CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

Displaying 2451 - 2475 of 3808

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2886-C10305	C10305	Quality of Life in Swallowing Disorders (SWAL-QOL) - careful diet annoy problem indicator	Scale assessing how true the following statement has been for the participant during the last month: Having to be so careful when I eat or drink annoys me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10306	C10306	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem discourage indicator	Scale assessing how true the following statement has been for the participant during the last month: I've been discouraged by my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10306	C10306	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem discourage indicator	Scale assessing how true the following statement has been for the participant during the last month: I've been discouraged by my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10307	C10307	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator	Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10307	C10307	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator	Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10308	C10308	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem impatient problem indicator	Scale assessing how true the following statement has been for the participant during the last month: I get impatient dealing with my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10308	C10308	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem impatient problem indicator	Scale assessing how true the following statement has been for the participant during the last month: I get impatient dealing with my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10309	C10309	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem not go out indicator	Scale assessing how true the following statement has been for the participant during the last month: I do not go out to eat because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10309	C10309	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem not go out indicator	Scale assessing how true the following statement has been for the participant during the last month: I do not go out to eat because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10310	C10310	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem hard social life indicator	Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem makes it hard to have a social life. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10310	C10310	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem hard social life indicator	Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem makes it hard to have a social life. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10311	C10311	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem changed activities indicator	Scale assessing how true the following statement has been for the participant during the last month: My usual work or leisure activities have changed because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10311	C10311	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem changed activities indicator	Scale assessing how true the following statement has been for the participant during the last month: My usual work or leisure activities have changed because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10312	C10312	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem enjoyable social indicator	Scale assessing how true the following statement has been for the participant during the last month: Social gatherings (like holidays or get-togethers) are not enjoyable because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10312	C10312	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem enjoyable social indicator	Scale assessing how true the following statement has been for the participant during the last month: Social gatherings (like holidays or get-togethers) are not enjoyable because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10313	C10313	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem changed family friends role indicator	Scale assessing how true the following statement has been for the participant during the last month: My role with family and friends has changed because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10313	C10313	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem changed family friends role indicator	Scale assessing how true the following statement has been for the participant during the last month: My role with family and friends has changed because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10314	C10314	Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling weak indicator	Scale assessing how true the following statement has been for the participant during the last month: Feel weak? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10314	C10314	Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling weak indicator	Scale assessing how true the following statement has been for the participant during the last month: Feel weak? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10315	C10315	Quality of Life in Swallowing Disorders (SWAL-QOL) - troubling falling asleep indicator	Scale assessing how true the following statement has been for the participant during the last month: Have trouble falling asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10315	C10315	Quality of Life in Swallowing Disorders (SWAL-QOL) - troubling falling asleep indicator	Scale assessing how true the following statement has been for the participant during the last month: Have trouble falling asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10316	C10316	Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling tired indicator	Scale assessing how true the following statement has been for the participant during the last month: Feel tired? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10316	C10316	Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling tired indicator	Scale assessing how true the following statement has been for the participant during the last month: Feel tired? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C10317	C10317	Quality of Life in Swallowing Disorders (SWAL-QOL) - trouble staying asleep indicator	Scale assessing how true the following statement has been for the participant during the last month: Having trouble staying asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C10317	C10317	Quality of Life in Swallowing Disorders (SWAL-QOL) - trouble staying asleep indicator	Scale assessing how true the following statement has been for the participant during the last month: Having trouble staying asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General

Displaying 2451 - 2475 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.