CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2886-C10318	C10318	Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling exhausted indicator	Scale assessing how true the following statement has been for the participant during the last month: Feel exhausted? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10318	C10318	Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling exhausted indicator	Scale assessing how true the following statement has been for the participant during the last month: Feel exhausted? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10319	C10319	Quality of Life in Swallowing Disorders (SWAL-QOL) - intake feeding tube indicator	Scale assessing how true the following statement has been for the participant during the last month: Do you now take any food or liquid through a feeding tube? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10319	C10319	Quality of Life in Swallowing Disorders (SWAL-QOL) - intake feeding tube indicator	Scale assessing how true the following statement has been for the participant during the last month: Do you now take any food or liquid through a feeding tube? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10320	C10320	Quality of Life in Swallowing Disorders (SWAL-QOL) - consistency texture food indicator	Category of consistency or texture of the food the participant has been eating most often in the last week. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10320	C10320	Quality of Life in Swallowing Disorders (SWAL-QOL) - consistency texture food indicator	Category of consistency or texture of the food the participant has been eating most often in the last week. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10321	C10321	Quality of Life in Swallowing Disorders (SWAL-QOL) - consistency liquid indicator	Category of consistency or texture of the liquids participant has been drinking most often in the last week. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10321	C10321	Quality of Life in Swallowing Disorders (SWAL-QOL) - consistency liquid indicator	Category of consistency or texture of the liquids participant has been drinking most often in the last week. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10322	C10322	Quality of Life in Swallowing Disorders (SWAL-QOL) - general health indicator	Scale assessing the general health of the participant. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10322	C10322	Quality of Life in Swallowing Disorders (SWAL-QOL) - general health indicator	Scale assessing the general health of the participant. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17833	C17833	Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire help indicator	Indicator of whether the subject/participant received help filling out the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C17833	C17833	Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire help indicator	Indicator of whether the subject/participant received help filling out the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17834	C17834	Quality of Life in Swallowing Disorders (SWAL-QOL) - age number	Age of subject/participant	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C17834	C17834	Quality of Life in Swallowing Disorders (SWAL-QOL) - age number	Age of subject/participant	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17836	C17836	Quality of Life in Swallowing Disorders (SWAL-QOL) - education level status	Participant's highest education level	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17836	C17836	Quality of Life in Swallowing Disorders (SWAL-QOL) - education level status	Participant's highest education level	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C17838	C17838	Quality of Life in Swallowing Disorders (SWAL-QOL) - gender type	Self-reported gender of the subject/participant	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17838	C17838	Quality of Life in Swallowing Disorders (SWAL-QOL) - gender type	Self-reported gender of the subject/participant	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C17839	C17839	Quality of Life in Swallowing Disorders (SWAL-QOL) - help method type	Type of help the subject/participant received filling out the questionnaire	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17839	C17839	Quality of Life in Swallowing Disorders (SWAL-QOL) - help method type	Type of help the subject/participant received filling out the questionnaire	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C17840	C17840	Quality of Life in Swallowing Disorders (SWAL-QOL) - marital status	Status of whether the participant is married, divorced, separated, widowed, or never married	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C17840	C17840	Quality of Life in Swallowing Disorders (SWAL-QOL) - marital status	Status of whether the participant is married, divorced, separated, widowed, or never married	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17841	C17841	Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire general comment text	Text regarding the subject's/participant's comments about the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C17841	C17841	Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire general comment text	Text regarding the subject's/participant's comments about the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C17842	C17842	Quality of Life in Swallowing Disorders (SWAL-QOL) - racial ethnic type	Race or ethnicity of the subject/participant	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.