CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C22664	C22664	Medical history delayed gastric empty indicator	Indicator of whether the participant/subject has/had delayed gastric emptying	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22665	C22665	Medical history chronic constipation indicator	Indicator of whether the participant/subject has/had chronic constipation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22666	C22666	Medical history oropharyngeal dysphagia indicator	Indicator of whether the participant/subject has/had oropharyngeal dysphagia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22667	C22667	Medical history sialorrhea indicator	Indicator of whether the participant/subject has/ had sialorrhea	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22668	C22668	Medical history neurogenic detrusor indicator	Indicator of whether participant/subject has a neurogenic detrusor	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22669	C22669	Medical history recurrent urinary tract infect	Indicator of whether participant/subject has/had recurrent urinary tract infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22670	C22670	Medical history Perinatal neurological event indicator	Indicator of whether participant had a perinatal neurological event	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22671	C22671	Medical history abnormal sleep EEG indicator	Indicator of whether a participant/subject has/had an abnormal sleep EEG	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22672	C22672	Medical history behavior difficulty indicator	Indicator of whether participant/subject has/had behavior difficulties	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22673	C22673	Medical history autism indicator	Indicator of whether participant/subject has Autism	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22674	C22674	Medical history obsessive compulsive disorder indicator	Indicator of whether participant/subject has Obsessive Compulsive Disorder (OCD)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22675	C22675	Medical history oppositional defiance indicator	Indicator of whether participant/subject displays oppositional defiance	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22676	C22676	Medical history disruptive behavior disorder indicator	Indicator of whether participant/subject has disruptive behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22677	C22677	Medical history self injurious behavior disorder	Indicator of whether participant/subject has self-injurious behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22678	C22678	Medical history aggressive behavior disorder indicator	Indicator of whether participant/subject has aggressive behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22679	C22679	Medical history first depressive episode diagnosis age value	Value of a participant's/subject's age when first depressive episode was diagnosed	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22680	C22680	Medical history checkup recommend interval complete indicator	Indicator of whether or not checkups were completed at recommended intervals	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C22681	C22681	Medical history difficulty schedule attend healthcare appointment indicator	Indicator of whether or not there was difficulty scheduling/attending healthcare appointments	Exploratory	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C52357	C52357	Percent body fat value	Percent body fat calculated value	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C52358	C52358	Epilepsy type	Type of epilepsy	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2204-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy
F2204-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
F2204-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy
F2204-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
F2204-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy

Displaying 376 - 400 of 1249

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.