CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2346-C02421	C02421	Diffuse axonal injury status	Status of a widespread distribution of lesions, including the subcortical white matter in more than one lobe or hemisphere, along with lesions in the corpus callosum, and may include the dorsomedial midbrain and other brainstem and cerebellar regions	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive
F2346-C02421	C02421	Diffuse axonal injury status	Status of a widespread distribution of lesions, including the subcortical white matter in more than one lobe or hemisphere, along with lesions in the corpus callosum, and may include the dorsomedial midbrain and other brainstem and cerebellar regions	Supplemental	Imaging	False	Sport-Related Concussion	Subacute
F2346-C02424	C02424	Brain edema status	Status of an abnormal accumulation of water in the intracellular and/or extracellular spaces of the brain	Supplemental	Imaging	False	Sport-Related Concussion	Subacute
F2346-C02424	C02424	Brain edema status	Status of an abnormal accumulation of water in the intracellular and/or extracellular spaces of the brain	Supplemental	Imaging	False	Sport-Related Concussion	Acute
F2346-C02424	C02424	Brain edema status	Status of an abnormal accumulation of water in the intracellular and/or extracellular spaces of the brain	Supplemental	Imaging	False	Sport-Related Concussion	Persistent/Chronic
F2346-C02424	C02424	Brain edema status	Status of an abnormal accumulation of water in the intracellular and/or extracellular spaces of the brain	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive
F2346-C02425	C02425	Brain edema anatomic site	Anatomic site of the brain edema	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive
F2346-C02425	C02425	Brain edema anatomic site	Anatomic site of the brain edema	Supplemental	Imaging	False	Sport-Related Concussion	Subacute
F2346-C02425	C02425	Brain edema anatomic site	Anatomic site of the brain edema	Supplemental	Imaging	False	Sport-Related Concussion	Acute
F2346-C02425	C02425	Brain edema anatomic site	Anatomic site of the brain edema	Supplemental	Imaging	False	Sport-Related Concussion	Persistent/Chronic
F2346-C02427	C02427	Epidural hematoma status	Status of a collection of blood between the skull and dura. On CT, the EDH typically (though not always) has a biconvex shape, an adjacent skull fracture/scalp injury, and classically does not cross sutural margins. (In patients with skull fractures, especially those in children involving the sutures, this rule may not always apply.) The acute EDH is hyperdense, but may contain hypodense areas representing unclotted blood. As the EDH evolves, it gradually loses its hyperdensity and may appear iso/hypodense. On MRI, the acute EDH is hypo/isointense on T1 and very hypointense on T2, GRE, and SW-imaging. The inwardly displaced dura should be directly visualized on MR as a thin dark line on all pulse sequences	Supplemental	Imaging	False	Sport-Related Concussion	Persistent/Chronic
F2346-C02427	C02427	Epidural hematoma status	Status of a collection of blood between the skull and dura. On CT, the EDH typically (though not always) has a biconvex shape, an adjacent skull fracture/scalp injury, and classically does not cross sutural margins. (In patients with skull fractures, especially those in children involving the sutures, this rule may not always apply.) The acute EDH is hyperdense, but may contain hypodense areas representing unclotted blood. As the EDH evolves, it gradually loses its hyperdensity and may appear iso/hypodense. On MRI, the acute EDH is hypo/isointense on T1 and very hypointense on T2, GRE, and SW-imaging. The inwardly displaced dura should be directly visualized on MR as a thin dark line on all pulse sequences	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive
F2346-C02427	C02427	Epidural hematoma status	Status of a collection of blood between the skull and dura. On CT, the EDH typically (though not always) has a biconvex shape, an adjacent skull fracture/scalp injury, and classically does not cross sutural margins. (In patients with skull fractures, especially those in children involving the sutures, this rule may not always apply.) The acute EDH is hyperdense, but may contain hypodense areas representing unclotted blood. As the EDH evolves, it gradually loses its hyperdensity and may appear iso/hypodense. On MRI, the acute EDH is hypo/isointense on T1 and very hypointense on T2, GRE, and SW-imaging. The inwardly displaced dura should be directly visualized on MR as a thin dark line on all pulse sequences	Supplemental	Imaging	False	Sport-Related Concussion	Subacute
F2346-C02427	C02427	Epidural hematoma status	Status of a collection of blood between the skull and dura. On CT, the EDH typically (though not always) has a biconvex shape, an adjacent skull fracture/scalp injury, and classically does not cross sutural margins. (In patients with skull fractures, especially those in children involving the sutures, this rule may not always apply.) The acute EDH is hyperdense, but may contain hypodense areas representing unclotted blood. As the EDH evolves, it gradually loses its hyperdensity and may appear iso/hypodense. On MRI, the acute EDH is hypo/isointense on T1 and very hypointense on T2, GRE, and SW-imaging. The inwardly displaced dura should be directly visualized on MR as a thin dark line on all pulse sequences	Supplemental	Imaging	False	Sport-Related Concussion	Acute
F2346-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Imaging	False	Sport-Related Concussion	Persistent/Chronic
F2346-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive
F2346-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Imaging	False	Sport-Related Concussion	Subacute
F2346-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Imaging	False	Sport-Related Concussion	Acute
F2346-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Imaging	False	Sport-Related Concussion	Persistent/Chronic
F2346-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive
F2346-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Imaging	False	Sport-Related Concussion	Subacute
F2346-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Imaging	False	Sport-Related Concussion	Acute
F2346-C02448	C02448	Ischemia infarction hypoxic-ischemic injury acute subacute finding type	Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan	Supplemental	Imaging	False	Sport-Related Concussion	Acute
F2346-C02448	C02448	Ischemia infarction hypoxic-ischemic injury acute subacute finding type	Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan	Supplemental	Imaging	False	Sport-Related Concussion	Persistent/Chronic
F2346-C02448	C02448	Ischemia infarction hypoxic-ischemic injury acute subacute finding type	Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan	Supplemental	Imaging	False	Sport-Related Concussion	Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.