CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2814-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C05460	C05460	Seizure indicator	Indicator of seizure activity	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58653	C58653	Cerebral palsy predominant motor type	Type of predominant neuromotor movement experienced by the participant/subject	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58654	C58654	Cerebral palsy secondary motor type	Type of secondary neuromotor movement experienced by the participant/subject	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58655	C58655	Cerebral palsy distribution type	Type of condition distribution (spasticity subtype) experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58656	C58656	Cerebral palsy distribution primarily unilateral type	Type of CP distribution primarily unilateral subtype experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58657	C58657	Hemiplegia laterality type	Hemiplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58658	C58658	Monoplegia laterality type	Monoplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58659	C58659	Cerebral palsy distribution primarily bilateral type	Type of CP distribution primarily bilateral subtype experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58660	C58660	Timing injury abnormality type	Type as related to the point in time of injury or abnormality	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58661	C58661	Post-neonatal specific exact cause text	Text describing the cause of the post-neonatal injury or abnormality	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58662	C58662	Predominant MRI brain pattern type	Type of predominant brain pattern associated with MRI findings	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58663	C58663	Cerebral palsy gross motor function type	Type of gross motor function as indicated by the Gross Motor Function Classification System (GMFC) scale	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58664	C58664	Cerebral palsy fine motor function type	Type of fine motor function as indicated by the Bimanual Fine Motor Function (BFMF) scale	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58665	C58665	Cerebral palsy upper limb function type	Type of upper limb function as indicated by the Manual Ability Classification System (MACS) scale	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58667	C58667	Eating drinking type	Type of eating and drinking as indicated by the Eating and Drinking Classification System (EDACS)	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58668	C58668	Intellectual impairment type	Type of intellectual impairment of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58669	C58669	Visual impairment indicator	Indicator of whether participant has visual impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58670	C58670	Visual impairment severity type	Type of visual impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58671	C58671	Hearing impairment indicator	Indicator of whether participant/subject has hearing impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58672	C58672	Hearing impairment severity type	Type of hearing impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58673	C58673	Respiratory ventilation support assist indicator	Indicator of whether respiratory support and ventilation assistance of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58674	C58674	Respiratory ventilation support assist type	Type of respiratory support / ventilation assist type used by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy

Displaying 751 - 775 of 1249

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.