CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1803-C19461	C19461	Acute spinal cord injury feature type	Type of acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19462	C19462	Sagittal magnetic resonance imaging spine level anatomic site	Anatomic level of injury on the spinal cord in sagittal magnetic resonance image	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19463	C19463	Acute spinal cord injury features integer range value	Value on the integer range for acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19464	C19464	Imaging cord transaction indicator	Indicator for cord transaction in magnetic resonance imaging	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19465	C19465	SCI chronic finding type	Type of chronic finding for spinal cord injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19466	C19466	SCI chronic finding indicator	Indicator for chronic SCI finding	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19470	C19470	Spine upper level anatomic site	Anatomic site on the upper level of the spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19472	C19472	Spine lower level anatomic site	Anatomic site on the lower level of the spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19473	C19473	Spine caliber integer range value	Value on the integer range of spine caliber	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19474	C19474	Spine length integer range value	Value on the integer range of spine length in millimeters	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C18689	C18689	Imaging anatomic site other text	The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C18701	C18701	Imaging modality type other text	The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19082	C19082	Interventionprocedure date	Date (and time if applicable and known) intervention/procedure was performed	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19083	C19083	Non-surgical bed rest external immobilization indicator	The indicator related to non-surgical bed rest and external immobilization	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19084	C19084	Spinal elements close manipulation & reduction indicator	The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19085	C19085	Surgical procedure approach type	The type of approach taken in surgical procedure	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.