CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 501 - 525 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19478 Spinal cord injury performance rate scale

The performance or satisfaction rating after spinal cord injuiry

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19479 Spinal cord injury mobility moderate distance status

The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19480 Spinal cord injury dressing lower body status

The status related to spinal cord injur and dressing lower body

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19481 Spinal cord injury feeding ability status

The status for feeding ability and spinal cord injury

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19482 Paid work hour week count

The number of hours per week in paid work

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19483 Volunteer work hour week count

The number of hours per week in volunteer work

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19484 Household work hour week count

The number of hours per week in household work

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19485 Education study hour week count

The number of hours per week in educational study

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19486 Leisure activity hour week count

The number of hours per week of spare time activities

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19487 Relationship family contact count

The number of family members in contact with

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19488 Relationship friend contact count

The number of friends in contact with

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19489 Relationship spouse status

The status of spousal relationship

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19490 Spinal cord injury toileting assessment status

The status related to toileting and spinal cord injury

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01522 Height measurement

Measurement of participant's height

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01541 Weight measurement

Measurement of participant's weight

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06115 Force vital capacity measurement

Forced vital capacity (FVC) value measured in liters using simple spirometry. FVC is defined as the total volume of air that a person can forcibly exhale during a maximal expiratory effort

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06116 Force expiratory volume measurement

Forced expiratory volume in one second (FEV1) value measured in liters using simple spirometry. FEV1 is the volume expired in the first second of the forced vital capacity (FVC) maneuver

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06117 Peak expiratory flow measurement

Peak expiratory flow (PEF) value measured in liters/minute. PEF is the maximal expiratory flow rate achieved during the forced vital capacity (FVC) maneuver

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
Displaying 501 - 525 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.