CDE Detailed Report

Disease: content
Sub-Domain: NIH Resources
CRF: welcome

Displaying 1 - 45 of 45
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C21285 Quality of Life - Personal responsibility care ability satisfaction past week scale QoLPrsnlRpnbltyCarAbltySftnScl The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am satisfied with my ability to take care of personal and household responsibilities. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20752 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity complete important ability satisfaction past week scale PROMISSatsfyAbiLeisureActScale The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the PROMIS In the past 7 days I am satisfied with my ability to do all of the leisure activities that are really important to me. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP181 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21264 Quality of Life - Family regular activity limitation bother past week scale QoLFamRegActvtyLimtnBotherScl The scale which represents the extent to which the participant was bothered by their limitations in regular family activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was bothered by their limitations in regular family activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am bothered by my limitations in regular family activities. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21275 Quality of Life - Social communication maintain ability disappointment past week scale QoLSoclCmmctnMaintDsppntmntScl The scale which represents the extent to which the participant was disappointed in their ability to keep in touch with others in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to keep in touch with others in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to keep in touch with others. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20741 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale PROMISSatsfyLeisureTimeScale The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend doing leisure activities 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP159 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21286 Quality of Life - Work ability satisfication past week scale QoLWorkAbilitySatisfactionScl The scale which represents the extent to which the participant was satisfied with their ability to work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was satisfied with their ability to work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am satisfied with my ability to work. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20753 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale PROMISSatsfyAbiDoForFamlyScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for my family. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP183 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21265 Quality of Life - Friend need ability disappointment past week scale QoLFriendNeedAbilityDisappScl The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to meet the needs of my friends. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21276 Quality of Life - Community activity ability other people disappointment self-assessment past week scale QoLCommActivityAbilityDisapScl The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I feel that others are disappointed in my ability to do community activities. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20742 Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale PROMISSatsfyLvlSocActvtyScale The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my current level of social activity. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP161 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21287 Quality of Life - Work performance limitation bother past week scale QoLWrkPerfmncLimitatnBothrScl The scale which represents the extent to which the participant was bothered by limitations in performing their work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was bothered by limitations in performing their work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am bothered by limitations in performing my work. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20754 Patient-Reported Outcome Measurement Information System (PROMIS) - Work amount satisfaction past week scale PROMISSatsfyHowMuchWorkScale The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with how much work I can do (include work at home). 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP185 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21266 Quality of Life - Family socialize ability disappointment past week scale QoLFamSoclizAbltyDisppntmntScl The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to socialize with my family. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21277 Quality of Life - Leisure activity ability disappointment past week scale QoLLeisrActvtyAbltDsppntmntScl The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to do leisure activities. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20743 Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale PROMISSatsfyCommunityActScale The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do the community activities that are important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do all of the community activities that are really important to me. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP163 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20755 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale PROMISFltGoodAbiDoForFamScale The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I feel good about my ability to do things for my family. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP187 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21267 Quality of Life - Friend regular activity limitation bother past week scale QoLFriendRegActivtyLimBothrScl The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am bothered by limitations in my regular activities with friends. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21278 Quality of Life - Leisure activity limitation bother past week scale QoLLeisureActivtyLimitnScl The scale which represents the extent to which the participant was bothered by limitations in doing their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was bothered by limitations in doing their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am bothered by limitations in doing my hobbies or leisure activities. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20744 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale PROMISSatsfyDoForFriendsScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for my friends. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP165 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20756 Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale PROMISSatsfyAbiImprtntWrkScale The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do the work that is really important to me (include work at home). 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP189 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21268 Quality of Life - Household chore satisfaction ability past week scale QoLHoushldChoreStsfctnAbltyScl The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am satsified with my ability to do household chores and tasks. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21279 Quality of Life - Work people disappointment self-assessment past week scale QoLWrkPplDsppntmntSlfAssmntScl The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I feel that I am disappointing other people at work. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20745 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale PROMISSatsfyAbiDoLeisrActScale The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do leisure activities. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP167 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20757 Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale PROMISSatsfyTimeDoWorkScale The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend doing work (include work at home). 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP191 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21269 Quality of Life - Socialize ability family disappointment past week scale QoLScialzeAbltyFamDsppntmntScl The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I feel that my family is disappointed in my ability to socialize with them. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21280 Quality of Life - Daily routine performance disappointment past week scale QoLDailyRoutnPerfmDisppntntScl The scale which represents the extent to which the participant was disappointed in their ability to perform their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to perform their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to perform my daily routines. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20746 Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale PROMISSatsfyLvlActWthFrndScale The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my current level of activities with my friends. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP169 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20759 Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale PROMISSatsfyAbiToWorkScale The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to work (include work at home). 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP195 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21270 Quality of Life - Family need disappointment past week scale QoLFamilyNeedDisappointmentScl The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to meet the needs of my family. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21281 Quality of Life - Work home ability disappointment past week scale QoLWorkHomeAbltyDisappntmntScl The scale which represents the extent to which the participant was disappointed by their ability to work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed by their ability to work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to work (include work at home). 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20747 Patient-Reported Outcome Measurement Information System (PROMIS) - Outside home fun ability satisfaction past week scale PROMISSatsfyDoFunOutHomeScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for fun outside my home. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP171 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20761 Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale PROMISSatsfySpendDayRoutnScale The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend performing my daily routines. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP199 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21271 Quality of Life - Family member activity level satisfaction past week scale QoLFamMembrActvtyLvlStsfctnScl The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am satisfied with my current level of activity with family members. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21282 Quality of Life - Daily routine limitation bother past week scale QoLDailyRoutnLimitnBotherScl The scale which represents the extent to which the participant was bothered by limitations in performing their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was bothered by limitations in performing their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am bothered by limitations in performing my daily routines. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20749 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship participation happiness past week scale PROMISHpyHowMuchDidFrndsScale The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am happy with how much I do for my friends. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP175 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20767 Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale PROMISSatsfyAbiDoDayRoutnScale The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to perform my daily routines. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP205 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21272 Quality of Life - Socialize ability friend disappointment self-assessment past week scale QoLSocialzAbltyFrndDsppntmtScl The scale which represents the extent to which the participant felt that their friends were disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant felt that their friends were disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I feel that my friends are disappointed in my ability to socialize with them. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21283 Quality of Life - Personal responsibility care ability disappointment past week scale QoLPrsnlRspnbltyCreAbltyDspScl The scale which represents the extent to which the participant was disappointed in their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to take care of personal and household responsibilities. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20750 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale PROMISSatsfyTimeVisitFrndScale The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend visiting friends. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP177 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20769 Patient-Reported Outcome Measurement Information System (PROMIS) - Dependability assistance ability satisfaction past week scale PROMISSatsfyAbiMeetNeedsScale The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to meet the needs of those who depend on me. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP207 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21273 Quality of Life - Friendship action ability disappointment past week scale QoLFrdshpActnAbltyDsppntmntScl The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to do things for my friends. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21284 Quality of Life - Work home limitation bother past week scale QoLWorkHomeLimitationBotherScl The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am bothered by limitations in performing my work (include work at home). 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20751 Patient-Reported Outcome Measurement Information System (PROMIS) - Home fun ability satisfaction past week scale PROMISSatsfyAbiFunAtHomeScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for fun at home (like reading, listening to music, etc.) 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP179 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20771 Patient-Reported Outcome Measurement Information System (PROMIS) - Errand performance ability satisfaction past week scale PROMISSatsfyAbiRunErrandsScale The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to run errands. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP209 Adult;Pediatric Supplemental 1.00 2015-05-20 17:07:03.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21274 Quality of Life - Friend socialize ability disappointment past week scale QoLFriendSoclzAbilityDisappScl The scale which represents the extent to which the participant was disappointed in their ability to socialize with their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. The scale which represents the extent to which the participant was disappointed in their ability to socialize with their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA. In the past 7 days I am disappointed in my ability to socialize with my friends. 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values

Part of Neuro-QOL Adult Bank - Satisfaction with SRA

Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Satisfaction with SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

CSV