CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1725-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C04802	C04802	Death date and time	Date (and time, if known) of participant's death	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C06012	C06012	Urinary tract impairment unrelate injury indicator	Indicator of urinary tract impairment unrelated to spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C06173	C06173	Gastrointestinal anal sphincter dysfunction unrelate SCI indicator	Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C06359	C06359	Osteoporosis diagnosis method type	Method used to diagnosis osteoporosis	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18146	C18146	Laboratory procedure HDL cholesterol measurement	Measurement of the amount of high density lipoprotein (HDL) cholesterol in the participant's blood	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18147	C18147	Laboratory procedure LDL cholesterol measurement	Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18149	C18149	Lipid disorder specify name	Specifies the name of lipid disorder diagnosed	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18151	C18151	Thyroid disease specify name	Specifies the name of thyroid disease diagnosed	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18168	C18168	Laboratory procedure total cholesterol measurement	Measurement of the total amount of cholesterol in the participant's blood	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18169	C18169	Laboratory procedure triglycerides measurement	Measurement of the amount of triglycerides in the participant's blood	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18779	C18779	Urinary tract impairment unrelate injury specify text	The free-text field related to 'Urinary tract impairment unrelate injury indicator'. Indicator of urinary tract impairment unrelated to spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18785	C18785	Gastrointestinal anal sphincter dysfunction unrelate SCI specify text	The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19078	C19078	Cardiovascular history cardiac surgery other text	The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19161	C19161	Participant safety compromising medical condition indicator	Indicator for serious co-morbid or concomitant medical condition that, in the opinion of the investigator, would compromise the safety of the patient/participant or compromise the participant's ability to participate in the study	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19171	C19171	Cardiac pacemaker last insertion date	Date at which cardiac pacemaker was last inserted	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19174	C19174	Other cardiac disorder type	Type of other cardiac disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 701 - 725 of 1888

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.