CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1676 - 1700 of 57130
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20344 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Work school restriction indicator

Indicates restrictions that apply to child's ability to work and study, including ability to work only in a sheltered workshop or non-competitive job, in a school setting for severely impaired children or tutored at home, or currently unable to work or go to school

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20345 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Reduced work school capacity indicator

Indicates reduced work or school capacity for an injured child

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20345 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Reduced work school capacity indicator

Indicates reduced work or school capacity for an injured child

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20345 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Reduced work school capacity indicator

Indicates reduced work or school capacity for an injured child

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20346 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current participation social leisure activity pre-injury indicator

Indicates if the child is able to resume regular social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20346 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current participation social leisure activity pre-injury indicator

Indicates if the child is able to resume regular social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20346 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current participation social leisure activity pre-injury indicator

Indicates if the child is able to resume regular social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20347 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity unable participate indicator

Indicator related to being unable to participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20347 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity unable participate indicator

Indicator related to being unable to participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20347 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity unable participate indicator

Indicator related to being unable to participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20348 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity much decrease participation indicator

Indicator related to being much less able to participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20348 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity much decrease participation indicator

Indicator related to being much less able to participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20348 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity much decrease participation indicator

Indicator related to being much less able to participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20349 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity little decrease participation indicator

The indicator related to a bit less participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20349 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity little decrease participation indicator

The indicator related to a bit less participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20349 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity little decrease participation indicator

The indicator related to a bit less participate in social and leisure activities

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20350 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Family friendship psychological problem indicator

Indicates if there are psychological problems that have resulted in ongoing disruption with respect to either family or friendships

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20350 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Family friendship psychological problem indicator

Indicates if there are psychological problems that have resulted in ongoing disruption with respect to either family or friendships

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20350 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Family friendship psychological problem indicator

Indicates if there are psychological problems that have resulted in ongoing disruption with respect to either family or friendships

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20351 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent disruption family friendship type

The extent of disruption or strain in family and friendship due to injury

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20351 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent disruption family friendship type

The extent of disruption or strain in family and friendship due to injury

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20351 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent disruption family friendship type

The extent of disruption or strain in family and friendship due to injury

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
C20352 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Return normal life other problem indicator

The indicator related to other problem in returning to normal life

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Comprehensive
C20352 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Return normal life other problem indicator

The indicator related to other problem in returning to normal life

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Epidemiology
C20352 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Return normal life other problem indicator

The indicator related to other problem in returning to normal life

 Supplemental Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Concussion/Mild TBI
Displaying 1676 - 1700 of 57130

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.