CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C58842	C58842	Herniation location type	Indicates herniation location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58843	C58843	Findings other present indicator	Indicates if Other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C58844	C58844	Other findings text	The free-text field to specify other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1172-C58814	C58814	Imaging magnetic resonance based identification penumbra method other text	The free-text field related to 'Imaging magnetic resonance based identification penumbra method type' specifying other text	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1172-C58815	C58815	Imaging perfusion computed tomography based identification penumbra method other text	The free-text field related to 'Imaging perfusion computed tomography based identification penumbra method type' specifying other text	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1173-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58867	C58867	Imaging chronic stroke type	Indicates chronic stroke type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58869	C58869	Imaging contrast agent name	The name of the imaging contrast agent used	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58870	C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58871	C58871	Imaging signal indicator	Indicates signal on the carotid ultrasound	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1173-C58872	C58872	Intima media thickness (IMT) edge detection algorithm type	Indicates intima media thickness (IMT) edge detection algorithm type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1174-C02483	C02483	Traumatic aneurysm findings type	Further describes the traumatic aneurysm	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02484	C02484	Traumatic aneurysm status	Status of false aneurysmal outpouching of an artery due to mechanical disruption of the entire vessel wall with extravasation of blood into a confined soft-tissue space	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02485	C02485	Traumatic aneurysm anatomic site	Anatomic site of the traumatic aneurysm	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02486	C02486	Traumatic aneurysm volume measurement	Measured volume of the traumatic aneurysm in mm (calculated from length of involved vessel)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02487	C02487	Vascular dissection findings type	Additional associated findings about the vascular dissection	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02488	C02488	Vascular dissection extent type	Extent of the vascular dissection	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02491	C02491	Venous sinus injury status	Status of compression (>50%), occlusion, or laceration of a dural venous sinus due to trauma	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02492	C02492	Venous sinus injury anatomic site	Anatomic site of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02493	C02493	Venous sinus injury morphology type	Morphology of the venous sinus injury	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C13948	C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C54675	C54675	Imaging aneurysm anatomic site	Anatomic site of aneurysm scanned scanned in the imaging study	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C54728	C54728	Aneurysm neck maximum measurement	Maximum measurement of the neck of the aneurysm being described	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.