CDE Detailed Report

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CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C19259 Occupation primary other status text OccupationPrimaryOthrStatusTxt The free-text field to capture other status indicating the participant's/subject's current primary occupational status The free-text field to capture other status indicating the participant's/subject's current primary occupational statu Other, specify Alphanumeric Adult;Pediatric Exploratory 1.00 2014-06-06 09:12:40.0 Social Status [php] [php_1] 4000

Free-Form Entry

C00015 Education year count EduYrCt Number of years of education completed (age 5 and beyond) Number of years of education completed (age 5 and beyond) Years of education Numeric Values

For years completed, after the age of 5, code the number of years attained (0–30 years), normed to someone moving full time at the usual pace, i.e. a year that was repeated counts as only 1 year and the usual single-year full-time load completed over several years counts as 1 year. Certificate and technical programs do NOT count no matter how specialized. The number of years of typical completion of the relevant program is counted. If the subject obtained their education outside the United States, ask about their educational system to estimate the correct coding – Internship, Residency, and Fellowship years are experiential training and do not count.

No references available Adult;Pediatric Exploratory 3.00 2013-07-22 16:57:17.79 Social Status [php] [php_1]

Free-Form Entry

0 30 year 3134878
C19260 Occupation secondary status OccupationSecStatus The status indicating the participant's/subject's current secondary occupational status The status indicating the participant's/subject's current secondary occupational statu Secondary occupation N/A;Other, specify;Homemaker;Paid work;Retired;Retired;Student;Unemployed;Unknown;Unpaid work N/A;Other, specify;Homemaker;Paid work (employed/self-employed, including military);Retired (disability pension);Retired (non-disability);Student (including on the job training);Unemployed (none of the above);Unknown;Unpaid work (volunteer) Alphanumeric

Choose all that apply

Adult;Pediatric Exploratory 1.00 2014-06-06 09:18:12.0 Social Status [php] [php_1]

Multiple Pre-Defined Values Selected

C00023 Hand preference type HandPrefTyp Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusivel Handedness Left hand;Right hand;Both hands;Forced right Left hand;Right hand;Both hands;Forced right Alphanumeric

The purpose of this element is to determine dominant hemisphere; therefore, for those who were originally left handed but forced to write right-handed, record left-handed.

Adult;Pediatric Exploratory 3.00 2013-07-25 08:54:08.2 Social Status [php] [php_1]

Single Pre-Defined Value Selected

2180147
C19262 Occupation secondary other status text OccupationSecOtherStatusTxt The free-text field to capture other status indicating the participant's/subject's current secondary occupational status The free-text field to capture other status indicating the participant's/subject's current secondary occupational statu Other, specify Alphanumeric Adult;Pediatric Exploratory 1.00 2014-06-06 09:54:40.0 Social Status [php] [php_1] 4000

Free-Form Entry

C00204 Employment current status EmplmtStatu Status of participant/subject's current employment Status of participant/subject's current employment Current employment status Working Now;Only temporarily laid off;Sick leave or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown Working Now;Only temporarily laid off;Sick leave or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown Alphanumeric

National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)

PhenX Toolkit (https://www.phenxtoolkit.org) Current Employment Status #011301 National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) Adult;Pediatric Exploratory 3.00 2013-08-28 16:08:00.453 Social Status [php] [php_1]

Single Pre-Defined Value Selected

C19482 Paid work hour week count PaidWorkHourWeekCt The number of hours per week in paid work The number of hours per week in paid wor Workload Numeric Values

Hours/week

Adult;Pediatric Exploratory 1.00 2014-06-17 22:42:01.0 Social Status [php] [php_1]

Free-Form Entry

0 168 Hours per week
C00205 Family income range FmlyIncRng Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member Income group that best represents your total combined family income for the past 12 months $15,000 to $24,999;$25,000 to $34,999;$35,000 to $49,999;$50,000 to $74,999;$75,000 to $99,999;$100,000 and over;Refused;Unknown;Under $15,000 $15,000 to $24,999;$25,000 to $34,999;$35,000 to $49,999;$50,000 to $74,999;$75,000 to $99,999;$100,000 and over;Refused;Unknown;Under $15,000 Alphanumeric

No instructions available

Women's Health Initiative American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf Adult;Pediatric Exploratory 3.00 2013-07-25 08:54:08.2 Social Status [php] [php_1]

Single Pre-Defined Value Selected

C52560 Occupation paid type OccupatPaidTyp Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO) Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO) Type of paid occupation Numeric Values

Four-digit code as defined by ILO/ISCO

Adult;Pediatric Exploratory 1.00 2017-01-23 15:32:59.0 Social Status [php] [php_1]

Free-Form Entry

C00206 Family income supported persons count FamilyIncmeSupprtPersCt Count of all people, including the participant/subject, who are supported by the household gross annual income reported Count of all people, including the participant/subject, who are supported by the household gross annual income reported Number of people supported by this income, including you Numeric Values

No instructions available

American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf Adult;Pediatric Exploratory 3.00 2013-07-25 08:54:08.2 Social Status [php] [php_1]

Free-Form Entry

1 99
C52561 Blood transfusion receive indicator BloodTransfRecInd Whether the participant/subject receives blood transfusions Whether the participant/subject receives blood transfusions Do you receive blood transfusions? No;Yes No;Yes Alphanumeric Adult;Pediatric Exploratory 1.00 2017-01-23 15:46:25.0 Social Status [php] [php_1]

Single Pre-Defined Value Selected

C00207 Marital or partner status MartlPartnerStatus Status of participant/subject's current domestic relationship, whether marital or partnered Status of participant/subject's current domestic relationship, whether marital or partnered Marital/Partner Status Never married;Married;Domestic partnership;Divorced;Separated;Widowed Never married;Married;Domestic partnership;Divorced;Separated;Widowed Alphanumeric

No instructions available

No references available Adult;Pediatric Exploratory 3.00 2013-07-25 08:54:08.2 Social Status [php] [php_1]

Single Pre-Defined Value Selected

2188083
C00214 Living with persons count PrsnCohabitCt Count of other people with whom the participant/subject currently lives, cohabits, or stays Count of other people with whom the participant/subject currently lives, cohabits, or stays Number of people living with Numeric Values

No instructions available

American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf Adult;Pediatric Exploratory 3.00 2013-07-25 08:54:08.2 Social Status [php] [php_1]

Free-Form Entry

0 99
C00215 Living with person relationship type LivPrsnRltnshpTyp Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays Type(s) of relationship(s) that obtain between the participant/subject and all people with whom she or he currently lives, cohabits, or stays If one or more people, describe the individual(s) with whom you live Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown Alphanumeric

Skip this data element if the participant/ subject lives alone. If he/she lives with one or more people, choose all that apply.

Code values taken from PhenX Toolkit (https://www.phenxtoolkit.org) Household Roster-Relationships #011401 American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf Adult;Pediatric Exploratory 3.00 2013-07-25 08:54:08.2 Social Status [php] [php_1]

Multiple Pre-Defined Values Selected

C18677 Employment other text EmplmtOTH The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment Other, specify Alphanumeric

National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)

PhenX Toolkit (https://www.phenxtoolkit.org) Current Employment Status #011301 National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) Adult;Pediatric Exploratory 1.00 2014-05-27 13:34:46.0 Social Status [php] [php_1] 4000

Free-Form Entry

C00012 Education level USA type EduLvlUSATyp Highest grade or level of school participant/subject has completed or the highest degree received Highest grade or level of school participant/subject has completed or the highest degree received What is the highest grade or level of school you have completed or the highest degree you have received? Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown Alphanumeric

Choose highest level attained. It may be helpful to code education numerically if the data are needed for neuropsychological testing. Please refer to the data element named "Education for scoring of neuropsychological tests" for more information.

National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit (https://www.phenxtoolkit.org) Current Educational Attainment #011001 Adult;Pediatric Exploratory 3.00 2013-07-25 08:54:08.2 Social Status [php] [php_1]

Single Pre-Defined Value Selected

3134878
C19258 Occupation primary status OccupationPrimaryStatus The status indicating the participant's/subject's current primary occupational status The status indicating the participant's/subject's current primary occupational statu Primary occupation Homemaker;Other, specify;Paid work;Retired;Retired;Student;Unemployed;Unknown;Unpaid work Homemaker;Other, specify;Paid work (employed/self-employed, including military);Retired (disability pension);Retired (non-disability);Student (including on the job training);Unemployed (none of the above);Unknown;Unpaid work (volunteer) Alphanumeric

Choose one

Adult;Pediatric Exploratory 1.00 2014-06-06 08:50:45.0 Social Status [php] [php_1]

Single Pre-Defined Value Selected

C00013 Education level primary caregiver USA type EduLvlPrimCaregiverUSATyp Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received What is the highest grade or level of school the primary care giver has completed or the highest degree she/he has received Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational, technical, or vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational, technical, or vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown Alphanumeric

Choose highest level attained. This element is recommended for pediatric SAH studies.

National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit (https://www.phenxtoolkit.org) Current Educational Attainment #011001 Pediatric Exploratory 3.00 2013-07-20 10:21:25.65 Social Status [php] [php_1]

Single Pre-Defined Value Selected

CSV