CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Huntington's Disease Huntington's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Huntington's Disease Huntington's Disease
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Supplemental-Highly Recommended Demographics Huntington's Disease Huntington's Disease
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Huntington's Disease Huntington's Disease
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Huntington's Disease Huntington's Disease
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Huntington's Disease Huntington's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Family History Huntington's Disease Huntington's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Supplemental Family History Huntington's Disease Huntington's Disease
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's/subject's family member has donated biological sample(s) to a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C10813 Adopted indicator

Whether the subject/participant was adopted

Supplemental Family History Huntington's Disease Huntington's Disease
C14943 Family history relative deceased indicator

Indicator of whether family member is deceased

Supplemental Family History Huntington's Disease Huntington's Disease
C14944 Family history relative age value

Value for participant's/subject's family member's current age

Supplemental Family History Huntington's Disease Huntington's Disease
C14945 Family history relative death age value

Value for participant's/subject's family member's age at death, if deceased

Supplemental Family History Huntington's Disease Huntington's Disease
C14946 Family history medical condition relative count

Number of family members with medical condition

Supplemental Family History Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C14948 Family history relative type no biological sample in repository count

The number of family members that do not have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C14949 Family history relative type unknown biological sample in repository count

The number of family members who are unsure if they have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C14950 Family history relative order number

A numerical number assigned to each relative, if more than one

Supplemental Family History Huntington's Disease Huntington's Disease
C17681 Family history collection source

The source of collected family history data

Supplemental Family History Huntington's Disease Huntington's Disease
C17682 Family history collection source informant specify type

The type of informant the family history data was collected from

Supplemental Family History Huntington's Disease Huntington's Disease
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.