CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1978-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Persistent/Chronic
F1978-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Subacute
F1978-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Acute
F1978-C52318	C52318	Post-Concussion Symptom Inventory (PCSI) - Headache scale	Scale to which the subject complained of headaches, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Acute
F1978-C52318	C52318	Post-Concussion Symptom Inventory (PCSI) - Headache scale	Scale to which the subject complained of headaches, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Comprehensive
F1978-C52318	C52318	Post-Concussion Symptom Inventory (PCSI) - Headache scale	Scale to which the subject complained of headaches, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Persistent/Chronic
F1978-C52318	C52318	Post-Concussion Symptom Inventory (PCSI) - Headache scale	Scale to which the subject complained of headaches, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Subacute
F1978-C52319	C52319	Post-Concussion Symptom Inventory (PCSI) - Nausea scale	Scale to which the subject complained of nausea, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Persistent/Chronic
F1978-C52319	C52319	Post-Concussion Symptom Inventory (PCSI) - Nausea scale	Scale to which the subject complained of nausea, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Subacute
F1978-C52319	C52319	Post-Concussion Symptom Inventory (PCSI) - Nausea scale	Scale to which the subject complained of nausea, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Acute
F1978-C52319	C52319	Post-Concussion Symptom Inventory (PCSI) - Nausea scale	Scale to which the subject complained of nausea, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Comprehensive
F1978-C52320	C52320	Post-Concussion Symptom Inventory (PCSI) - Balance problem scale	Scale to which the subject experienced balance problems, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Persistent/Chronic
F1978-C52320	C52320	Post-Concussion Symptom Inventory (PCSI) - Balance problem scale	Scale to which the subject experienced balance problems, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Subacute
F1978-C52320	C52320	Post-Concussion Symptom Inventory (PCSI) - Balance problem scale	Scale to which the subject experienced balance problems, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Acute
F1978-C52320	C52320	Post-Concussion Symptom Inventory (PCSI) - Balance problem scale	Scale to which the subject experienced balance problems, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Comprehensive
F1978-C52321	C52321	Post-Concussion Symptom Inventory (PCSI) - Dizziness scale	Scale to which the subject appeared or complained of dizziness, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Persistent/Chronic
F1978-C52321	C52321	Post-Concussion Symptom Inventory (PCSI) - Dizziness scale	Scale to which the subject appeared or complained of dizziness, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Subacute
F1978-C52321	C52321	Post-Concussion Symptom Inventory (PCSI) - Dizziness scale	Scale to which the subject appeared or complained of dizziness, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Acute
F1978-C52321	C52321	Post-Concussion Symptom Inventory (PCSI) - Dizziness scale	Scale to which the subject appeared or complained of dizziness, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Comprehensive
F1978-C52322	C52322	Post-Concussion Symptom Inventory (PCSI) - Fatigue scale	Scale to which the subject has fatigue, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Persistent/Chronic
F1978-C52322	C52322	Post-Concussion Symptom Inventory (PCSI) - Fatigue scale	Scale to which the subject has fatigue, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Subacute
F1978-C52322	C52322	Post-Concussion Symptom Inventory (PCSI) - Fatigue scale	Scale to which the subject has fatigue, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Acute
F1978-C52322	C52322	Post-Concussion Symptom Inventory (PCSI) - Fatigue scale	Scale to which the subject has fatigue, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Comprehensive
F1978-C52323	C52323	Post-Concussion Symptom Inventory (PCSI) - Drowsiness scale	Scale to which the subject experiences drowsiness, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Persistent/Chronic
F1978-C52323	C52323	Post-Concussion Symptom Inventory (PCSI) - Drowsiness scale	Scale to which the subject experiences drowsiness, as part of the Post-Concussion Symptom Inventory (PCSI)	Supplemental	Post-Concussion Symptom Inventory (PCSI) Self-Report Assessment Form Pre and Post-Injury Report Ages 13-18	False	Sport-Related Concussion	Subacute

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.