CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 7926 - 7950 of 16387

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2058-C21135	C21135	Quality of Life - Movement spoon eat meal difficulty scale	The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21135	C21135	Quality of Life - Movement spoon eat meal difficulty scale	The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21135	C21135	Quality of Life - Movement spoon eat meal difficulty scale	The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21136	C21136	Quality of Life - Movement dress pullover shirt on difficulty scale	The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21136	C21136	Quality of Life - Movement dress pullover shirt on difficulty scale	The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21136	C21136	Quality of Life - Movement dress pullover shirt on difficulty scale	The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21136	C21136	Quality of Life - Movement dress pullover shirt on difficulty scale	The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21137	C21137	Quality of Life - Movement dress pullover shirt off difficulty scale	The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21137	C21137	Quality of Life - Movement dress pullover shirt off difficulty scale	The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21137	C21137	Quality of Life - Movement dress pullover shirt off difficulty scale	The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21137	C21137	Quality of Life - Movement dress pullover shirt off difficulty scale	The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21138	C21138	Quality of Life - Movement small object remove wrap difficulty scale	The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21138	C21138	Quality of Life - Movement small object remove wrap difficulty scale	The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21138	C21138	Quality of Life - Movement small object remove wrap difficulty scale	The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21138	C21138	Quality of Life - Movement small object remove wrap difficulty scale	The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21139	C21139	Quality of Life - Movement medication open difficulty scale	The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21139	C21139	Quality of Life - Movement medication open difficulty scale	The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21139	C21139	Quality of Life - Movement medication open difficulty scale	The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21139	C21139	Quality of Life - Movement medication open difficulty scale	The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21140	C21140	Quality of Life - Movement open prior open jar ability scale	The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Comprehensive
F2058-C21140	C21140	Quality of Life - Movement open prior open jar ability scale	The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Acute
F2058-C21140	C21140	Quality of Life - Movement open prior open jar ability scale	The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21140	C21140	Quality of Life - Movement open prior open jar ability scale	The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute
F2058-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Persistent/Chronic
F2058-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	Sport-Related Concussion	Subacute

Displaying 7926 - 7950 of 16387

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.