CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1790-C06461	C06461	Non traumatic spinal cord injury etiology classification axis 1 level 2 category	The category of level 2 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06462	C06462	Non traumatic spinal cord injury onset type	The type of onset timeframe over which the non-traumatic spinal cord injury developed	Supplemental	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06463	C06463	Non traumatic spinal cord injury iatrogenic indicator	Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury	Supplemental	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06464	C06464	Non traumatic spinal cord injury etiology axis 1 level 3 category	The category of level 3 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06465	C06465	Non traumatic spinal cord injury etiology axis 1 level 4 category	The category of level 4 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06466	C06466	Non traumatic spinal cord injury etiology axis 1 level 5 category	The category of level 5 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06467	C06467	Non traumatic spinal cord injury axis 2 ICD version number	ICD version used to classify the etiology of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06468	C06468	Non traumatic spinal cord injury axis 2 ICD code	ICD codes are used to classify the etiology of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C17409	C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	Core	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C22645	C22645	Spinal cord injury non traumatic etiology type	Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude	Core	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01000	C01000	Glasgow Coma Scale (GCS) - eye response scale	Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-c01001	C01001	Glasgow Coma Scale (GCS) - motor response scale	Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01002	C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01016	C01016	Glasgow Coma Scale (GCS) - total score	Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01017	C01017	Pediatric Glasgow Coma Scale (PGCS) - total score	Score for the participant's total Pediatric Glasgow Coma Scale (PGCS) score of the 3 tests, eye, motor, and verbal responses. A score of less than 9 would indicate that that participant is in a severe coma while a score of greater than 9 is a mild or no coma at all	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01020	C01020	Pediatric Glasgow Coma Scale (PGCS) - eye response score	Score for the participant's eye response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01021	C01021	Pediatric Glasgow Coma Scale (PGCS) - motor response score	Score for the participant's motor response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01022	C01022	Pediatric Glasgow Coma Scale (PGCS) - verbal response score	Score for the participant's verbal response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05418	C05418	Hospital transport type	Type of transportation from injury scene to hospital	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05433	C05433	Protective devices use indicator	Indicator of protective devices used by participant/subject (e.g., helmet, car seat, seat belt, etc.)	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05434	C05434	Vehicular protective device type	Type of protective devices used by the participant/subject	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05450	C05450	Abbreviated Injury Scale body region score	Score for the body region measured by Abbreviated Injury Scale	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05451	C05451	Injury Severity Score	Score measured by injury severity score (ISS)	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05453	C05453	Hypotensive episode indicator	Indicator of hypotensive episode. In adults, hypotensive episode is defined as systolic blood pressure	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.