CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3089-C19694	C19694	Imaging development malformation corpus callosum type	Type of malformations in development in the corpus callosum (thick band of nerve fibers that divides the cerebrum into left and right hemisphere)	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19695	C19695	Imaging development malformation cerebellum type	Type of malformations in development in the cerebellum (structure that is located at the back of the brain, underlying the occipital and temporal lobes of the cerebral cortex)	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19696	C19696	Imaging development malformation polymicrogyria anatomic site	Type of malformations in development in the polymicrogyria (an excessive number of small convolutions (gyri) on the surface of the brain)	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19697	C19697	Imaging development malformation heterotopia anatomic site	Type of malformations in development in the heterotopia (presence of a particular tissue type at a non-physiological site)	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19698	C19698	Imaging myelination type	Type of myelination in imaging	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19699	C19699	Imaging myelination abnormal distribution text	Free-text field to specify the abnormal distribution of myelination	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19700	C19700	Imaging myelination pattern calculated age value	Value calculated for age based on myelination pattern	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19703	C19703	Imaging cerebellum component type	Type of cerebellum component	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19997	C19997	Imaging deep grey nuclei finding type	Type of finding related to imaging of the deep grey nuclei	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19998	C19998	Imaging white matter tract finding type	Type of finding related to imaging of the white matter tracts	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19999	C19999	Imaging white matter tract type	Type related to imaging of the white matter tracts	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20020	C20020	Imaging 31 phosphorus magnetic resonance spectroscopy leg laterality type	Type as related to leg laterality in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20021	C20021	Imaging 31 phosphorus magnetic resonance spectroscopy right leg not scan reason	Free-text field for reason as related to not scanning right leg in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20022	C20022	Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason	Reason as related to not scanning either leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20023	C20023	Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason other text	The free text field related to 'Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason', specifying other text. The reason as related to not scanning leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20024	C20024	Imaging 31 phosphorus magnetic resonance spectroscopy thigh MRI status	The status as related to thigh magnetic resonance imaging (MRI) scan of leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20025	C20025	Imaging 31 phosphorus magnetic resonance spectroscopy spectrum assessment status	Status as related to spectrum being completed for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19548	C19548	Biomarker Analysis Indicator	Indicator of whether a biomarker analysis was performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19549	C19549	Biomarker source assessment type	Type of source obtained to assess the biomarker	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19551	C19551	Biomarker blood serum plasma assessment type	Type of biomarker(s) assessed from blood serum/plasma samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19555	C19555	Biomarker Urine Assessment Type	Type of biomarker(s) assessed from urine samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19556	C19556	Biomarker cerebrospinal fluid assessment type	Type of biomarker assessed from cerebrospinal fluid (CSF) samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19557	C19557	Biomarker fibroblast assessment type	Type of biomarker(s) assessed from fibroblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19558	C19558	Biomarker leukocyte assessment type	Type of biomarker(s) assessed from leukocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19563	C19563	Biomarker lymphoblast assessment type	Type of biomarker(s) assessed from lymphoblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.