CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4126 - 4150 of 4296

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2914-C20817	C20817	Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale	The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20817	C20817	Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale	The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20817	C20817	Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale	The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20818	C20818	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale	The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20818	C20818	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale	The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20818	C20818	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale	The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20819	C20819	Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale	The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20819	C20819	Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale	The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20819	C20819	Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale	The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20820	C20820	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale	The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20820	C20820	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale	The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20820	C20820	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale	The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20821	C20821	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale	The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20821	C20821	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale	The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20821	C20821	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale	The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20823	C20823	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime sadness assessment past week scale	The scale which represents how often the participant felt sad at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20823	C20823	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime sadness assessment past week scale	The scale which represents how often the participant felt sad at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20823	C20823	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime sadness assessment past week scale	The scale which represents how often the participant felt sad at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20825	C20825	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale	The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2914-C20825	C20825	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale	The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2914-C20825	C20825	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale	The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2914-C20827	C20827	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale	The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.