CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2939-C17402	C17402	Site name	The name of the site for the study	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C17402	C17402	Site name	The name of the site for the study	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C17447	C17447	Event description text	The free-text field to describe the event	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C17447	C17447	Event description text	The free-text field to describe the event	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19126	C19126	Clinical trial name	Name of clinical trial in which patient/participant is enrolled	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C19126	C19126	Clinical trial name	Name of clinical trial in which patient/participant is enrolled	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19247	C19247	Subject ID	Subject identification ID	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19247	C19247	Subject ID	Subject identification ID	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C19256	C19256	Study protocol name	Name of study protocol	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19256	C19256	Study protocol name	Name of study protocol	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C21925	C21925	Balance falls frequency	The frequency as related to falls	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C21925	C21925	Balance falls frequency	The frequency as related to falls	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C52564	C52564	Data source family relation specify text	Free-text field specifying the relationship of the family member from which data on the participant was obtained	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C52564	C52564	Data source family relation specify text	Free-text field specifying the relationship of the family member from which data on the participant was obtained	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C53062	C53062	Diabetes mellitus medical history indicator	Indicator as to whether the participant/subject has a medical history of diabetes mellitus (type I or type II)	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.