CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 726 - 750 of 861

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22390	C22390	Imaging post surgical procedure anatomical site	Anatomical site of the post operative imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22392	C22392	Imaging pre surgical procedure anatomical site	Anatomical site of the pre-surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22393	C22393	Tonsil left cerebellar measurement	Measurement related to the lowest position of the patient's left cerebellar tonsil	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22394	C22394	Tonsil position change measurement	Measurement related to the change in the position of the patient's lowest tonsil between pre surgical and post surgical images	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22395	C22395	Cerebrospinal fluid dorsal space measurement	Measurement related to the minimal cerebrospinal fluid (CSF) space dorsal to the tonsils at the craniomandibular joint (CMJ)	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22396	C22396	Cerebrospinal fluid dorsal space change measurement	Measurement related to the change in the width of the dorsal cerebrospinal fluid (CSF) spaces	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22397	C22397	Cerebrospinal fluid ventral space measurement	Measurement related to the minimal cerebrospinal fluid (CSF) space ventral to the spinal canal (SC) at the foramen magnum	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22398	C22398	Cerebrospinal fluid ventral space change measurement	Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22513	C22513	Cerebrospinal fluid Magendie patency measurement	Measurement of the foramen of Magendie, which drains cerebrospinal fluid (CSF) from the fourth ventrical to the cistema magna	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22514	C22514	Cerebrospinal fluid Magendie patency change measurement	Measurement related to the change in the patency of the foramen on Magendie	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22515	C22515	Syrinx anatomic change indicator	Indicator related to the anatomic change in the syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22516	C22516	Syrinx length measurement	Measurement of the longitudinal length of the subject's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22517	C22517	Syrinx length change measurement	Measurement of the change in the longitudinal length of the patient's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22518	C22518	Syrinx width measurement	Measurement of the maximum width of the patient's spinal syrinx after the operation	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22519	C22519	Syrinx width change measurement	Measurement of the change in the maximum width of the patient's spinal syrinx after the operation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22520	C22520	Parenchymal morphology post surgical procedure tonsil shape type	Type of the shape of the patient's cerebellar tonsils post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22521	C22521	Assessment pre surgical procedure date	Date of the patient's pre-surgery evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22522	C22522	Surgical procedure complication pseudomeningocele indicator	Indicator related to the presence of a pseudomeningocele complication post-surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22524	C22524	Surgical procedure complication pseudomeningocele type	Type of pseudomeningocele found in the patient's brain, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22525	C22525	Parenchymal morphology post surgical procedure brainstem shape type	Type of the shape of the patient's brainstem post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22528	C22528	Surgical procedure complication cerebrospinal fluid disorder indicator	Indicator related to the complication of a cerebrospinal fluid (CSF) disorder	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22530	C22530	Surgical procedure complication cerebrospinal fluid disorder type	Type of cerebrospinal fluid (CSF) disorder the patient has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22533	C22533	Surgical procedure complication fluid collection indicator	Indicator related to the complication of a fluid collection within the brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22534	C22534	Surgical procedure complication fluid collection type	Type of fluid collection in the patient's brain post operation, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22546	C22546	Symptom headache pre surgical procedure score	Score related to the symptom scale of the subject's headache pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

Displaying 726 - 750 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.