CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 14951 - 14975 of 16387

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2585-C21132	C21132	Quality of Life - Movement zipper open close ability scale	The scale which represents the extent to which the participant was able to open and close a zipper, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Information Measurement System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Persistent/Chronic
F2585-C21132	C21132	Quality of Life - Movement zipper open close ability scale	The scale which represents the extent to which the participant was able to open and close a zipper, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Information Measurement System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Subacute
F2585-C21134	C21134	Quality of Life - Movement shampoo hair ability scale	The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Subacute
F2585-C21134	C21134	Quality of Life - Movement shampoo hair ability scale	The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Comprehensive
F2585-C21134	C21134	Quality of Life - Movement shampoo hair ability scale	The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Acute
F2585-C21134	C21134	Quality of Life - Movement shampoo hair ability scale	The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Persistent/Chronic
F2585-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Persistent/Chronic
F2585-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Subacute
F2585-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Comprehensive
F2585-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Acute
F2585-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Acute
F2585-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Persistent/Chronic
F2585-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Subacute
F2585-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Comprehensive
F2585-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Acute
F2585-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Persistent/Chronic
F2585-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Subacute
F2585-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Comprehensive
F2585-C53672	C53672	Quality of Life - Upper extremity mobility carry heavy object scale	The scale which represents the extent to which the participant was able to carry a heavy object over 10 pounds, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Acute
F2585-C53672	C53672	Quality of Life - Upper extremity mobility carry heavy object scale	The scale which represents the extent to which the participant was able to carry a heavy object over 10 pounds, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Persistent/Chronic
F2585-C53672	C53672	Quality of Life - Upper extremity mobility carry heavy object scale	The scale which represents the extent to which the participant was able to carry a heavy object over 10 pounds, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Subacute
F2585-C53672	C53672	Quality of Life - Upper extremity mobility carry heavy object scale	The scale which represents the extent to which the participant was able to carry a heavy object over 10 pounds, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Comprehensive
F2585-C53882	C53882	Quality of Life - Upper extremity mobility movement dress self scale	The scale which represents the extent to which the participant was able to dress, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Comprehensive
F2585-C53882	C53882	Quality of Life - Upper extremity mobility movement dress self scale	The scale which represents the extent to which the participant was able to dress, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Acute
F2585-C53882	C53882	Quality of Life - Upper extremity mobility movement dress self scale	The scale which represents the extent to which the participant was able to dress, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Exploratory	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Sport-Related Concussion	Persistent/Chronic

Displaying 14951 - 14975 of 16387

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.