CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11964 Tardieu Scale relative velocity rate

The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject

Exploratory Tardieu Scale Cerebral Palsy Cerebral Palsy
C11965 Tardieu Scale movement resistance score

The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject

Exploratory Tardieu Scale Cerebral Palsy Cerebral Palsy
C11966 Tardieu Scale muscle reaction angle measurement

The degree of angle for limb position at which muscle reaction or spasticity occurs for a given velocity administered during the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject

Exploratory Tardieu Scale Cerebral Palsy Cerebral Palsy
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb

Exploratory Tardieu Scale Cerebral Palsy Cerebral Palsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C12690 Gene name

Name of the gene analyzed

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12782 Gene additional variants unknown significance indicator

Indicator of whether there are additional variants in other genes of unknown significance

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C12785 Gene variant mutation detected result type

Type of gene variant or mutation detected

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C12786 Allele identifier name

Name that identifies which allele the associated data describe

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12787 Gene variant mutation category

Category of the variant or mutation detected on the gene

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12789 Gene deletions duplications limits clearly defined indicator

Indicator of whether the limits of deletions and duplications are defined

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12790 Gene exon first deleted duplicated name

Name of the first exon deleted or duplicated

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12794 Gene promoter deletion indicator

Whether known gene promoters were deleted

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
Displaying 1 - 25 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.