CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2068-C11080	C11080	Delivery modality type	Type of modality of the participant/subject's intrauterine orientation at delivery	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C11083	C11083	Delivery extraction type	Type of extraction used to assist with the delivery of the participant/subject	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12604	C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12625	C12625	Respiratory intervention neonatal problem type	Type of intervention for breathing problems at or soon after the participant/subject's delivery	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12628	C12628	Neonatal intensive care unit stay indicator	Indicator whether the participant/subject had to stay in the neonatal intensive care unit (NICU)	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12629	C12629	Neonatal intensive care unit stay duration	Duration of the participant/subject's stay in the neonatal intensive care unit (NICU)	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12631	C12631	Deliver condition hypotonia grade	Grade of any hypotonia (floppiness) that was present at or soon after the participant/subject's delivery	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C15985	C15985	Multiple birth indicator	Indicates whether the participant/subject was a part of a multiple live birth	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C17983	C17983	Caesarean delivery timing type	Type of timing conditions under which Caesarean delivery was decided upon	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C21620	C21620	Gestational age value range	Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C21621	C21621	Twin sibling vital status	The vital status of twin of the participant/subject	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C10628	C10628	Diary day falls status	Describes whether the participant/subject experienced falls on a particular day	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C10629	C10629	Diary day falls experienced number	Number of falls the participant/subject experienced on a particular day	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C10630	C10630	Diary day near falls experienced number	Number of near falls the participant/subject experienced on a particular day	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C19144	C19144	Activity description	Description of activity	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21634	C21634	Diary day falls date	Date in the diary when the participant/subject recorded a fall	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21635	C21635	Fall record date and time	Date and time for each fall recorded in the falls diary by the participant/subject	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21636	C21636	Fall details location text	Location of the fall the participant/subject experienced recorded in the Falls Diary	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21637	C21637	Fall details footwear type	Type of footwear the participant/subject was wearing when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21638	C21638	Fall details footwear specify text	The free-text field to specify the type of other footwear worn when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21639	C21639	Fall details assistive device type	Type of assistive device(s) the participant/subject was using when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21640	C21640	Fall details assistive device specify text	The free-text field to specify the other type of assistive device used when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21641	C21641	Fall details injury sustained test	Description of the injuries sustained when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21642	C21642	Fall details not walking type	Details of the participant's/subject's position if fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21643	C21643	Fall details specify type	Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1226 - 1250 of 1888

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.