supplemental Socioeconomic Status Traumatic Brain Injury Comprehensive
C00202 Education school participation status

Status of participant/subject's current attendance at school

Core Socioeconomic Status Traumatic Brain Injury Comprehensive
Displaying 1 - 25 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.