CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1207-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C00031	C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Supplemental-Highly Recommended	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C11138	C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C11139	C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1208-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Huntington's Disease	Huntington's Disease
F1209-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C08000	C08000	Family history relative type total membercount	Count of total family members and ancestors for the specified relative type	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14943	C14943	Family history relative deceased indicator	Indicator of whether family member is deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14944	C14944	Family history relative age value	Value for participant's/subject's family member's current age	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14945	C14945	Family history relative death age value	Value for participant's/subject's family member's age at death, if deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14946	C14946	Family history medical condition relative count	Number of family members with medical condition	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14947	C14947	Family history relative type biological sample in repository count	The number of family members that have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14948	C14948	Family history relative type no biological sample in repository count	The number of family members that do not have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14949	C14949	Family history relative type unknown biological sample in repository count	The number of family members who are unsure if they have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C14950	C14950	Family history relative order number	A numerical number assigned to each relative, if more than one	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C17681	C17681	Family history collection source	The source of collected family history data	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C17682	C17682	Family history collection source informant specify type	The type of informant the family history data was collected from	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.