CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C58717	C58717	Alcoholic drink not applicable last year indicator	Indicates if the participant/subject consumed no alcohol within the past year	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58718	C58718	Tobacco last consumed date and time	Date (and time, if applicable and known) the participant/subject last used tobacco	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58719	C58719	Tobacco not applicable last year indicator	Indicates if the participant/subject used no tobacco products within the past year	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58720	C58720	Collection time mortality status indicator	Indicate whether the participant/subject is living or deceased at the time of specimen collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58721	C58721	Lab specimen type other text	The free-text field related to 'Lab specimen type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58722	C58722	Specimen collection position type	Indicate the position of the participant/subject during sample collection	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58723	C58723	Blood collection method type other text	The free-text field related to 'Blood collection method type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58724	C58724	Specimen hemolyzed indicator	Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58735	C58735	Needle gauge size type	Indicate the needle gauge size	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58736	C58736	Needle gauge size type other text	The free-text field related to 'Needle gauge size type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58737	C58737	Blood collection tube number	Enter the number of collection tubes used	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58738	C58738	CSF/serum simultaneous collection indicator	Indicate whether the CSF and serum samples were collected simultaneously	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58739	C58739	CSF/plasma simultaneous collection indicator	Indicate whether the CSF and plasma samples were collected simultaneously	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58740	C58740	Specimen collection grossly bloody indicator	Indicate whether the specimen collection was grossly bloody	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58741	C58741	Specimen shipped indicator	Indicate whether the specimen was shipped	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58742	C58742	Shipping conditions type	Indicate the specimen shipping conditions	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58743	C58743	Shipping conditions type other text	The free-text field related to other shipping conditions type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58744	C58744	Specimen ambient light protection indicator	Indicate whether the specimen was protected from ambient light	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58745	C58745	Specimen cooler than room temperature indicator	Indicate whether the specimen was kept cooler than room temperature	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58746	C58746	Specimen centrifugation date and time	Date (and time if applicable and known) when the specimen was centrifuged	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58747	C58747	Specimen freezing date and time	Date (and time if applicable and known) when the specimen was frozen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58748	C58748	Freezing method type	The method of freezing of the specimen	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58749	C58749	Freezing method type other text	The free-text field related to freezing method type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58750	C58750	Blood collection tube additive type other text	The free-text field related to other blood collection tube additive type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C58751	C58751	Specimen expiration date	Date when the specimen will expire, if applicable	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.