CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2629-C16021	C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16207	C16207	Family history medical condition first-degree relative type	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17986	C17986	Relative first degree total count unknown indicator	Indicator of the unknown total number of first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17987	C17987	Relative first degree live count unknown indicator	Indicator of the unknown number of living first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17988	C17988	Relative first degree decease count unknown indicator	Indicator of the unknown number of deceased first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17989	C17989	Relative second degree total count unknown indicator	Indicator of the unknown total number of second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17990	C17990	Relative second degree live count unknown indicator	Indicator of the unknown number of living second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17991	C17991	Relative second degree decease count unknown indicator	Indicator of the unknown number of deceased second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17992	C17992	Additional comment text	Text describing any additional information about the participant or the participant's family history	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56017	C56017	Relative first degree decease death age value	Value representing the age of the subject's first-degree relative at their time of death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56018	C56018	Relative first degree decease primary cause text	Text describing the primary cause of the subject's first-degree relative's death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56019	C56019	Sibling live count	The total number of alive siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56020	C56020	Sibling live count unknown indicator	The indicator relating to whether or not the subject knows how many living siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56021	C56021	Sibling decease count	The total number of deceased siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56022	C56022	Sibling decease count unknown indicator	The indicator relating to whether or not the subject knows how many deceased siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56023	C56023	Sibling decease primary cause text	Text describing the primary cause of the subject's sibling's death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56024	C56024	Relative second degree decease death age value	Value representing the age of the subject's second-degree relative at their time of death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56025	C56025	Relative second degree decease primary cause text	Text describing the primary cause of the subject's second-degree relative's death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56028	C56028	Sibling count	The total number of siblings the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2630-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2630-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.