CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C58913	C58913	Perinatal arterial ischemic stroke type	Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58914	C58914	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy primary diagnosis subtype classification status	The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58915	C58915	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status	The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58916	C58916	Vascular effects of Infection in Pediatric Stroke (VIPS) - focal cerebral arteriopathy type	Type of focal cerebral arteriopathy (FCA), as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58917	C58917	Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale	The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58918	C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58919	C58919	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58920	C58920	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 2 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M2 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58921	C58921	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58922	C58922	Focal Cerebral Arteriopathy Severity Score (FCASS) - baseline score	Score related to the baseline sum of the five individual arterial segment scores (without weighting), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58923	C58923	Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code	The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58924	C58924	Focal Cerebral Arteriopathy Severity Score (FCASS) - follow up sum score	Score related to the follow-up sum of the five individual arterial segment scores (without weighting) and the delta point (if applicable), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58925	C58925	Sophia chance findings during routine imaging other text	The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1163-C58829	C58829	Diagnosis principal discharge stroke TIA related ICD-10-CM code status	Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1163-C58831	C58831	Stroke initial residence or discharge destination other text	The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1164-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58816	C58816	Frontal lobe function status	Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58817	C58817	Parietal lobe function status	Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58818	C58818	Dysphagia status	Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1164-C58819	C58819	Dizziness indicator	Indicator of whether the participant/subject experienced dizziness	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1165-C01500	C01500	Airway treatment type	Type of treatment or procedures the participant/subject received to support airway/ breathing	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01551	C01551	Respiration type	Type of respiration.	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C01557	C01557	Respiratory support type	Type of respiratory support participant/subject received	Supplemental	Vital Signs	False	Stroke	Stroke
F1167-C01714	C01714	Pregnancy test not applicable reason	Reason that performance of a pregnancy test was not applicable to the participant/subject	Supplemental	Laboratory Tests	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.