CDE Detailed Report
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CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
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C19259 | Occupation primary other status text | OccupationPrimaryOthrStatusTxt | The free-text field to capture other status indicating the participant's/subject's current primary occupational status | The free-text field to capture other status indicating the participant's/subject's current primary occupational statu | Other, specify | Alphanumeric | Adult;Pediatric | Exploratory | 1.00 | 2014-06-06 09:12:40.0 | Social Status | [php] | [php_1] | 4000 |
Free-Form Entry |
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C00015 | Education year count | EduYrCt | Number of years of education completed (age 5 and beyond) | Number of years of education completed (age 5 and beyond) | Years of education | Numeric Values |
For years completed, after the age of 5, code the number of years attained (0–30 years), normed to someone moving full time at the usual pace, i.e. a year that was repeated counts as only 1 year and the usual single-year full-time load completed over several years counts as 1 year. Certificate and technical programs do NOT count no matter how specialized. The number of years of typical completion of the relevant program is counted. If the subject obtained their education outside the United States, ask about their educational system to estimate the correct coding – Internship, Residency, and Fellowship years are experiential training and do not count. |
No references available | Adult;Pediatric | Exploratory | 3.00 | 2013-07-22 16:57:17.79 | Social Status | [php] | [php_1] |
Free-Form Entry |
0 | 30 | year | 3134878 | ||||||
C19260 | Occupation secondary status | OccupationSecStatus | The status indicating the participant's/subject's current secondary occupational status | The status indicating the participant's/subject's current secondary occupational statu | Secondary occupation | N/A;Other, specify;Homemaker;Paid work;Retired;Retired;Student;Unemployed;Unknown;Unpaid work | N/A;Other, specify;Homemaker;Paid work (employed/self-employed, including military);Retired (disability pension);Retired (non-disability);Student (including on the job training);Unemployed (none of the above);Unknown;Unpaid work (volunteer) | Alphanumeric |
Choose all that apply |
Adult;Pediatric | Exploratory | 1.00 | 2014-06-06 09:18:12.0 | Social Status | [php] | [php_1] |
Multiple Pre-Defined Values Selected |
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C00023 | Hand preference type | HandPrefTyp | Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively | Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusivel | Handedness | Left hand;Right hand;Both hands;Forced right | Left hand;Right hand;Both hands;Forced right | Alphanumeric |
The purpose of this element is to determine dominant hemisphere; therefore, for those who were originally left handed but forced to write right-handed, record left-handed. |
Adult;Pediatric | Exploratory | 3.00 | 2013-07-25 08:54:08.2 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |
2180147 | ||||||||
C19262 | Occupation secondary other status text | OccupationSecOtherStatusTxt | The free-text field to capture other status indicating the participant's/subject's current secondary occupational status | The free-text field to capture other status indicating the participant's/subject's current secondary occupational statu | Other, specify | Alphanumeric | Adult;Pediatric | Exploratory | 1.00 | 2014-06-06 09:54:40.0 | Social Status | [php] | [php_1] | 4000 |
Free-Form Entry |
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C00204 | Employment current status | EmplmtStatu | Status of participant/subject's current employment | Status of participant/subject's current employment | Current employment status | Working Now;Only temporarily laid off;Sick leave or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown | Working Now;Only temporarily laid off;Sick leave or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown | Alphanumeric |
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) |
PhenX Toolkit (https://www.phenxtoolkit.org) Current Employment Status #011301 National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) | Adult;Pediatric | Exploratory | 3.00 | 2013-08-28 16:08:00.453 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |
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C19482 | Paid work hour week count | PaidWorkHourWeekCt | The number of hours per week in paid work | The number of hours per week in paid wor | Workload | Numeric Values |
Hours/week |
Adult;Pediatric | Exploratory | 1.00 | 2014-06-17 22:42:01.0 | Social Status | [php] | [php_1] |
Free-Form Entry |
0 | 168 | Hours per week | ||||||||
C00205 | Family income range | FmlyIncRng | Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member | Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member | Income group that best represents your total combined family income for the past 12 months | $15,000 to $24,999;$25,000 to $34,999;$35,000 to $49,999;$50,000 to $74,999;$75,000 to $99,999;$100,000 and over;Refused;Unknown;Under $15,000 | $15,000 to $24,999;$25,000 to $34,999;$35,000 to $49,999;$50,000 to $74,999;$75,000 to $99,999;$100,000 and over;Refused;Unknown;Under $15,000 | Alphanumeric |
No instructions available |
Women's Health Initiative American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf | Adult;Pediatric | Exploratory | 3.00 | 2013-07-25 08:54:08.2 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |
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C52560 | Occupation paid type | OccupatPaidTyp | Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO) | Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO) | Type of paid occupation | Numeric Values |
Four-digit code as defined by ILO/ISCO |
Adult;Pediatric | Exploratory | 1.00 | 2017-01-23 15:32:59.0 | Social Status | [php] | [php_1] |
Free-Form Entry |
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C00206 | Family income supported persons count | FamilyIncmeSupprtPersCt | Count of all people, including the participant/subject, who are supported by the household gross annual income reported | Count of all people, including the participant/subject, who are supported by the household gross annual income reported | Number of people supported by this income, including you | Numeric Values |
No instructions available |
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf | Adult;Pediatric | Exploratory | 3.00 | 2013-07-25 08:54:08.2 | Social Status | [php] | [php_1] |
Free-Form Entry |
1 | 99 | ||||||||
C52561 | Blood transfusion receive indicator | BloodTransfRecInd | Whether the participant/subject receives blood transfusions | Whether the participant/subject receives blood transfusions | Do you receive blood transfusions? | No;Yes | No;Yes | Alphanumeric | Adult;Pediatric | Exploratory | 1.00 | 2017-01-23 15:46:25.0 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |
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C00207 | Marital or partner status | MartlPartnerStatus | Status of participant/subject's current domestic relationship, whether marital or partnered | Status of participant/subject's current domestic relationship, whether marital or partnered | Marital/Partner Status | Never married;Married;Domestic partnership;Divorced;Separated;Widowed | Never married;Married;Domestic partnership;Divorced;Separated;Widowed | Alphanumeric |
No instructions available |
No references available | Adult;Pediatric | Exploratory | 3.00 | 2013-07-25 08:54:08.2 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |
2188083 | |||||||
C00214 | Living with persons count | PrsnCohabitCt | Count of other people with whom the participant/subject currently lives, cohabits, or stays | Count of other people with whom the participant/subject currently lives, cohabits, or stays | Number of people living with | Numeric Values |
No instructions available |
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf | Adult;Pediatric | Exploratory | 3.00 | 2013-07-25 08:54:08.2 | Social Status | [php] | [php_1] |
Free-Form Entry |
0 | 99 | ||||||||
C00215 | Living with person relationship type | LivPrsnRltnshpTyp | Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays | Type(s) of relationship(s) that obtain between the participant/subject and all people with whom she or he currently lives, cohabits, or stays | If one or more people, describe the individual(s) with whom you live | Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown | Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown | Alphanumeric |
Skip this data element if the participant/ subject lives alone. If he/she lives with one or more people, choose all that apply. |
Code values taken from PhenX Toolkit (https://www.phenxtoolkit.org) Household Roster-Relationships #011401 American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf | Adult;Pediatric | Exploratory | 3.00 | 2013-07-25 08:54:08.2 | Social Status | [php] | [php_1] |
Multiple Pre-Defined Values Selected |
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C18677 | Employment other text | EmplmtOTH | The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment | The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment | Other, specify | Alphanumeric |
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) |
PhenX Toolkit (https://www.phenxtoolkit.org) Current Employment Status #011301 National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) | Adult;Pediatric | Exploratory | 1.00 | 2014-05-27 13:34:46.0 | Social Status | [php] | [php_1] | 4000 |
Free-Form Entry |
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C00012 | Education level USA type | EduLvlUSATyp | Highest grade or level of school participant/subject has completed or the highest degree received | Highest grade or level of school participant/subject has completed or the highest degree received | What is the highest grade or level of school you have completed or the highest degree you have received? | Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown | Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown | Alphanumeric |
Choose highest level attained. It may be helpful to code education numerically if the data are needed for neuropsychological testing. Please refer to the data element named "Education for scoring of neuropsychological tests" for more information. |
National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit (https://www.phenxtoolkit.org) Current Educational Attainment #011001 | Adult;Pediatric | Exploratory | 3.00 | 2013-07-25 08:54:08.2 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |
3134878 | |||||||
C19258 | Occupation primary status | OccupationPrimaryStatus | The status indicating the participant's/subject's current primary occupational status | The status indicating the participant's/subject's current primary occupational statu | Primary occupation | Homemaker;Other, specify;Paid work;Retired;Retired;Student;Unemployed;Unknown;Unpaid work | Homemaker;Other, specify;Paid work (employed/self-employed, including military);Retired (disability pension);Retired (non-disability);Student (including on the job training);Unemployed (none of the above);Unknown;Unpaid work (volunteer) | Alphanumeric |
Choose one |
Adult;Pediatric | Exploratory | 1.00 | 2014-06-06 08:50:45.0 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |
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C00013 | Education level primary caregiver USA type | EduLvlPrimCaregiverUSATyp | Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received | Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received | What is the highest grade or level of school the primary care giver has completed or the highest degree she/he has received | Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational, technical, or vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown | Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational, technical, or vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown | Alphanumeric |
Choose highest level attained. This element is recommended for pediatric SAH studies. |
National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit (https://www.phenxtoolkit.org) Current Educational Attainment #011001 | Pediatric | Exploratory | 3.00 | 2013-07-20 10:21:25.65 | Social Status | [php] | [php_1] |
Single Pre-Defined Value Selected |