CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 7951 - 7975 of 16387

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2058-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21142	C21142	Quality of Life - Movement pull trouser on ability scale	The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21142	C21142	Quality of Life - Movement pull trouser on ability scale	The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21142	C21142	Quality of Life - Movement pull trouser on ability scale	The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21142	C21142	Quality of Life - Movement pull trouser on ability scale	The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21143	C21143	Quality of Life - Movement button shirt ability scale	The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21144	C21144	Quality of Life - Movement fingernail trim ability scale	The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21145	C21145	Quality of Life - Movement toenail trim ability scale	The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21145	C21145	Quality of Life - Movement toenail trim ability scale	The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21145	C21145	Quality of Life - Movement toenail trim ability scale	The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21145	C21145	Quality of Life - Movement toenail trim ability scale	The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21146	C21146	Quality of Life - Movement bend down pick up cloth ability scale	The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21146	C21146	Quality of Life - Movement bend down pick up cloth ability scale	The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21146	C21146	Quality of Life - Movement bend down pick up cloth ability scale	The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21146	C21146	Quality of Life - Movement bend down pick up cloth ability scale	The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2324-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Sport Concussion Assessment Tool - 3rd Edition (SCAT3)	True	Sport-Related Concussion	Subacute
F2324-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Sport Concussion Assessment Tool - 3rd Edition (SCAT3)	True	Sport-Related Concussion	Comprehensive
F2324-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Sport Concussion Assessment Tool - 3rd Edition (SCAT3)	True	Sport-Related Concussion	Persistent/Chronic

Displaying 7951 - 7975 of 16387

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.