CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4176 - 4200 of 4296

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2915-C20838	C20838	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness concentration difficulty past week scale	The scale which represents how often the participant had a hard time concentrating because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20839	C20839	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale	The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20839	C20839	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale	The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20839	C20839	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale	The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20840	C20840	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken ready start day past week scale	The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20840	C20840	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken ready start day past week scale	The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20840	C20840	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken ready start day past week scale	The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20841	C20841	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken difficulty past week scale	The scale which represents how often the participant had difficulty waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20841	C20841	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken difficulty past week scale	The scale which represents how often the participant had difficulty waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20841	C20841	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken difficulty past week scale	The scale which represents how often the participant had difficulty waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20842	C20842	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken sleepy past week scale	The scale which represents how often the participant still felt sleepy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20842	C20842	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken sleepy past week scale	The scale which represents how often the participant still felt sleepy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20842	C20842	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken sleepy past week scale	The scale which represents how often the participant still felt sleepy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20843	C20843	Patient-Reported Outcome Measurement Information System (PROMIS) - Tired assessment past week scale	The scale which represents how often the participant felt tired in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20843	C20843	Patient-Reported Outcome Measurement Information System (PROMIS) - Tired assessment past week scale	The scale which represents how often the participant felt tired in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20843	C20843	Patient-Reported Outcome Measurement Information System (PROMIS) - Tired assessment past week scale	The scale which represents how often the participant felt tired in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20844	C20844	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale	The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20844	C20844	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale	The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20844	C20844	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale	The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20845	C20845	Patient-Reported Outcome Measurement Information System (PROMIS) - Day problem poor sleep past week scale	The scale which represents how often the participant had problems during the day because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20845	C20845	Patient-Reported Outcome Measurement Information System (PROMIS) - Day problem poor sleep past week scale	The scale which represents how often the participant had problems during the day because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20845	C20845	Patient-Reported Outcome Measurement Information System (PROMIS) - Day problem poor sleep past week scale	The scale which represents how often the participant had problems during the day because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20846	C20846	Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration difficulty poor sleep past week scale	The scale which represents how often the participant had a hard time concentrating because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20846	C20846	Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration difficulty poor sleep past week scale	The scale which represents how often the participant had a hard time concentrating because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20846	C20846	Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration difficulty poor sleep past week scale	The scale which represents how often the participant had a hard time concentrating because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)

Displaying 4176 - 4200 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.