CDE Detailed Report
Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 45 of 45
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 45 of 45
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C20754 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work amount satisfaction past week scale | PROMISSatsfyHowMuchWorkScale | The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with how much work I can do (include work at home). | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP185 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21287 | Quality of Life - Work performance limitation bother past week scale | QoLWrkPerfmncLimitatnBothrScl | The scale which represents the extent to which the participant was bothered by limitations in performing their work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was bothered by limitations in performing their work in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am bothered by limitations in performing my work. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21266 | Quality of Life - Family socialize ability disappointment past week scale | QoLFamSoclizAbltyDisppntmntScl | The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to socialize with my family. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20743 | Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale | PROMISSatsfyCommunityActScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to do all of the community activities that are really important to me. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP163 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21277 | Quality of Life - Leisure activity ability disappointment past week scale | QoLLeisrActvtyAbltDsppntmntScl | The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to do leisure activities. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20755 | Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale | PROMISFltGoodAbiDoForFamScale | The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I feel good about my ability to do things for my family. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP187 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21267 | Quality of Life - Friend regular activity limitation bother past week scale | QoLFriendRegActivtyLimBothrScl | The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am bothered by limitations in my regular activities with friends. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20744 | Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale | PROMISSatsfyDoForFriendsScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to do things for my friends. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP165 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21278 | Quality of Life - Leisure activity limitation bother past week scale | QoLLeisureActivtyLimitnScl | The scale which represents the extent to which the participant was bothered by limitations in doing their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was bothered by limitations in doing their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am bothered by limitations in doing my hobbies or leisure activities. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20756 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale | PROMISSatsfyAbiImprtntWrkScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to do the work that is really important to me (include work at home). | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP189 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21268 | Quality of Life - Household chore satisfaction ability past week scale | QoLHoushldChoreStsfctnAbltyScl | The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am satsified with my ability to do household chores and tasks. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20745 | Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale | PROMISSatsfyAbiDoLeisrActScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to do leisure activities. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP167 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21279 | Quality of Life - Work people disappointment self-assessment past week scale | QoLWrkPplDsppntmntSlfAssmntScl | The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I feel that I am disappointing other people at work. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20757 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale | PROMISSatsfyTimeDoWorkScale | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with the amount of time I spend doing work (include work at home). | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP191 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21269 | Quality of Life - Socialize ability family disappointment past week scale | QoLScialzeAbltyFamDsppntmntScl | The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I feel that my family is disappointed in my ability to socialize with them. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20746 | Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale | PROMISSatsfyLvlActWthFrndScale | The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my current level of activities with my friends. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP169 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21280 | Quality of Life - Daily routine performance disappointment past week scale | QoLDailyRoutnPerfmDisppntntScl | The scale which represents the extent to which the participant was disappointed in their ability to perform their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to perform their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to perform my daily routines. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20759 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale | PROMISSatsfyAbiToWorkScale | The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to work (include work at home). | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP195 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21270 | Quality of Life - Family need disappointment past week scale | QoLFamilyNeedDisappointmentScl | The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their family in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to meet the needs of my family. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20747 | Patient-Reported Outcome Measurement Information System (PROMIS) - Outside home fun ability satisfaction past week scale | PROMISSatsfyDoFunOutHomeScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to do things for fun outside my home. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP171 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21281 | Quality of Life - Work home ability disappointment past week scale | QoLWorkHomeAbltyDisappntmntScl | The scale which represents the extent to which the participant was disappointed by their ability to work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed by their ability to work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to work (include work at home). | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20761 | Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale | PROMISSatsfySpendDayRoutnScale | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with the amount of time I spend performing my daily routines. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP199 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21271 | Quality of Life - Family member activity level satisfaction past week scale | QoLFamMembrActvtyLvlStsfctnScl | The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am satisfied with my current level of activity with family members. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20749 | Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship participation happiness past week scale | PROMISHpyHowMuchDidFrndsScale | The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am happy with how much I do for my friends. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP175 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21282 | Quality of Life - Daily routine limitation bother past week scale | QoLDailyRoutnLimitnBotherScl | The scale which represents the extent to which the participant was bothered by limitations in performing their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was bothered by limitations in performing their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am bothered by limitations in performing my daily routines. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20767 | Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale | PROMISSatsfyAbiDoDayRoutnScale | The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to perform my daily routines. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP205 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21272 | Quality of Life - Socialize ability friend disappointment self-assessment past week scale | QoLSocialzAbltyFrndDsppntmtScl | The scale which represents the extent to which the participant felt that their friends were disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant felt that their friends were disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I feel that my friends are disappointed in my ability to socialize with them. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20750 | Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale | PROMISSatsfyTimeVisitFrndScale | The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with the amount of time I spend visiting friends. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP177 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21283 | Quality of Life - Personal responsibility care ability disappointment past week scale | QoLPrsnlRspnbltyCreAbltyDspScl | The scale which represents the extent to which the participant was disappointed in their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to take care of personal and household responsibilities. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20769 | Patient-Reported Outcome Measurement Information System (PROMIS) - Dependability assistance ability satisfaction past week scale | PROMISSatsfyAbiMeetNeedsScale | The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to meet the needs of those who depend on me. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP207 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21273 | Quality of Life - Friendship action ability disappointment past week scale | QoLFrdshpActnAbltyDsppntmntScl | The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to do things for my friends. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20751 | Patient-Reported Outcome Measurement Information System (PROMIS) - Home fun ability satisfaction past week scale | PROMISSatsfyAbiFunAtHomeScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to do things for fun at home (like reading, listening to music, etc.) | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP179 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21284 | Quality of Life - Work home limitation bother past week scale | QoLWorkHomeLimitationBotherScl | The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am bothered by limitations in performing my work (include work at home). | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20771 | Patient-Reported Outcome Measurement Information System (PROMIS) - Errand performance ability satisfaction past week scale | PROMISSatsfyAbiRunErrandsScale | The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to run errands. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP209 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21274 | Quality of Life - Friend socialize ability disappointment past week scale | QoLFriendSoclzAbilityDisappScl | The scale which represents the extent to which the participant was disappointed in their ability to socialize with their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to socialize with their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to socialize with my friends. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20752 | Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity complete important ability satisfaction past week scale | PROMISSatsfyAbiLeisureActScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the PROMIS | In the past 7 days I am satisfied with my ability to do all of the leisure activities that are really important to me. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP181 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21285 | Quality of Life - Personal responsibility care ability satisfaction past week scale | QoLPrsnlRpnbltyCarAbltySftnScl | The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am satisfied with my ability to take care of personal and household responsibilities. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21264 | Quality of Life - Family regular activity limitation bother past week scale | QoLFamRegActvtyLimtnBotherScl | The scale which represents the extent to which the participant was bothered by their limitations in regular family activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was bothered by their limitations in regular family activities in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am bothered by my limitations in regular family activities. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20741 | Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale | PROMISSatsfyLeisureTimeScale | The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with the amount of time I spend doing leisure activities | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP159 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21275 | Quality of Life - Social communication maintain ability disappointment past week scale | QoLSoclCmmctnMaintDsppntmntScl | The scale which represents the extent to which the participant was disappointed in their ability to keep in touch with others in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to keep in touch with others in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to keep in touch with others. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20753 | Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale | PROMISSatsfyAbiDoForFamlyScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my ability to do things for my family. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP183 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21286 | Quality of Life - Work ability satisfication past week scale | QoLWorkAbilitySatisfactionScl | The scale which represents the extent to which the participant was satisfied with their ability to work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was satisfied with their ability to work in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am satisfied with my ability to work. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21265 | Quality of Life - Friend need ability disappointment past week scale | QoLFriendNeedAbilityDisappScl | The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I am disappointed in my ability to meet the needs of my friends. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C20742 | Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale | PROMISSatsfyLvlSocActvtyScale | The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) | The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS | In the past 7 days I am satisfied with my current level of social activity. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP161 | Adult;Pediatric | Supplemental | 1.00 | 2015-05-20 17:07:03.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21276 | Quality of Life - Community activity ability other people disappointment self-assessment past week scale | QoLCommActivityAbilityDisapScl | The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA | The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SR | In the past 7 days I feel that others are disappointed in my ability to do community activities. | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values |
Part of Neuro-QOL Adult Bank - Satisfaction with SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Satisfaction with SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
