CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 55926 - 55950 of 57130
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19616 Length standard infant use type

Indicator of whether WHO or CDC growth charts were used in length Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19617 Height Z score

The number of standard deviations the measured height of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19618 Height standard infant use type

Indicator of whether WHO or CDC growth charts were used in height Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19619 Weight length Z Score

The number of standard deviations the measured weight/length of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19620 Weight length standard infant use type

Indicator of whether WHO or CDC growth charts were used in weight/length Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19621 BMI Z score

The number of standard deviations the calculated BMI of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19622 BMI standard infant use type

Indicator of whether WHO or CDC growth charts were used in BMI Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19623 Head circumference percentile value

Value of the participant's head circumference percentile for age calculated using a standardized growth chart

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19624 Head circumference Z score

The number of standard deviations the measured head circumference of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19625 Head circumference standard infant use type

Indicator of whether WHO or CDC growth charts were used in head circumference Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19631 Weight pediatric measurement

Measurement of weight for a pediatric participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19632 Weight pediatric unit of measure

Unit of measure for the pediatric weight numerical value

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19633 Height pediatric unit of measure

Unit of measure for the height numerical value for participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19634 Body mass index pediatric value

Value of the participant's body mass index, calculated from height and weight, age

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C14693 Berg Balance Scale (BBS) - sit stand scale

The scale for assessment of sitting to standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14695 Berg Balance Scale (BBS) - unsupport sit scale

The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14696 Berg Balance Scale (BBS) - stand sit scale

The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14697 Berg Balance Scale (BBS) - transfer scale

The scale for assessment of transfers based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14698 Berg Balance Scale (BBS) - unsupport stand closed eyes scale

The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14700 Berg Balance Scale (BBS) - reach forward scale

The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14701 Berg Balance Scale (BBS) - retrieve floor object scale

The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
Displaying 55926 - 55950 of 57130

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.