CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

Displaying 2501 - 2525 of 3808

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2886-C17842	C17842	Quality of Life in Swallowing Disorders (SWAL-QOL) - racial ethnic type	Race or ethnicity of the subject/participant	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18099	C18099	Quality of Life in Swallowing Disorders (SWAL-QOL) - birth date	Date of the subject's birthday, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18099	C18099	Quality of Life in Swallowing Disorders (SWAL-QOL) - birth date	Date of the subject's birthday, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18100	C18100	Quality of Life in Swallowing Disorders (SWAL-QOL) - age value	Age of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18100	C18100	Quality of Life in Swallowing Disorders (SWAL-QOL) - age value	Age of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18101	C18101	Quality of Life in Swallowing Disorders (SWAL-QOL) - gender indicator	Gender of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18101	C18101	Quality of Life in Swallowing Disorders (SWAL-QOL) - gender indicator	Gender of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18102	C18102	Quality of Life in Swallowing Disorders (SWAL-QOL) - race indicator	Racial group of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18102	C18102	Quality of Life in Swallowing Disorders (SWAL-QOL) - race indicator	Racial group of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18103	C18103	Quality of Life in Swallowing Disorders (SWAL-QOL) - education scale	Education level of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18103	C18103	Quality of Life in Swallowing Disorders (SWAL-QOL) - education scale	Education level of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18104	C18104	Quality of Life in Swallowing Disorders (SWAL-QOL) - current marital status	Current marital status of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18104	C18104	Quality of Life in Swallowing Disorders (SWAL-QOL) - current marital status	Current marital status of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18105	C18105	Quality of Life in Swallowing Disorders (SWAL-QOL) - help questionnaire indicator	Indicator of whether subject received help to complete this questionnaire or not,	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18105	C18105	Quality of Life in Swallowing Disorders (SWAL-QOL) - help questionnaire indicator	Indicator of whether subject received help to complete this questionnaire or not,	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18106	C18106	Quality of Life in Swallowing Disorders (SWAL-QOL) - help method indicator	If received help, what type of help did the subject receive, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18106	C18106	Quality of Life in Swallowing Disorders (SWAL-QOL) - help method indicator	If received help, what type of help did the subject receive, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18107	C18107	Quality of Life in Swallowing Disorders (SWAL-QOL) - completion date	Date the subject completed this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18107	C18107	Quality of Life in Swallowing Disorders (SWAL-QOL) - completion date	Date the subject completed this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2886-C18108	C18108	Quality of Life in Swallowing Disorders (SWAL-QOL) - comment text	Comment from the subject regarding this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2886-C18108	C18108	Quality of Life in Swallowing Disorders (SWAL-QOL) - comment text	Comment from the subject regarding this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2887-C17226	C17226	Swallowing Disturbance Questionnaire (SwDQ) - difficulty chew solid food score	Score for how frequent the participant/subject has difficulty chewing solid foods like an apple, cookie, or cracker, as a part of Swallowing Disturbance Questionnaire (SDQ)	NeuroRehab Supplemental-Highly Recommended	Swallowing Disturbance Questionnaire (SDQ)	True	NeuroRehab	NeuroRehab Parkinson's Disease
F2887-C17226	C17226	Swallowing Disturbance Questionnaire (SwDQ) - difficulty chew solid food score	Score for how frequent the participant/subject has difficulty chewing solid foods like an apple, cookie, or cracker, as a part of Swallowing Disturbance Questionnaire (SDQ)	NeuroRehab Supplemental-Highly Recommended	Swallowing Disturbance Questionnaire (SDQ)	True	NeuroRehab	NeuroRehab Comprehensive
F2887-C17227	C17227	Swallowing Disturbance Questionnaire (SwDQ) - food residue mouth after swallow score	Score for how frequent the participant/subject has any food residues in the mouth, cheeks, under the tongue, or stuck to the palate after swallowing, as a part of Swallowing Disturbance Questionnaire (SDQ)	NeuroRehab Supplemental-Highly Recommended	Swallowing Disturbance Questionnaire (SDQ)	True	NeuroRehab	NeuroRehab Comprehensive
F2887-C17227	C17227	Swallowing Disturbance Questionnaire (SwDQ) - food residue mouth after swallow score	Score for how frequent the participant/subject has any food residues in the mouth, cheeks, under the tongue, or stuck to the palate after swallowing, as a part of Swallowing Disturbance Questionnaire (SDQ)	NeuroRehab Supplemental-Highly Recommended	Swallowing Disturbance Questionnaire (SDQ)	True	NeuroRehab	NeuroRehab Parkinson's Disease

Displaying 2501 - 2525 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.