CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3087-C20016	C20016	Hormone-related syndrome type	The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20017	C20017	Hormone-related syndrome other text	The free-text field related to "Hormone-related syndrome type", specifying other text. The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20018	C20018	Hormone-related syndrome diagnosis age value	The age value of participant related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C10569	C10569	Imaging perfusion method type	Type of method used for acquiring perfusion magnetic resonance imaging (PMRI) data	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C10599	C10599	Parameter map calculation type	Type(s) of parameter maps calculated for the perfusion MRI scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C17797	C17797	Imaging contrast agent injection rate	Rate of injection, in milliliters per second (mL/s), of imaging contrast agent used, if any, for the perfusion magnetic resonance imaging (PMRI) scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19687	C19687	Imaging cerebrum component type	Type of cerebrum component	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19688	C19688	Imaging cerebrum finding type	Type of finding related to imaging of the cerebrum	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19689	C19689	Imaging cerebrum lobe anatomic site	Anatomic site of the cerebrum imaging	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19690	C19690	Imaging white matter anatomic site	Anatomic site of the white matter cerebrum imaging	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19691	C19691	Imaging deep grey nuclei anatomic site	Anatomic site of the deep grey nuclei imaging	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19692	C19692	Imaging cerebellum finding type	Type of finding related to imaging of the cerebellum	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19693	C19693	Imaging brainstem finding type	Type of finding related to imaging of the brainstem	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.