CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4151 - 4175 of 4296

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2914-C20827	C20827	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale	The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20827	C20827	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale	The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20828	C20828	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale	The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20828	C20828	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale	The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20828	C20828	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale	The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20829	C20829	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale	The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20829	C20829	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale	The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20829	C20829	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale	The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20831	C20831	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale	The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20831	C20831	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale	The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20831	C20831	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale	The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20832	C20832	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale	The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20832	C20832	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale	The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20832	C20832	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale	The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20835	C20835	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale	The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20835	C20835	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale	The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20835	C20835	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale	The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20836	C20836	Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale	The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20836	C20836	Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale	The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20836	C20836	Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale	The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20837	C20837	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness hinder task assessment past week scale	The scale which represents how often the participant had a hard time getting things done because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20837	C20837	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness hinder task assessment past week scale	The scale which represents how often the participant had a hard time getting things done because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20837	C20837	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness hinder task assessment past week scale	The scale which represents how often the participant had a hard time getting things done because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20838	C20838	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness concentration difficulty past week scale	The scale which represents how often the participant had a hard time concentrating because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20838	C20838	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness concentration difficulty past week scale	The scale which represents how often the participant had a hard time concentrating because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke

Displaying 4151 - 4175 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.