CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 883
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C08223 Medication prior or concomitant discontinuation reason

Reason the participant/subject discontinued taking the prior or concomitant medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C10636 Medication prior or concomitant PRN average monthly frequency

Average frequency per month for medications that are taken on an as needed basis (PRN)

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C14142 Medication prior or concomitant formulation text

Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18536 Medication non-anti-epileptic drug prior or concomitant dose frequency

The frequency of use of a prior/concomitant non-anti-epileptic drug (NAED)

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18537 Medication discontinuation dose related side effect text

The free-text field to specify the dose-related side effect that resulted in a discontinuation of medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18538 Medication discontinuation idiosyncratic side effect text

The free-text field to specify the idiosyncratic side effect that resulted in a discontinuation of medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18539 Medication generic or brand type

The identification of the medication label or manufacture as being either a brand name product or generic product

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18735 Medication prior or concomitant discontinuation other text

The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

 Supplemental AED Resistance Log False Epilepsy Epilepsy
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

 Supplemental AED Resistance Log False Epilepsy Epilepsy
C08223 Medication prior or concomitant discontinuation reason

Reason the participant/subject discontinued taking the prior or concomitant medication

 Supplemental AED Resistance Log False Epilepsy Epilepsy
C14142 Medication prior or concomitant formulation text

Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc

 Supplemental AED Resistance Log False Epilepsy Epilepsy
C14495 Medication anti-epileptic drug appropriate indicator

Indicator as to whether the anti-epileptic drug (AED) provided sufficient control for the participant's/subject's epilepsy syndrome

 Supplemental AED Resistance Log False Epilepsy Epilepsy
Displaying 351 - 375 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.