CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14381	C14381	Surgery post-operative return to operating room indicator	Indicator for whether the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14382	C14382	Surgery post-operative complication text	Text describing the complication that the participant/subject experienced after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14383	C14383	Surgery post-operative complication resolved date	The date of resolution of symptoms for a complication the participant/subject experienced after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14384	C14384	Pathology lesionectomy trauma finding text	The description of the brain tissue abnormality caused by trauma that is found in conjunction with other cellular abnormalities during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17638	C17638	Surgery post-operative psychiatric complication text	The text describing details for the psychiatric event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17639	C17639	Surgery post-operative readmission 30 days after surgery reason	The text explaining the circumstances for why the participant/subject is readmitted to the hospital within the 30 days after a surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17640	C17640	Surgery post-operative respiratory complication text	The text describing details for the other respiratory event or complication(s) affecting general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17641	C17641	Surgery post-operative return to operating room reason	The text explaining the circumstances for why the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17643	C17643	Surgical or therapeutic procedure text	The text describing the surgical or therapeutic procedure received by the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18584	C18584	Surgery post-operative altered state complication text	The text describing details for the altered mental status event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18585	C18585	Surgery post-operative aphasia complication text	The text describing details for the aphasia event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18586	C18586	Surgery post-operative gastrointestinal complication text	The text describing details for the other gastrointestinal event or complication(s) affecting general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18587	C18587	Surgery post-operative memory deficit complication text	The text describing details for the memory deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18917	C18917	Surgery lesionectomy resection extent other text	The free-text field related to 'Surgery lesionectomy resection extent type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18918	C18918	Surgery hemispherectomy other text	The free-text field related to 'Surgery hemispherectomy type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18921	C18921	Therapeutic brain stimulation target anatomic other text	The free-text field related to 'Therapeutic brain stimulation target anatomic site' specifying other text. The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18922	C18922	Therapeutic brain stimulation placement method other text	The free-text field related to 'Therapeutic brain stimulation placement method type' specifying other text. The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18923	C18923	Therapeutic brain stimulation placement verification other text	The free-text field related to 'Therapeutic brain stimulation placement verification type' specifying other text. The imaging or measurement method used to verify placement of electrodes during therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18924	C18924	Pathology lesionectomy tumor finding other text	The free-text field related to 'Pathology lesionectomy tumor finding type' specifying other text. The type or classification of malignant tumor tissue found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18925	C18925	Pathology lesionectomy infectious or inflammatory finding other text	The free-text field related to 'Pathology lesionectomy infectious or inflammatory finding type' specifying other text. The type of cellular abnormalities arising in conjunction with infection or inflammation that are found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18926	C18926	Surgery post-operative medical complication other text	The free-text field related to 'Surgery post-operative medical complication type' specifying other text. The type of event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental	Surgery and Pathology	False	Epilepsy	Epilepsy
F1126-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.