CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 4151 - 4175 of 12871

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1693-C18653	C18653	Swallowing post-TBI problem indicator	Subject's response concerning problems with swallowing post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Epidemiology
F1693-C18653	C18653	Swallowing post-TBI problem indicator	Subject's response concerning problems with swallowing post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1693-C18653	C18653	Swallowing post-TBI problem indicator	Subject's response concerning problems with swallowing post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Acute Hospitalized
F1693-C18653	C18653	Swallowing post-TBI problem indicator	Subject's response concerning problems with swallowing post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Concussion/Mild TBI
F1693-C18653	C18653	Swallowing post-TBI problem indicator	Subject's response concerning problems with swallowing post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Comprehensive
F1693-C18654	C18654	Speech post-TBI problem indicator	Subject's response concerning problems with speech post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Comprehensive
F1693-C18654	C18654	Speech post-TBI problem indicator	Subject's response concerning problems with speech post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Epidemiology
F1693-C18654	C18654	Speech post-TBI problem indicator	Subject's response concerning problems with speech post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1693-C18654	C18654	Speech post-TBI problem indicator	Subject's response concerning problems with speech post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Acute Hospitalized
F1693-C18654	C18654	Speech post-TBI problem indicator	Subject's response concerning problems with speech post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Concussion/Mild TBI
F1693-C18655	C18655	Language post-TBI problem indicator	Patient's response concerning problems with language post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Concussion/Mild TBI
F1693-C18655	C18655	Language post-TBI problem indicator	Patient's response concerning problems with language post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Comprehensive
F1693-C18655	C18655	Language post-TBI problem indicator	Patient's response concerning problems with language post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Epidemiology
F1693-C18655	C18655	Language post-TBI problem indicator	Patient's response concerning problems with language post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1693-C18655	C18655	Language post-TBI problem indicator	Patient's response concerning problems with language post-TBI	Supplemental	Screening Tool for Voice/Swallowing/Speech/Language	False	Traumatic Brain Injury	Acute Hospitalized
F1806-C08007	C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19504	C19504	Family member body uncontrolled movement indicator	Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19505	C19505	Family member mental state awareness level unexplained change indicator	Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19506	C19506	Family member repeated unusual attack or convulsion other type indicator	Indicator for any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19507	C19507	Family member seizures or epilepsy indicator	Indicator for someone having told you that you/your family member have seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19508	C19508	Source of information queried type	Type of source of information queried	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19509	C19509	Pre traumatic brain injury seizure or epilepsy indicator	Indicator for seizures or epilepsy that the patient had prior to the traumatic brain injury	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19510	C19510	Post traumatic brain injury diagnosis epilepsy seizure diagnosis indicator	Indicator for the diagnosis of the participant with epilepsy, a seizure disorder, or a single seizure after the date of the traumatic brain injury diagnosis	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19511	C19511	Seven days post traumatic brain injury seizure occurrence indicator	Indicator for the occurrence of seizure(s) later than seven days after the date of the traumatic brain injury	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive
F1806-C19512	C19512	Diagnosis giver type	Type of professional who gave the diagnosis	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Traumatic Brain Injury	Comprehensive

Displaying 4151 - 4175 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.