CDE Detailed Report
Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 20 of 20
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 20 of 20
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C21139 | Quality of Life - Movement medication open difficulty scale | QolMoveMedicatnOpnAbiltyScl | The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity | The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremit | How much DIFFICULTY do you currently have opening medications or vitamin containers (e.g., childproof containers, small bottles)? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21129 | Quality of Life - Movement touch-tone phone call ability scale | QolMoveTouchTneCallAbilityScl | The scale which represents the extent to which the participant was able to make a phone call using a touch tone key-pad, as part of Neuro-QOL Upper Extremity | The scale which represents the extent to which the participant was able to make a phone call using a touch tone key-pad, as part of Neuro-QOL Upper Extremit | Are you able to make a phone call using a touch tone key-pad? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21140 | Quality of Life - Movement open prior open jar ability scale | QolMoveOpnPriorOpnJarAbltyScl | The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity | The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremit | Are you able to open previously opened jars? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21130 | Quality of Life - Movement pick up coin ability scale | QoLMovePckUpCoinAbltyScl | The scale which represents the extent to which the participant was able to pick up coins from a table top, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to pick up coins from a table top, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremit | Are you able to pick up coins from a table top? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21141 | Quality of Life - Movement full food plate hold ability scale | QolMoveFulFoodPlatHldAbltyScl | The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit | Are you able to hold a plate full of food? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21131 | Quality of Life - Movement pen pencil write ability scale | QolMovePenPenclWrteAbilityScl | The scale which represents the extent to which the participant was able to write with a pen or pencil, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) | The scale which represents the extent to which the participant was able to write with a pen or pencil, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS | Are you able to write with a pen or pencil? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21142 | Quality of Life - Movement pull trouser on ability scale | QolMovePullTrouserOnAbiltyScl | The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity | The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremit | Are you able to pull on trousers? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21132 | Quality of Life - Movement zipper open close ability scale | QoLMoveZipprOpnClseAblityScl | The scale which represents the extent to which the participant was able to open and close a zipper, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Information Measurement System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to open and close a zipper, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Information Measurement System (PROMIS) Upper Extremit | Are you able to open and close a zipper? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21143 | Quality of Life - Movement button shirt ability scale | QolMoveButtonShirtAblityScl | The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremit | Are you able to button your shirt? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21133 | Quality of Life - Movement body wash dry ability scale | QoLMoveBodyWashDryAblityScl | The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremity | The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremit | Are you able to wash and dry your body? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21144 | Quality of Life - Movement fingernail trim ability scale | QolMoveFingernlTrimAbiltyScl | The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit | Are you able to trim your fingernails? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21134 | Quality of Life - Movement shampoo hair ability scale | QoLMoveShampooHairAbilityScl | The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit | Are you able to shampoo your hair? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21145 | Quality of Life - Movement toenail trim ability scale | QolMoveToenailTrimAbiltyScl | The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity | The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremit | Are you able to cut your toe nails? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21135 | Quality of Life - Movement spoon eat meal difficulty scale | QolMoveSpoonEatMealAbilityScl | The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity | The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremit | How much DIFFICULTY do you currently have using a spoon to eat a meal? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21146 | Quality of Life - Movement bend down pick up cloth ability scale | QoLMoveBndDwnPckUpClthAbltyScl | The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity | The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremit | Are you able to bend down and pick up clothing from the floor? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21136 | Quality of Life - Movement dress pullover shirt on difficulty scale | QolMoveDrssPllvrShrtAblityScl | The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity | The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremit | How much DIFFICULTY do you currently have putting on a pullover shirt? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21137 | Quality of Life - Movement dress pullover shirt off difficulty scale | QoLMoveDrssPllovrOffAbilityScl | The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity | The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremit | How much DIFFICULTY do you currently have taking off a pullover shirt? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21127 | Quality of Life - Movement turn key lock ability scale | QoLMoveTurnKeyLockAbilityScl | The scale which represents the extent to which the participant was able to turn a key in a lock, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to turn a key in a lock, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremit | Are you able to turn a key in a lock? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21138 | Quality of Life - Movement small object remove wrap difficulty scale | QoLMoveSmllObjtRmvWrpAblityScl | The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity | The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremit | How much DIFFICULTY do you currently have removing wrappings from small objects. | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21128 | Quality of Life - Movement brush teeth ability scale | QoLMoveBrushTeethAblityScl | The scale which represents the extent to which the participant was able to brush their teeth, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity | The scale which represents the extent to which the participant was able to brush their teeth, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit | Are you able to brush your teeth? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Upper Extremity |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 15:16:35.0 | Neuro-QOL Adult Bank - Upper Extremity | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
