CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 1122
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

 Supplemental Rescue Treatments False Headache Headache
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

 Supplemental Rescue Treatments False Headache Headache
C56039 Headache migraine rescue device used name

The name of the rescue device used in the treatment of headache or migraine

 Supplemental Rescue Treatments False Headache Headache
C56040 Headache migraine rescue device used start date

The start date on which the rescue device was used in the treatment of headache or migraine

 Supplemental Rescue Treatments False Headache Headache
C56041 Headache migraine rescue device used end date

The end date on which the rescue device was used in the treatment of headache or migraine

 Supplemental Rescue Treatments False Headache Headache
C56042 Headache severity scale

The scale of the amount of headache the participant/subject is experiencing

 Supplemental Rescue Treatments False Headache Headache
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Exploratory Pregnancy Outcome False Headache Headache
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

 Exploratory Pregnancy Outcome False Headache Headache
C11078 Delivery mode type

Type of delivery mode of the neonate

 Exploratory Pregnancy Outcome False Headache Headache
C11079 Neonate delivery route type

Route of delivery of the neonate

 Exploratory Pregnancy Outcome False Headache Headache
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

 Exploratory Pregnancy Outcome False Headache Headache
C11081 Delivery caesarean timing status

Status of the caesarean delivery

 Exploratory Pregnancy Outcome False Headache Headache
C16037 Pregnancy most recent live born infant indicator

Indicates whether the outcome of the participant/subject's most recent pregnancy was a live born infant?

 Exploratory Pregnancy Outcome False Headache Headache
C16040 Pregnancy fetus normal indicator

Indicates whether the fetus was normal

 Exploratory Pregnancy Outcome False Headache Headache
C16042 Delivery mode induced reason

Type of induced delivery that occurred during the live infant birth

 Exploratory Pregnancy Outcome False Headache Headache
C16044 Delivery cesarean section reason

Reason for the Cesarean section

 Exploratory Pregnancy Outcome False Headache Headache
C16046 Pregnancy labor delivery complication indicator

Indicator of whether there were complications during labor/delivery

 Exploratory Pregnancy Outcome False Headache Headache
C16048 Tocolytic agents required during preterm labor indicator

Indicator of whether medications used to suppress premature labor were required during preterm labor

 Exploratory Pregnancy Outcome False Headache Headache
C16049 Birth child date and time

Date of birth of participant/subject's most recent live birth

 Exploratory Pregnancy Outcome False Headache Headache
C16050 Phenotypic sex child type

Sex of the participant/subject's child based on physical examination

 Exploratory Pregnancy Outcome False Headache Headache
C16051 Birth weight child value

Value of the weight of the participant/subject's child at birth

 Exploratory Pregnancy Outcome False Headache Headache
C16053 Birth length child value

Value of the length of the participant's/subject's child at birth

 Exploratory Pregnancy Outcome False Headache Headache
C16055 Full term delivery child indicator

Indicates whether the participant's/subject's child was delivered full-term

 Exploratory Pregnancy Outcome False Headache Headache
C16056 Gestational age child value

Time elapsed between the first day of the last normal menstrual period and the day the participant/subject delivered the neonate

 Exploratory Pregnancy Outcome False Headache Headache
C16057 Activity pulse grimace appearance respiration five minute child score

Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)

 Exploratory Pregnancy Outcome False Headache Headache
Displaying 476 - 500 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.