CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 2401 - 2425 of 3808
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10280 Quality of Life in Swallowing Disorders (SWAL-QOL) - long eating period indicator

Scale assessing how true the following statement has been for the participant during the last month: It takes me forever to eat a meal. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10281 Quality of Life in Swallowing Disorders (SWAL-QOL) - eating enjoyment indicator

Scale assessing how true the following statement has been for the participant during the last month: I don't enjoy eating anymore. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10281 Quality of Life in Swallowing Disorders (SWAL-QOL) - eating enjoyment indicator

Scale assessing how true the following statement has been for the participant during the last month: I don't enjoy eating anymore. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10282 Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Coughing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10282 Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Coughing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10283 Quality of Life in Swallowing Disorders (SWAL-QOL) - choking food problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Choking when you eat food. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10283 Quality of Life in Swallowing Disorders (SWAL-QOL) - choking food problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Choking when you eat food. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10284 Quality of Life in Swallowing Disorders (SWAL-QOL) - choking liquid problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Choking when you take liquids. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10284 Quality of Life in Swallowing Disorders (SWAL-QOL) - choking liquid problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Choking when you take liquids. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10285 Quality of Life in Swallowing Disorders (SWAL-QOL) - thick saliva phlegm problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having thick saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10285 Quality of Life in Swallowing Disorders (SWAL-QOL) - thick saliva phlegm problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having thick saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10286 Quality of Life in Swallowing Disorders (SWAL-QOL) - gagging problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Gagging. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10286 Quality of Life in Swallowing Disorders (SWAL-QOL) - gagging problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Gagging. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10287 Quality of Life in Swallowing Disorders (SWAL-QOL) - drooling problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Drooling. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10287 Quality of Life in Swallowing Disorders (SWAL-QOL) - drooling problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Drooling. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10288 Quality of Life in Swallowing Disorders (SWAL-QOL) - chewing problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Problems Chewing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10288 Quality of Life in Swallowing Disorders (SWAL-QOL) - chewing problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Problems Chewing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10289 Quality of Life in Swallowing Disorders (SWAL-QOL) - excess saliva phlegm problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having excess saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10289 Quality of Life in Swallowing Disorders (SWAL-QOL) - excess saliva phlegm problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having excess saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10290 Quality of Life in Swallowing Disorders (SWAL-QOL) - clear throat problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having to clear your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10290 Quality of Life in Swallowing Disorders (SWAL-QOL) - clear throat problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having to clear your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10291 Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking throat problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10291 Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking throat problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10292 Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking mouth problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your mouth. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C10292 Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking mouth problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your mouth. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
Displaying 2401 - 2425 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.