CDE Detailed Report
Disease: content
Subdomain Name: Classification
CRF: welcome
Displaying 1 - 50 of 88
Subdomain Name: Classification
CRF: welcome
Displaying 1 - 50 of 88
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C59019 | Birth weight measurement | BirthWeightMeasr | Measurement in kilograms of the weight of a neonate at birth | Measurement in kilograms of the weight of a neonate at birth | Birth weight | Numeric Values |
Recorded value of participant's/subject's measured weight at birth. This element is intended for pediatric clinical studies. This element should be collected along with the other elements of the Sophia Classification. |
Govaert P, Ramenghi L, Taal R, de Vries L, Deveber G. Diagnosis of perinatal stroke I: definitions, differential diagnosis and registration. Acta Paediatr. 2009;98(10):1556-1567. | Pediatric | Supplemental | 1.10 | 2022-08-01 10:17:22.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Free-Form Entry |
0 | 9000 | kilograms | 3201400;2179689 | ||||||
| C58923 | Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code | FCASSDeltaPointScoreCode | The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Score Delta Point (only for Follow-up score) | (+1);(-1) | if interval worsening (progression) not otherwise captured by the follow-up FCASS;if interval improvement not otherwise captured by the follow-up FCAS | Numeric Values |
Only for Follow-up score |
Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:49:37.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58898 | Causative Classification System (CCS) - large artery atherosclerosis phenotype status | CCSLrgArtryAthrsclrsPhntypStat | The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS) | The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS | Evaluate the patient for the predefined phenotype of large artery atherosclerosis. | Major;Minor;Absent;Incomplete Evaluation | Major;Minor;Absent;Incomplete Evaluation | Alphanumeric |
Identify the Ischemic Stroke Subtype based on The Causative Classification System's – standard phenotypic subtypes. |
Ay H, Furie KL, Singhal A, Smith WS, Sorensen AG, Koroshetz WJ. An evidence-based causative classification system for acute ischemic stroke. Ann Neurol. 2005;58(5):688-697.<br /> Ay H, Benner T, Arsava EM, Furie KL, Singhal AB, Jensen MB, Ayata C, Towfighi A, Smith EE, Chong JY, Koroshetz WJ, Sorensen AG. A computerized algorithm for etiologic classification of ischemic stroke: the Causative Classification of Stroke System. Stroke. 2007;38(11):2979-2984.<br /> Ay H, Arsava EM, Johnston SC, Vangel M, Schwamm LH, Furie KL, Koroshetz WJ, Sorensen AG. Clinical- and imaging-based prediction of stroke risk after transient ischemic attack: the CIP model. Stroke. 2009;40(1):181-186.<br /><br />Arsava EM, Ballabio E, Benner T, Cole JW, Delgado-Martinez MP, Dichgans M, Fazekas F, Furie KL, Illoh K, Jood K, Kittner S, Lindgren AG, Majersik JJ, Macleod MJ, Meurer WJ, Montaner J, Olugbodi AA, Pasdar A, Redfors P, Schmidt R, Sharma P, Singhal AB, Sorensen AG, Sudlow C, Thijs V, Worrall BB, Rosand J, Ay H; International Stroke Genetics Consortium. The Causative Classification of Stroke system: an international reliability and optimization study. Neurology. 2010;75(14):1277-84. Erratum in: Neurology. 2011;76(2):202.<br /> Arsava EM, Helenius J, Avery R, Sorgun MH, Kim GM, Pontes-Neto OM, Park KY, Rosand J, Vangel M, Ay H. Assessment of the Predictive Validity of Etiologic Stroke Classification. JAMA Neurol. 2017;74(4):419-426. | Adult | Supplemental | 1.00 | 2020-05-19 12:41:08.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58913 | Perinatal arterial ischemic stroke type | PerinatalArtIschmcStrkTyp | Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate | Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonat | Perinatal arterial ischemic stroke (PAIS) | Acute perinatal arterial ischemic stroke;Presumed pre- or perinatal stroke | Acute perinatal arterial ischemic stroke;Presumed pre- or perinatal stroke | Alphanumeric |
Choose one per stroke event. |
Raju TN, Nelson KB, Ferriero D, Lynch JK, NICHD-NINDS Perinatal Stroke Workshop Participants. Ischemic perinatal stroke: summary of a workshop sponsored by the National Institute of Child Health and Human Development and the National Institute of Neurological Disorders and Stroke. Pediatrics. 2007;120(3):609-616. Kirton A, DeVeber G, Pontigon AM, MacGregor D, Shroff M. Presumed perinatal ischemic stroke: vascular classification predicts outcomes. Ann Neurol.2008;63(4):436-443. Ferriero DM, Fullerton HJ, Bernard TJ, Billinghurst L, Daniels SR, DeBaun MR, deVeber G, Ichord RN, Jordan LC, Massicotte P, Meldau J, Roach ES, Smith ER; American Heart Association Stroke Council and Council on Cardiovascular and Stroke Nursing. Management of Stroke in Neonates and Children: A Scientific Statement From the American Heart Association/American Stroke Association. Stroke. 2019;50(3):e51-e96. | Pediatric | Supplemental-Highly Recommended | 1.00 | 2020-05-20 10:01:27.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58924 | Focal Cerebral Arteriopathy Severity Score (FCASS) - follow up sum score | FollowUpSumScore | Score related to the follow-up sum of the five individual arterial segment scores (without weighting) and the delta point (if applicable), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | Score related to the follow-up sum of the five individual arterial segment scores (without weighting) and the delta point (if applicable), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Follow-up score | Numeric Values |
For follow-up imaging, sum the five individual scores (without weighting) and apply the delta point if applicable. The maximum follow-up score is 21 (20 plus the delta point). |
Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:54:59.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Free-Form Entry |
0 | 20 | ||||||||
| C58899 | Causative Classification System (CCS) - cardiac embolism phenotype status | CCSCardiacEmbolismPhntypStat | The status of the predefined cardiac embolism phenotype, as part of the Causative Classification System (CCS) | The status of the predefined cardiac embolism phenotype, as part of the Causative Classification System (CCS | Evaluate the patient for the predefined phenotype of cardiac embolism. | Major;Minor;Absent;Incomplete Evaluation | Major;Minor;Absent;Incomplete Evaluation | Alphanumeric |
Identify the Ischemic Stroke Subtype based on The Causative Classification System's – standard phenotypic subtypes. |
Ay H, Furie KL, Singhal A, Smith WS, Sorensen AG, Koroshetz WJ. An evidence-based causative classification system for acute ischemic stroke. Ann Neurol. 2005;58(5):688-697.<br /> Ay H, Benner T, Arsava EM, Furie KL, Singhal AB, Jensen MB, Ayata C, Towfighi A, Smith EE, Chong JY, Koroshetz WJ, Sorensen AG. A computerized algorithm for etiologic classification of ischemic stroke: the Causative Classification of Stroke System. Stroke. 2007;38(11):2979-2984.<br /> Ay H, Arsava EM, Johnston SC, Vangel M, Schwamm LH, Furie KL, Koroshetz WJ, Sorensen AG. Clinical- and imaging-based prediction of stroke risk after transient ischemic attack: the CIP model. Stroke. 2009;40(1):181-186.<br /><br />Arsava EM, Ballabio E, Benner T, Cole JW, Delgado-Martinez MP, Dichgans M, Fazekas F, Furie KL, Illoh K, Jood K, Kittner S, Lindgren AG, Majersik JJ, Macleod MJ, Meurer WJ, Montaner J, Olugbodi AA, Pasdar A, Redfors P, Schmidt R, Sharma P, Singhal AB, Sorensen AG, Sudlow C, Thijs V, Worrall BB, Rosand J, Ay H; International Stroke Genetics Consortium. The Causative Classification of Stroke system: an international reliability and optimization study. Neurology. 2010;75(14):1277-84. Erratum in: Neurology. 2011;76(2):202.<br /> Arsava EM, Helenius J, Avery R, Sorgun MH, Kim GM, Pontes-Neto OM, Park KY, Rosand J, Vangel M, Ay H. Assessment of the Predictive Validity of Etiologic Stroke Classification. JAMA Neurol. 2017;74(4):419-426. | Adult | Supplemental | 1.00 | 2020-05-19 12:58:14.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58914 | Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy primary diagnosis subtype classification status | VIPSArtpthyPrmyDgnSbtypClsStat | The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system | The status of arteriopathy primary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification syste | Indicate the subtype based on the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system. | No arteriopathy;Possible arteriopathy;Definite arteriopathy | An isolated arterial occlusion in the context of clinical history and/or parenchymal imaging that typifies cardioembolism;An isolated arterial occlusion that could be attributable to either cardioembolism or an in situ arterial abnormality;The imaging appearance of an in situ arterial abnormality (stenosis, irregularity, occlusion, banding, pseudoaneurysm, dissection flap) not attributable to an exogenous thrombus (e.g., cardioembolism) and not considered a normal developmental variant. | Alphanumeric |
No instructions available |
Wintermark M, Hills NK, DeVeber GA, Barkovich AJ, Bernard TJ, Friedman NR, Mackay MT, Kirton A, Zhu G, Leiva-Salinas C, Hou Q, Fullerton HJ; VIPS Investigators. Clinical and Imaging Characteristics of Arteriopathy Subtypes in Children with Arterial Ischemic Stroke: Results of the VIPS Study. AJNR Am J Neuroradiol. 2017;38(11):2172-2179.<br /> Wintermark M, Hills NK, deVeber GA, Barkovich AJ, Elkind MS, Sear K, Zhu G, Leiva-Salinas C, Hou Q, Dowling MM, Bernard TJ, Friedman NR, Ichord RN, Fullerton HJ; VIPS Investigators. Arteriopathy diagnosis in childhood arterial ischemic stroke: results of the vascular effects of infection in pediatric stroke study. Stroke. 2014;45(12):3597-3605. | Pediatric | Supplemental | 1.00 | 2020-05-20 10:14:49.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58925 | Sophia chance findings during routine imaging other text | SophiaChncFindDurRoutImgOthTxt | The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification | The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classificatio | Chance findings during routine imaging, specify | Alphanumeric |
This element should be collected along with the other elements of the Sophia Classification. |
Govaert P, Ramenghi L, Taal R, de Vries L, Deveber G. Diagnosis of perinatal stroke I: definitions, differential diagnosis and registration. Acta Paediatr. 2009;98(10):1556-1567. | Pediatric | Supplemental | 1.00 | 2020-05-20 12:03:24.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 255 |
Free-Form Entry |
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| C58901 | Causative Classification System (CCS) - small artery occlusion phenotype status | CCSSmlArtOcclsnPhntypStat | The status of the predefined small artery occlusion phenotype, as part of the Causative Classification System (CCS) | The status of the predefined small artery occlusion phenotype, as part of the Causative Classification System (CCS | Evaluate the patient for the predefined phenotype of small artery occlusion. | Major;Minor;Absent;Incomplete Evaluation | Major;Minor;Absent;Incomplete Evaluation | Alphanumeric |
Identify the Ischemic Stroke Subtype based on The Causative Classification System's – standard phenotypic subtypes. |
Ay H, Furie KL, Singhal A, Smith WS, Sorensen AG, Koroshetz WJ. An evidence-based causative classification system for acute ischemic stroke. Ann Neurol. 2005;58(5):688-697.<br /> Ay H, Benner T, Arsava EM, Furie KL, Singhal AB, Jensen MB, Ayata C, Towfighi A, Smith EE, Chong JY, Koroshetz WJ, Sorensen AG. A computerized algorithm for etiologic classification of ischemic stroke: the Causative Classification of Stroke System. Stroke. 2007;38(11):2979-2984.<br /> Ay H, Arsava EM, Johnston SC, Vangel M, Schwamm LH, Furie KL, Koroshetz WJ, Sorensen AG. Clinical- and imaging-based prediction of stroke risk after transient ischemic attack: the CIP model. Stroke. 2009;40(1):181-186.<br /><br />Arsava EM, Ballabio E, Benner T, Cole JW, Delgado-Martinez MP, Dichgans M, Fazekas F, Furie KL, Illoh K, Jood K, Kittner S, Lindgren AG, Majersik JJ, Macleod MJ, Meurer WJ, Montaner J, Olugbodi AA, Pasdar A, Redfors P, Schmidt R, Sharma P, Singhal AB, Sorensen AG, Sudlow C, Thijs V, Worrall BB, Rosand J, Ay H; International Stroke Genetics Consortium. The Causative Classification of Stroke system: an international reliability and optimization study. Neurology. 2010;75(14):1277-84. Erratum in: Neurology. 2011;76(2):202.<br /> Arsava EM, Helenius J, Avery R, Sorgun MH, Kim GM, Pontes-Neto OM, Park KY, Rosand J, Vangel M, Ay H. Assessment of the Predictive Validity of Etiologic Stroke Classification. JAMA Neurol. 2017;74(4):419-426. | Adult | Supplemental | 1.00 | 2020-05-19 13:04:42.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58915 | Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status | VIPSArtpthyScdyDgnSbtypClsStat | The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system | The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification syste | If definite arteriopathy, indicate secondary diagnosis | Focal cerebral arteriopathy (FCA);Intracranial arterial dissection (This subtype overlaps with FCA-d (above) when dissection occurs in the large intracranial arteries of the anterior circulation.);Extracranial arterial dissection;Bilateral cerebral arteriopathy of childhood (primary moyamoya disease and secondary moyamoya syndromes);Diffuse/multifocal vasculitis;Genetic or syndromic arteriopathy;Other | Focal cerebral arteriopathy (FCA);Intracranial arterial dissection (This subtype overlaps with FCA-d (above) when dissection occurs in the large intracranial arteries of the anterior circulation.);Extracranial arterial dissection;Bilateral cerebral arteriopathy of childhood (primary moyamoya disease and secondary moyamoya syndromes);Diffuse/multifocal vasculitis;Genetic or syndromic arteriopathy;Other | Alphanumeric |
No instructions available |
Wintermark M, Hills NK, DeVeber GA, Barkovich AJ, Bernard TJ, Friedman NR, Mackay MT, Kirton A, Zhu G, Leiva-Salinas C, Hou Q, Fullerton HJ; VIPS Investigators. Clinical and Imaging Characteristics of Arteriopathy Subtypes in Children with Arterial Ischemic Stroke: Results of the VIPS Study. AJNR Am J Neuroradiol. 2017;38(11):2172-2179.<br /> Wintermark M, Hills NK, deVeber GA, Barkovich AJ, Elkind MS, Sear K, Zhu G, Leiva-Salinas C, Hou Q, Dowling MM, Bernard TJ, Friedman NR, Ichord RN, Fullerton HJ; VIPS Investigators. Arteriopathy diagnosis in childhood arterial ischemic stroke: results of the vascular effects of infection in pediatric stroke study. Stroke. 2014;45(12):3597-3605. | Pediatric | Supplemental | 1.00 | 2020-05-20 10:40:29.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58902 | Causative Classification System (CCS) - other uncommon cause phenotype status | CCSOthrUncmnCausePhntypStat | The status of the predefined other uncommon causes phenotype, as part of the Causative Classification System (CCS) | The status of the predefined other uncommon causes phenotype, as part of the Causative Classification System (CCS | Evaluate the patient for the predefined phenotype of other uncommon causes. | Major;Absent | Major;Absent | Alphanumeric |
Identify the Ischemic Stroke Subtype based on The Causative Classification System's – standard phenotypic subtypes. |
Ay H, Furie KL, Singhal A, Smith WS, Sorensen AG, Koroshetz WJ. An evidence-based causative classification system for acute ischemic stroke. Ann Neurol. 2005;58(5):688-697.<br /> Ay H, Benner T, Arsava EM, Furie KL, Singhal AB, Jensen MB, Ayata C, Towfighi A, Smith EE, Chong JY, Koroshetz WJ, Sorensen AG. A computerized algorithm for etiologic classification of ischemic stroke: the Causative Classification of Stroke System. Stroke. 2007;38(11):2979-2984.<br /> Ay H, Arsava EM, Johnston SC, Vangel M, Schwamm LH, Furie KL, Koroshetz WJ, Sorensen AG. Clinical- and imaging-based prediction of stroke risk after transient ischemic attack: the CIP model. Stroke. 2009;40(1):181-186.<br /><br />Arsava EM, Ballabio E, Benner T, Cole JW, Delgado-Martinez MP, Dichgans M, Fazekas F, Furie KL, Illoh K, Jood K, Kittner S, Lindgren AG, Majersik JJ, Macleod MJ, Meurer WJ, Montaner J, Olugbodi AA, Pasdar A, Redfors P, Schmidt R, Sharma P, Singhal AB, Sorensen AG, Sudlow C, Thijs V, Worrall BB, Rosand J, Ay H; International Stroke Genetics Consortium. The Causative Classification of Stroke system: an international reliability and optimization study. Neurology. 2010;75(14):1277-84. Erratum in: Neurology. 2011;76(2):202.<br /> Arsava EM, Helenius J, Avery R, Sorgun MH, Kim GM, Pontes-Neto OM, Park KY, Rosand J, Vangel M, Ay H. Assessment of the Predictive Validity of Etiologic Stroke Classification. JAMA Neurol. 2017;74(4):419-426. | Adult | Supplemental | 1.00 | 2020-05-19 13:34:35.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58916 | Vascular effects of Infection in Pediatric Stroke (VIPS) - focal cerebral arteriopathy type | VIPSFCATyp | Type of focal cerebral arteriopathy (FCA), as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system | Type of focal cerebral arteriopathy (FCA), as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification syste | Focal cerebral arteriopathy (FCA) | Focal cerebral arteriopathy - dissection type (FCA-d);Focal cerebral arteriopathy - inflammatory type (FCA-i) (includes transient cerebral arteriopathy (TCA)) | Focal cerebral arteriopathy - dissection type (FCA-d);Focal cerebral arteriopathy - inflammatory type (FCA-i) (includes transient cerebral arteriopathy (TCA)) | Alphanumeric |
No instructions available |
Wintermark M, Hills NK, DeVeber GA, Barkovich AJ, Bernard TJ, Friedman NR, Mackay MT, Kirton A, Zhu G, Leiva-Salinas C, Hou Q, Fullerton HJ; VIPS Investigators. Clinical and Imaging Characteristics of Arteriopathy Subtypes in Children with Arterial Ischemic Stroke: Results of the VIPS Study. AJNR Am J Neuroradiol. 2017;38(11):2172-2179.<br /> Wintermark M, Hills NK, deVeber GA, Barkovich AJ, Elkind MS, Sear K, Zhu G, Leiva-Salinas C, Hou Q, Dowling MM, Bernard TJ, Friedman NR, Ichord RN, Fullerton HJ; VIPS Investigators. Arteriopathy diagnosis in childhood arterial ischemic stroke: results of the vascular effects of infection in pediatric stroke study. Stroke. 2014;45(12):3597-3605. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:00:31.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58904 | Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - atherothrombosis grade | ASCODSystemAtherothrGrade | The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A) | The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A | Evaluate the patients for the predefined phenotype of atherosclerosis (A). | 0;1;2;3;9 | Atherosclerosis not detected. Ruling out atherosclerosis: (1) extracranial arterial stenosis: one or several of the following diagnostic tests are performed and are negative: US-Duplex,CTA, MRA, XRA, or autopsy, (2) intracranial arterial stenosis: one or several of the following diagnostic tests are performed and are negative: US-TCD,MRA, CTA, XRA, or autopsy, (3) aortic arch atheroma: TEE with specific assessment of the aortic arch (when the probe is pulled back at the end of the cardiac examination, turn the probe counter clockwise and take time to watch the aortic arch) or specific aortic arch assessment with CTA;Potentially causal. Atherothrombotic stroke defined as: (1) ipsilateral atherosclerotic stenosis between 50 and 99% in an intra- or extracranial artery supplying the ischemic field, or (2) ipsilateral atherosclerotic stenosis;Causal link is uncertain. (1) ipsilateral atherosclerotic stenosis 30-50% in an intra- or extracranial artery supplying the ischemic field, or (2) aortic plaque =4 mm without mobile lesion;Causal link is unlikely, but the disease is present. (1) plaque (stenosis <30%) in an intra- or extracranial artery, ipsilateral to the infarct area, (2) aortic plaque <4 mm without mobile thrombus, (3) stenosis (any degree) or occlusion in a cerebral artery not supplying the infarct area (e.g. contralateral side or opposite circulation), (4) history of myocardial infarction, coronary revascularization or peripheral arterial disease, (5) ipsi- or bilateral atherosclerotic stenosis 50–99% with bihemispheric MR-DWI lesion;Incomplete workup. US-Duplex, US-TCD or CTA, or MRA, or XRA or autopsy not performed. [A minimum workup is extra- and intracranial assessment of cerebral arteries – maximum workup also includes transesophageal assessment of the aortic arch (or a default CTA of the aortic arch)] | Numeric Values |
This data element should be collected along with the other elements from the A-S-C-O-D (Phenotypic) Classification. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Wolf ME, Hennerici MG. The ASCOD phenotyping of ischemic stroke (Updated ASCO Phenotyping). Cerebrovasc Dis. 2013;36(1):1-5. | Adult | Supplemental | 1.00 | 2020-05-19 13:41:48.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58917 | Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale | FCASSSupraclinoidICAScoreScl | The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Score supraclinoid ICA | 1;2;3;4;0 | irregularity or banding with no stenosis;stenosis, <50% reduction in diameter;stenosis, >50% reduction in diameter;occlusion;no involvement | Numeric Values | Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:11:28.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58676 | Birth sex assigned type | BirthSexAssignTyp | Self-reported phenotypic sex of participant, assigned at birth | Self-reported phenotypic sex of participant, assigned at birth | Sex assigned at birth | Male;Female;Intersex;Unknown;Other, specify | Male;Female;Intersex;Unknown;Other, specify | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Core | 1.1 | 10/16/2024 8:51:15 AM | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58907 | Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - small vessel grade | ASCODSystemSmallVesselGrade | The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of small-vessel disease (S) | The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of small-vessel disease (S | Evaluate the patients for the predefined phenotype of small vessel disease (S). | 0;1;2;3;9 | Small-vessel disease not detected. Ruling out small-vessel disease stroke: negative MRI (T2, FLAIR, GRE, DWI) and no appropriate clinical syndrome suggestive of a deep branch artery stroke;Potentially causal. Combination of: (1) lacunar infarction: small deep infarct <15 mm (in perforator branch territory) on MRI-DWI (or a default CT) in an area corresponding to the symptoms and at least one of the three following criteria: (2) one or several small deep older infarct(s) of lacunar type in other territories, and/or (3) severe (confluent – Fazekas III) leukoaraiosis, or microbleeds, or severe dilatation of perivascular spaces ('État criblÉ'), (4) repeated, recent (<1 month), TIAs attributable to the same territory as the index infarct;Causal link is uncertain. (1) only one, recent, lacunar infarction and no other abnormality on MRI (or CT) or (2) clinical syndrome suggestive of a deep branch artery stroke, without ischemic lesion in the appropriate area seen on MRI or CT (main clinical syndrome suggesting a deep branch artery – lacunar – stroke: pure hemiparesis, pure hemisensory loss, ataxic hemiparesis, dysarthria-clumsy hand syndrome, unilateral sensorimotor deficit, others: hemichorea, hemiballism, pure dysarthria, etc.);Causal link is unlikely, but the disease is present. Severe (confluent – Fazekas III) leukoaraiosis visible on MRI and/or CT scan, and/or microbleeds visible on T2*-weighted MRI, and/or severe dilatation of perivascular spaces (visible on T2-weighted MRI), and/or one or several old, small deep infarcts of lacunar type;Incomplete workup. MRI (or CT) not performed | Numeric Values |
This data element should be collected along with the other elements from the A-S-C-O-D (Phenotypic) Classification. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Wolf ME, Hennerici MG. The ASCOD phenotyping of ischemic stroke (Updated ASCO Phenotyping). Cerebrovasc Dis. 2013;36(1):1-5. | Adult | Supplemental | 1.00 | 2020-05-20 07:50:40.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58918 | Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale | FCASSMidCerbrlArt1SegScrScl | The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Score M1 | 1;2;3;4;0 | irregularity or banding with no stenosis;stenosis, <50% reduction in diameter;stenosis, >50% reduction in diameter;occlusion;no involvement | Numeric Values | Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:28:32.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58780 | Birth sex assigned type other text | BirthSexAssignTypOTH | The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth | The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth | Other, specify | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 1.1 | 10/16/2024 8:51:15 AM | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 4000 |
Free-Form Entry |
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| C58908 | Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - cardioembolic grade | ASCODSystemCardioembGrade | The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C) | The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C | Evaluate the patients for the predefined phenotype of cardiac pathology (C). | 0;1;2;3;9 | Cardiac pathology not detected or not suspected. Ruling out a cardiac source of embolism: minimum is negative ECG and examination by a cardiologist, maximum is negative ECG/telemetry/24-hour Holter ECG/long-term ECG recording (implantable device, transtelephonic ECG, loop recorder) and negative TEE for atrium, valves and septal abnormalities, negative TTE for PFO and assessment of left ventricle, negative cardiac CT/MRI, negative abdominal CT/MRI (search for old or simultaneous subdiaphragmatic visceral infarction);Potentially causal. Cardiogenic stroke defined as acute, or recent and older bihemispheric or supra- and infratentorial territorial or cortical ischemic lesions and signs of systemic embolism with detection of at least one of the following potential causes: (1) mitral stenosis (surface <1.5 cm 2 ), (2) mechanical valve, (3) myocardial infarction within 4 weeks preceding the cerebral infarction, (4) mural thrombus in the left cavities, (5) aneurysm of the left ventricle, (6) history or presence of documented atrial fibrillation – whether paroxysmal (>60 s), persistent or permanent – or flutter, with or without left atrial thrombus or spontaneous echo, (7)atrial disease (tachycardia-bradycardia syndrome), (8) dilated or hypertrophic cardiomyopathies, (9) left ventricle ejection fraction <35%, (10) endocarditis, (11) intracardiac mass, (12) PFO and thrombus in situ, (13) PFO and concomitant pulmonary embolism or proximal DVT preceding the index cerebral infarction, (14) aforementioned cardiac pathologies (C1) with single or without obvious cerebral ischemic lesion;Causal link is uncertain. Regardless of stroke pattern: (1) PFO + atrial septal aneurysm, (2) PFO and pulmonary embolism or proximal DTV concomitant but NOT preceding the index cerebral infarction, (3) intracardiac spontaneous echo-contrast, (4) apical akinesia of the left ventricle and decreased ejection fraction (but >35%), (5) history of myocardial infarction or palpitation and multiple brain infarction, repeated either bilateral or in two different arterial territories (e.g. both anterior and posterior circulation), (6) no direct cardiac source identified, but multiple brain infarction, repeated either bilateral or in two different arterial territories (e.g. both anterior and posterior circulation) and/or evidence of systemic emboli: renal or splenic or mesenteric infarction (on CT, MRI or autopsy) or embolism in peripheral artery supplying arm or leg;Causal link is unlikely, but the disease is present. One of the following abnormalities present in isolation: PFO, ASA, strands, mitral annulus calcification, calcification aortic valve, nonapical akinesia of the left ventricle, transient atrial fibrillation;Incomplete workup. Minimum is ECG and examination by a trained cardiologist in the absence of cardiac imaging. | Numeric Values |
This data element should be collected along with the other elements from the A-S-C-O-D (Phenotypic) Classification. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Wolf ME, Hennerici MG. The ASCOD phenotyping of ischemic stroke (Updated ASCO Phenotyping). Cerebrovasc Dis. 2013;36(1):1-5. | Adult | Supplemental | 1.00 | 2020-05-20 08:40:20.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58919 | Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale | FCASSAntCerbrlArt1SegScrScl | The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Score A1 | 1;2;3;4;0 | irregularity or banding with no stenosis;stenosis, <50% reduction in diameter;stenosis, >50% reduction in diameter;occlusion;no involvement | Numeric Values | Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:32:41.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58893 | Clinical stroke time based ischemic stroke laterality type | ClnStrokeTimBaseIschmSrkLatTyp | Indicate the laterality of the ischemic stroke | Indicate the laterality of the ischemic stroke | Laterality | Right;Left;Bilateral;Midline;Unknown | Right;Left;Bilateral;Midline;Unknown | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 1.00 | 2020-05-19 09:56:46.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58909 | Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - other grade | ASCODSystemOtherGrade | The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of other cause (O) | The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of other cause (O | Evaluate the patients for the predefined phenotype of other cause (O). | 0;1;2;3;9 | No other cause detected. Ruling out other causes: negative: cerebrospinal fluid, complete hemostasis, cerebral arterial imaging, family history of inherited disease, inflammatory markers (erythrocyte sedimentation rate, C-reactive protein), hematologic tests (platelet, leucocytes, and eosinophilic counts, hematocrit), specific tests according to the suspected disease (e.g. genetic test, retinal angiography for Susac syndrome);Potentially causal. (1) dolichoectasia with complicated aneurysm, (2) polycythemia vera or thrombocytemia >800,000/mm3, (3) systemic lupus, (4) disseminated intravascular coagulation, (5) antiphospholipid antibody syndrome (including >100 GPL units or lupus anticoagulant), (6) Fabry's disease, (7) coexisting meningitis, (8) sickle cell disease, (9) ruptured intracranial aneurysm with or without vasospasm of the artery supplying the infarcted area, (10) severe hyperhomocysteinemia, (11) Horton's disease, (12) other cerebral inflammatory or infectious angiitis, (13) moyamoya disease, etc.;Causal link is uncertain. (1) saccular aneurysm (with a suspicion of embolism from it), (2) coincidental migraine attack with neurological deficit lasting >60 min in patients with history of migraine aura;Causal link is unlikely but the disease is present. (1) arteriovenous malformation, (2) thrombocythosis <800,000/mm3, (3) antiphospholipid antibody <100 GPL units, (4) homocysteinemia <40 ?mol/l, (5) malignoma with associated hypercoagulation (high D-dimer levels), deep vein thrombosis or pulmonary embolism and/or recent chemotherapy;Incomplete workup. Unable to reasonably exclude other causes based on best available diagnostic tests and stroke-specific history | Numeric Values |
This data element should be collected along with the other elements from the A-S-C-O-D (Phenotypic) Classification. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Wolf ME, Hennerici MG. The ASCOD phenotyping of ischemic stroke (Updated ASCO Phenotyping). Cerebrovasc Dis. 2013;36(1):1-5. | Adult | Supplemental | 1.00 | 2020-05-20 08:55:53.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58920 | Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 2 segment score scale | FCASSMidCerbrlArt2SegScrScl | The scale which represents the severity of focal cerebral arteriopathy in the M2 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | The scale which represents the severity of focal cerebral arteriopathy in the M2 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Score M2 | 0;1;3;4 | no involvement;irregularity or banding with no stenosis;stenosis;occlusion | Numeric Values | Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:35:16.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58894 | Clinical stroke time based Intracerebral hemorrhage laterality type | ClinStrokeTimeBasedICHLatTyp | Indicate the laterality of the intracerebral hemorrhage | Indicate the laterality of the intracerebral hemorrhage | Laterality | Right;Left;Bilateral;Midline;Unknown | Right;Left;Bilateral;Midline;Unknown | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 1.00 | 2020-05-19 11:38:36.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58910 | Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade | ASCODSystemDissectionGrade | The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D) | The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D | Evaluate the patients for the predefined phenotype of dissection (D) | 0;1;2;3;9 | No dissection detected or suspected. Ruling out dissection: negative FAT-saturated MRI of suspected artery or good quality, normal X-ray angiography (too early FAT-saturated MRI performed within 3 days of symptom onset can be falsely negative and then should be repeated). If there is no clinical suspicion of dissection, the patient can be classified D0 provided good-quality extra- or intracranial cerebral artery and cardiac evaluations have been performed;Potentially causal. (1) arterial dissection by direct demonstration (evidence of mural hematoma: hypersignal on FAT-saturated MRI or at autopsy or on TOF-MRA or CT on axial sections showing both enlargement of the arterial wall by the hematoma with narrowing of the lumen or on echography showing an hypoechoic arterial wall with narrowing of the lumen and sudden enlargement of the carotid or vertebral (V2) artery diameter, (2) arterial dissection by indirect demonstration or by less sensitive or less specific diagnostic test (only long arterial stenosis beyond the carotid bifurcation or in V2, V3 or V4 without demonstration of arterial wall hematoma: on X-ray angiography, and/or echography and/or CTA and/or MRA) or unequivocal US with recanalization during follow-up;Causal link is uncertain. (1) arterial dissection by weak evidence (suggestive clinical history, e.g. painful Horner's syndrome or past history of arterial dissection), (2) imaging evidence of fibromuscular dysplasia of a cerebral artery supplying the ischemic field;Causal link is unlikely but the disease is present. (1) kinking or dolichoectasia without complicated aneurysm or plicature, (2) fibromuscular dysplasia on arteries not supplying the ischemic field;Incomplete workup. In patients aged less than 60 years and with no evidence of A1, A2, S1, C1, or O1 category: no FAT-saturated MRI performed on the extra- or intracranial artery supplying the ischemic field or no X-ray angiography performed (all performed within 15 days of symptom onset) | Numeric Values |
This data element should be collected along with the other elements from the A-S-C-O-D (Phenotypic) Classification. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Wolf ME, Hennerici MG. The ASCOD phenotyping of ischemic stroke (Updated ASCO Phenotyping). Cerebrovasc Dis. 2013;36(1):1-5. | Adult | Supplemental | 1.00 | 2020-05-20 09:14:18.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58921 | Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale | FCASSAntCerbrlArt2SegScrScl | The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Score A2 | 0;1;3;4 | no involvement;irregularity or banding with no stenosis;stenosis;occlusion | Numeric Values | Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:42:10.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58895 | Clinical stroke tissue based ischemic stroke laterality type | ClnStrokeTisBaseIschmStkLatTyp | Indicate the laterality of the ischemic stroke | Indicate the laterality of the ischemic stroke | Laterality | Right;Left;Bilateral;Midline;Unknown | Right;Left;Bilateral;Midline;Unknown | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 1.00 | 2020-05-19 11:44:07.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58911 | Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type | ASCODSystemSubTyp | Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0) | Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0) | Identify the Stroke Subtype as defined by the A-S-C-O-D pattern | Alphanumeric |
This element combines the 5 separate phenotype grades. It should be collected along with the other elements from the A-S-C-O-D (Phenotypic) Classification. The format is A_S_C_O_D_; where blanks contain numbers 0, 1, 2, 3 or 9. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Wolf ME, Hennerici MG. The ASCOD phenotyping of ischemic stroke (Updated ASCO Phenotyping). Cerebrovasc Dis. 2013;36(1):1-5. | Adult | Supplemental | 1.00 | 2020-05-20 09:22:47.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 255 |
Free-Form Entry |
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| C58922 | Focal Cerebral Arteriopathy Severity Score (FCASS) - baseline score | FCASSBaselineScore | Score related to the baseline sum of the five individual arterial segment scores (without weighting), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS) | Score related to the baseline sum of the five individual arterial segment scores (without weighting), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS | Baseline score | Numeric Values |
Sum the five individual scores (without weighting); the maximum baseline score is 20 (maximum individual segment score of 4 multiplied by 5 arterial segments). |
Fullerton HJ, Stence N, Hills NK, Jiang B, Amlie-Lefond C, Bernard TJ, Friedman NR, Ichord R, Mackay MT, Rafay MF, Chabrier S, Steinlin M, Elkind MSV, deVeber GA, Wintermark M; VIPS Investigators. Focal Cerebral Arteriopathy of Childhood: Novel Severity Score and Natural History. Stroke. 2018;49(11):2590-2596. | Pediatric | Supplemental | 1.00 | 2020-05-20 11:44:32.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Free-Form Entry |
0 | 20 | ||||||||
| C58896 | Clinical stroke tissue based Intracerebral hemorrhage laterality type | ClinStokeTissBasedICHLatTyp | Indicate the laterality of the intracerebral hemorrhage | Indicate the laterality of the intracerebral hemorrhage | Laterality | Right;Left;Bilateral;Midline;Unknown | Right;Left;Bilateral;Midline;Unknown | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 1.00 | 2020-05-19 12:17:39.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C58912 | Embolic stroke of undetermined source (ESUS) - criteria category | ESUSCriteriaCat | The descriptive identification criteria categories used to identify Embolic Stroke of Undetermined Source (ESUS) | The descriptive identification criteria categories used to identify Embolic Stroke of Undetermined Source (ESUS | Identify Embolic Stroke of Undetermined Source | Absence of extracranial or intracranial atherosclerosis causing >=50% luminal stenosis in arteries supplying the area of ischemia;Non-lacunar stroke;No major risk cardioembolic source of embolism;No other specific cause of stroke identified (e.g., arteritis, dissection, migraine/vasospasm, and drug abuse) | Absence of extracranial or intracranial atherosclerosis causing >=50% luminal stenosis in arteries supplying the area of ischemia;Non-lacunar stroke;No major risk cardioembolic source of embolism;No other specific cause of stroke identified (e.g., arteritis, dissection, migraine/vasospasm, and drug abuse) | Alphanumeric |
Select all that apply. Requires all items to be checked. |
Hart RG, Diener HC, Coutts SB, Easton JD, Granger CB, O'Donnell MJ, Sacco RL, Connolly SJ; Cryptogenic Stroke/ESUS International Working Group. Embolic strokes of undetermined source: the case for a new clinical construct. Lancet Neurol. 2014;13(4):429-438 | Adult | Supplemental | 1.00 | 2020-05-20 09:26:26.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Multiple Pre-Defined Values Selected |
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| C18909 | Intracerebral hemorrhage presumed cause other text | ICHPresumedCauseOTH | The free-text field related to 'Intracerebral hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed | The free-text field related to 'Intracerebral hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowe | Other, specify | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 4000 |
Free-Form Entry |
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| C14234 | Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - diagnostic evidence level type | ASCOSystemDiagEvidLevTyp | Levels of diagnostic evidence for the ASCO Grades | Levels of diagnostic evidence for the ASCO Grades | Identify the levels of diagnostic evidence for the ASCO grades. | Level A;Level B;Level C | Direct demonstration by gold standard diagnostic tests or criteria;Indirect evidence or less sensitive or specific tests or criteria;Weak evidence | Alphanumeric |
This data element should be collected along with the other elements from the A-S-C-O (Phenotypic) Classification. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Hennerici MG. New approach to stroke subtyping: the A-S-C-O (phenotypic) classification of stroke. Cerebrovasc Dis. 2009;27(5):502-508 | Adult | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14250 | Subarachnoid hemorrhage Sylvian fissure lateral part score | SubaracHemSylvianFisLatPaScore | SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score | SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score | Sylvian fissure lateral part left score | 0;1;2;3 | No blood;Small amount of blood;Moderately filled with blood;Completely filled with blood | Numeric values |
This data element should be collected along with the other elements of the SAH Volume Scale (Hijdra). |
Hijdra A, Brouwers PJ, Vermeulen M, van Gijn J. Grading the amount of blood on computed tomograms after subarachnoid hemorrhage. Stroke. 1990;21(8):1156-1161. | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14261 | Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - standard primary acute sub type | CASCADEStandPrimryAcuteSubTyp | Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: acute - all patients with defined childhood arterial ischemic stroke will be classified into a single acute primary category, at the time of initial diagnosis (within 1 month of presentation) | Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: acute subtype | Primary Classification: Acute – All patients with defined childhood arterial ischemic stroke will be classified into a single acute primary category, at the time of initial diagnosis (within 1 month of presentation). | Small vessel arteriopathy of childhood (SVA);Unilateral focal cerebral arteriopathy of childhood (FCA);Bilateral cerebral arteriopathy of childhood;Aortic/ cervical arteriopathy;Cardio- embolic;Other;Multi-factorial;Undetermined etiology | Small vessel arteriopathy of childhood (SVA);Unilateral focal cerebral arteriopathy of childhood (FCA);Bilateral cerebral arteriopathy of childhood;Aortic/ cervical arteriopathy;Cardio- embolic;Other;Multi-factorial;Undetermined etiology | Alphanumeric |
This data element should be collected along with the other elements of the CASCADE criteria. |
Bernard TJ, Beslow LA, Manco-Johnson MJ, Armstrong-Wells J, Boada R, Weitzenkamp D, Hollatz A, Poisson S, Amlie-Lefond C, Lo W, deVeber G, Goldenberg NA, Dowling MM, Roach ES, Fullerton HJ, Benseler SM, Jordan LC, Kirton A, Ichord RN. Inter-Rater Reliability of the CASCADE Criteria: Challenges in Classifying Arteriopathies. Stroke. 2016;47(10):2443-2449.<br /><br />Bernard TJ, Manco-Johnson MJ, Lo W, MacKay MT, Ganesan V, DeVeber G, Goldenberg NA, Armstrong-Wells J, Dowling MM, Roach ES, Tripputi M, Fullerton HJ, Furie KL, Benseler SM, Jordan LC, Kirton A, Ichord R. Towards a consensus-based classification of childhood arterial ischemic stroke. Stroke. 2012;43(2):371-377. | Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14221 | Clinical stroke time-based definition type | ClinStrokeTimeBasedDefinTyp | Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA | Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TI | Indicate the type of clinical stroke suffered by the adult patient, using the duration of symptoms to distinguish between ischemic stroke and TIA. | Ischemic Stroke;Transient Ischemic Attack (TIA);Intracerebral hemorrhage (ICH);Intraventricular hemorrhage (IVH);Subarachnoid hemorrhage (SAH);Clinical Stroke of Uncertain Type;Silent Stroke (Clinically Asymptomatic) | Ischemic Stroke;Transient Ischemic Attack (TIA);Intracerebral hemorrhage (ICH);Intraventricular hemorrhage (IVH);Subarachnoid hemorrhage (SAH);Clinical Stroke of Uncertain Type;Silent Stroke (Clinically Asymptomatic) | Alphanumeric |
Choose one per stroke event. A clinical study should use either the "time-based" or "tissue-based" definition for clinical stroke type. |
The "NINDS Stroke Common Data Element (CDE) Project, Stroke Types and Subtypes Subgroup: Recommendations" has detailed definitions for each stroke type. That document also suggests using a term like "Acute Neurovascular Syndrome" for patients with relatively brief symptom duration (e.g., symptoms that persist several hours but less than a day), who do not receive a detailed diagnostic imaging evaluation and thus it is not possible to determine whether stroke or TIA is the most appropriate diagnosis. <br />Sacco RL, Kasner SE, Broderick JP, Caplan LR, Connors JJ, Culebras A, Elkind MS, George MG, Hamdan AD, Higashida RT, Hoh BL, Janis LS, Kase CS, Kleindorfer DO, Lee JM, Moseley ME, Peterson ED, Turan TN, Valderrama AL, Vinters HV; American Heart Association Stroke Council, Council on Cardiovascular Surgery and Anesthesia; Council on Cardiovascular Radiology and Intervention; Council on Cardiovascular and Stroke Nursing; Council on Epidemiology and Prevention; Council on Peripheral Vascular Disease; Council on Nutrition, Physical Activity and Metabolism. An updated definition of stroke for the 21st century: a statement for healthcare professionals from the American Heart Association/American Stroke Association. Stroke. 2013;44(7):2064-2089.<br />Available at: http://stroke.ahajournals.org. | Adult;Pediatric | Supplemental-Highly Recommended | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C18910 | Intraventricular hemorrhage presumed cause other text | IVHPresumedCauseOTH | The free-text field related to 'Intraventricular hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed | The free-text field related to 'Intraventricular hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowe | Other, specify | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 4000 |
Free-Form Entry |
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| C14235 | Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - sub type | ASCOSystemSubTyp | Stroke Subtype as defined by the A-S-C-O pattern (e.g., A1-S3-C1-O3) | Stroke Subtype as defined by the A-S-C-O pattern (e.g., A1-S3-C1-O3) | Identify the Stroke Subtype as defined by the A-S-C-O pattern | Alphanumeric |
This element combines the 4 separate phenotype grades. It should be collected along with the other elements from the A-S-C-O (Phenotypic) Classification. The format is A_S_C_O_ ; where blanks contain numbers 0, 1, 2, 3 or 9. |
Amarenco P, Bogousslavsky J, Caplan LR, Donnan GA, Hennerici MG. New approach to stroke subtyping: the A-S-C-O (phenotypic) classification of stroke. Cerebrovasc Dis. 2009;27(5):502-508 | Adult | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 255 |
Free-Form Entry |
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| C00001 | Gestational age value | GestatnlAgeVal | Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject | Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subjec | Gestational age at birth | Numeric Values |
Enter the gestational age at birth in weeks as an integer. |
No references available | Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Free-Form Entry |
0 | 52 | week | 3192017 | ||||||
| C14251 | Subarachnoid hemorrhage basal part score | SubarachHemBasalPartScore | SAH Volume Scale (Hijdra) - Basal part left score | SAH Volume Scale (Hijdra) - Basal part left score | Basal part left score | 0;1;2;3 | No blood;Small amount of blood;Moderately filled with blood;Completely filled with blood | Numeric values |
This data element should be collected along with the other elements of the SAH Volume Scale (Hijdra). |
Hijdra A, Brouwers PJ, Vermeulen M, van Gijn J. Grading the amount of blood on computed tomograms after subarachnoid hemorrhage. Stroke. 1990;21(8):1156-1161. | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14263 | Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type | CASCADEPrimryChrncSubTyp | Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy | Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic subtype | Primary Classification: Chronic – Patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy. | Progressive Arteriopathy;Stable Arteriopathy;Reversible Arteriopathy;Indeterminate Arteriopathy | Using the same radiographic techniques for comparison at 3-6 months or more beyond initial image: progression of arteriopathy or new arteriopathy.;Using the same radiographic techniques for comparison at 3-6 months or more beyond initial image: (1) no evidence of new or progressive arteriopathy and (2) no evidence of improvement in arteriopathy.;Using the same radiographic techniques for comparison at 3-6 months or more beyond initial image: easily recognized improvement/ resolution of arteriopathy without evidence of new arteriopathy.;Incomplete Follow-up | Alphanumeric |
This data element should be collected along with the other elements of the CASCADE criteria. |
Bernard TJ, Beslow LA, Manco-Johnson MJ, Armstrong-Wells J, Boada R, Weitzenkamp D, Hollatz A, Poisson S, Amlie-Lefond C, Lo W, deVeber G, Goldenberg NA, Dowling MM, Roach ES, Fullerton HJ, Benseler SM, Jordan LC, Kirton A, Ichord RN. Inter-Rater Reliability of the CASCADE Criteria: Challenges in Classifying Arteriopathies. Stroke. 2016;47(10):2443-2449.<br /><br />Bernard TJ, Manco-Johnson MJ, Lo W, MacKay MT, Ganesan V, DeVeber G, Goldenberg NA, Armstrong-Wells J, Dowling MM, Roach ES, Tripputi M, Fullerton HJ, Furie KL, Benseler SM, Jordan LC, Kirton A, Ichord R. Towards a consensus-based classification of childhood arterial ischemic stroke. Stroke. 2012;43(2):371-377. | Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14222 | Clinical stroke tissue-based definition type | ClinStrokeTissBasedDefinTyp | Indicates the type of clinical stroke suffered by the adult patient, using tissue status to distinguish between ischemic stroke and TIA | Indicates the type of clinical stroke suffered by the adult patient, using tissue status to distinguish between ischemic stroke and TI | Indicate the type of clinical stroke suffered by the adult patient, using tissue status to distinguish between ischemic stroke and TIA. | Ischemic Stroke;Transient Ischemic Attack (TIA);Intracerebral hemorrhage (ICH);Intraventricular hemorrhage (IVH);Subarachnoid hemorrhage (SAH);Clinical Stroke of Uncertain Type;Silent Stroke (Clinically Asymptomatic) | Ischemic Stroke;Transient Ischemic Attack (TIA);Intracerebral hemorrhage (ICH);Intraventricular hemorrhage (IVH);Subarachnoid hemorrhage (SAH);Clinical Stroke of Uncertain Type;Silent Stroke (Clinically Asymptomatic) | Alphanumeric |
Choose one per stroke event. A clinical study should use either the "time-based" or "tissue-based" definition for clinical stroke type. |
The "NINDS Stroke Common Data Element (CDE) Project, Stroke Types and Subtypes Subgroup: Recommendations" has detailed definitions for each stroke type.<br /><br />Sacco RL, Kasner SE, Broderick JP, Caplan LR, Connors JJ, Culebras A, Elkind MS, George MG, Hamdan AD, Higashida RT, Hoh BL, Janis LS, Kase CS, Kleindorfer DO, Lee JM, Moseley ME, Peterson ED, Turan TN, Valderrama AL, Vinters HV; American Heart Association Stroke Council, Council on Cardiovascular Surgery and Anesthesia; Council on Cardiovascular Radiology and Intervention; Council on Cardiovascular and Stroke Nursing; Council on Epidemiology and Prevention; Council on Peripheral Vascular Disease; Council on Nutrition, Physical Activity and Metabolism. An updated definition of stroke for the 21st century: a statement for healthcare professionals from the American Heart Association/American Stroke Association. Stroke. 2013;44(7):2064-2089. <br />Available at: http://stroke.ahajournals.org. | Adult;Pediatric | Supplemental-Highly Recommended | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C18911 | Subarachnoid hemorrhage etiology other text | SAHEtiologyOTH | The free-text field related to 'Subarachnoid hemorrhage etiology type' specifying other text. Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed | The free-text field related to 'Subarachnoid hemorrhage etiology type' specifying other text. Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowe | Other, specify | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 4000 |
Free-Form Entry |
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| C14236 | Oxfordshire Community Stroke Project (OCSP) - subtype category | OCSPSubtypeCategory | Oxfordshire Community Stroke Project (OCSP) Subtype Classification | Oxfordshire Community Stroke Project (OCSP) Subtype Classification | Identify the Oxfordshire Community Stroke Project (OCSP) subtype classification. | Partial anterior circulation infarcts (PACI);Lacunar infarcts (LACI);Posterior circulation infarcts (POCI);Total anterior circulation infarcts (TACI) | PACI = Patients presented with only two of the three components of the TACI syndrome, with higher cerebral dysfunction alone, or with a motor/sensory deficit more restricted than those classified as LACI (e.g., confined to one limb, or to face and hand but not to the whole arm).;LACI = These patients presented with a pure motor stroke, pure sensory stroke, sensori-motor stroke, or ataxic hemiparesis. Although patients with faciobrachial and brachiocrural involvement were included, those with more restricted deficits were not. There were no cases of acute focal movement disorders due to CI in our study although there is some evidence that such cases should be considered in this group.;POCI = These patients presented with any of the following: ipsilateral cranial nerve palsy with contralateral motor and/or sensory deficit| bilateral motor and/or sensory deficit| disorder of conjugate eye movement| cerebellar dysfunction without ipsilateral long-tract deficit (i.e., ataxic hemiparesis)| or isolated homonymous visual field defect.;TACI = Patients with TACI presented with the combination of new higher cerebral dysfunction (e.g., dysphasia, dyscalculia, visuospatial disorder)| homonymous visual field defect| and ipsilateral motor and/or sensory deficit of at least two areas of the face, arm, and leg. If the conscious level was impaired and formal testing of higher cerebral function or the visual fields was not possible, a deficit was assumed. | Alphanumeric |
Definitions from Lancet. 1991 Jun 22;337(8756):1521-6. LACI = These patients presented with a pure motor stroke, pure sensory stroke, sensori-motor stroke, or ataxic hemiparesis. Although patients with faciobrachial and brachiocrural involvement were included, those with more restricted deficits were not. There were no cases of acute focal movement disorders due to CI in our study although there is some evidence that such cases should be considered in this group. TACI = Patients with TACI presented with the combination of new higher cerebral dysfunction (e.g., dysphasia, dyscalculia, visuospatial disorder); homonymous visual field defect; and ipsilateral motor and/or sensory deficit of at least two areas of the face, arm, and leg. If the conscious level was impaired and formal testing of higher cerebral function or the visual fields was not possible, a deficit was assumed. PACI = Patients presented with only two of the three components of the TACI syndrome, with higher cerebral dysfunction alone, or with a motor/sensory deficit more restricted than those classified as LACI (e.g., confined to one limb, or to face and hand but not to the whole arm). POCI = These patients presented with any of the following: ipsilateral cranial nerve palsy with contralateral motor and/or sensory deficit; bilateral motor and/or sensory deficit; disorder of conjugate eye movement; cerebellar dysfunction without ipsilateral long-tract deficit (i.e., ataxic hemiparesis); or isolated homonymous visual field defect. |
Bamford J, Sandercock P, Dennis M, Burn J, Warlow C. Classification and natural history of clinically identifiable subtypes of cerebral infarction. Lancet. 1991;337(8756):1521-1526. | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C02411 | Laterality type | LatTyp | Laterality type relative to the anatomic site of the body examined or affected | Laterality type relative to the anatomic site of the body examined or affected | Specify laterality | Bilateral;Left;Right;Unknown;Midline | Bilateral;Left;Right;Unknown;Midline | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Supplemental-Highly Recommended | 3.00 | 2013-08-28 16:08:00.453 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14252 | Subarachnoid hemorrhage suprasellar cistern score | SuarachHemSupraCisScore | SAH Volume Scale (Hijdra) - Suprasellar cistern left score | SAH Volume Scale (Hijdra) - Suprasellar cistern left score | Suprasellar cistern left score | 0;1;2;3 | No blood;Small amount of blood;Moderately filled with blood;Completely filled with blood | Numeric values |
This data element should be collected along with the other elements of the SAH Volume Scale (Hijdra). |
Hijdra A, Brouwers PJ, Vermeulen M, van Gijn J. Grading the amount of blood on computed tomograms after subarachnoid hemorrhage. Stroke. 1990;21(8):1156-1161. | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14265 | NIH Ischemic Perinatal Stroke (IPS) - sub type | NIHIPSSubTyp | Subtype based on the Ischemic Perinatal Stroke (IPS) Workshop sponsored by NIH in 2007 | Subtype based on the Ischemic Perinatal Stroke (IPS) Workshop sponsored by NIH in 2007 | Indicate the subtype based on the Ischemic Perinatal Stroke (IPS) Workshop sponsored by NIH in 2007. | Fetal ischemic stroke;Neonatal ischemic stroke;Presumed perinatal ischemic | Fetal ischemic stroke;Neonatal ischemic stroke;Presumed perinatal ischemic | Alphanumeric |
No instructions available |
Raju TN, Nelson KB, Ferriero D, Lynch JK., NICHD-NINDS Perinatal Stroke Workshop Participants. Ischemic perinatal stroke: summary of a workshop sponsored by the National Institute of Child Health and Human Development and the National Institute of Neurological Disorders and Stroke. Pediatrics. 2007;120(3):609-616. | Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C14224 | Acute ischemic cerebrovascular syndrome (AICS) - stroke sub type | AICSStrokeSubTyp | Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification system | Ischemic stroke subtype based on the acute ischemic cerebrovascular syndrome (AICS) classification syste | Identify the ischemic stroke subtype based on the acute Ischemic cerebrovascular syndrome (AICS) classification system. | Definite AICS;Probable AICS;Possible AICS;Not AICS | Acute onset of neurologic dysfunction of any severity consistent with focal brain ischemia and imaging/laboratory confirmation.;Acute onset of neurologic dysfunction of any severity suggestive of focal brain ischemic syndrome but without imaging/laboratory confirmation of acute ischemic pathology (diagnostic studies were negative but insensitive for ischemic pathology of the given duration, severity and location). Imaging, laboratory, and clinical data studies do not suggest non-ischemic etiology: possible alternative etiologies are ruled out.;Acute neurologic dysfunction of any duration or severity possibly consistent with focal brain ischemia without imaging/laboratory confirmation of acute ischemic pathology (diagnostic studies were not performed or were negative and sensitive for ischemic pathology of the given duration, severity and location). Possible alternative etiologies are not ruled out. Symptoms may be non-focal or difficult to localize.;Not AICS | Alphanumeric |
Choose one. |
Kidwell CS, Warach S. Acute ischemic cerebrovascular syndrome: diagnostic criteria. Stroke. 2003;34(12):2995-2998 | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Single Pre-Defined Value Selected |
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| C19076 | Sophia signs symptoms presentation neurological signs other text | SophiaSignSymPresNuroSgnOthTxt | The free-text field related to 'Sophia signs and symptoms on presentation type' specifying other text. Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification | The free-text field related to 'Sophia signs and symptoms on presentation type' specifying other text. Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context | Other neurological signs, specify | Alphanumeric |
This element should be collected along with the other elements of the Sophia Classification. |
Govaert P, Ramenghi L, Taal R, de Vries L, Deveber G. Diagnosis of perinatal stroke I: definitions, differential diagnosis and registration. Acta Paediatr. 2009;98(10):1556-1567. | Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events | 4000 |
Free-Form Entry |
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| C14237 | Intracerebral hemorrhage presumed cause type | ICHPresumedCauseTyp | Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed | Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowe | Indicate the presumed cause(s) of the intracerebral hemorrhage (ICH). | Hypertensive;Amyloid angiopathy;Cavernous hemangioma;Venous angioma;Aneurysm (if SAH and ICH – then classified as SAH);Anti-coagulant related ICH;Thrombolytic ICH (not hemorrhagic transformation of cerebral infarction);Tumor;Undetermined;Other, specify;Arteriovenous malformation | Hypertensive ICH is defined as an ICH in the setting of known history of hypertension in a deep, cerebellar, or brainstem location without another defined structural cause.;ICH presumed secondary to amyloid angiopathy is suggested by lobar ICH without another defined cause in the setting of prior lobar ICH, old cortical microhemorrhages on MRI, imaging of amyloid by PET, or biopsy/surgical specimen consistent with amyloid angiopathy.;Cavernous hemangioma;Venous angioma;Aneurysm (if SAH and ICH – then classified as SAH);Anti-coagulant related ICH;Thrombolytic ICH (not hemorrhagic transformation of cerebral infarction);Tumor;Undetermined;Other, specify;Arteriovenous malformation | Alphanumeric |
Select all that apply. |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Stroke Types and Subtypes | Classification | Disease/Injury Related Events |
Multiple Pre-Defined Values Selected |
