CDE Detailed Report

Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome

Displaying 1 - 23 of 23
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C21253 Quality of Life - Satisfaction relax recent assessment scale QoLStsfctnRelaxRecntAssmntScl The scale representing how often the participant was able to be at ease and feel relaxed lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant was able to be at ease and feel relaxed lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I was able to be at ease and feel relaxed. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21243 Quality of Life - Satisfication general life recent assessment scale QoLSatisfGenLifRcntAssmntScl The scale representing how often the participant felt their life was satisfying lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt their life was satisfying lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately my life was satisfying. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21254 Quality of Life - Satisfaction future event interest recent assessment scale QoLStsfcnFutrEvntRcntAssmntScl The scale representing how often the participant looked forward with enjoyment to upcoming events lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant looked forward with enjoyment to upcoming events lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I looked forward with enjoyment to upcoming events. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21244 Quality of Life - Satisfaction life purpose recent assessment scale QoLStsfctnLfePurpsRcntAssmtScl The scale representing how often the participant felt their life had purpose lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt their life had purpose lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately my life had purpose. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21255 Quality of Life - Satisfaction emotion stable recent assessment scale QoLStsfctnEmtnStblRcntAssmtScl The scale representing how often the participant felt emotionally stable lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt emotionally stable lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I felt emotionally stable. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21245 Quality of Life - Satisfaction life significance recent assessment scale QoLStsfctnLfeSgnfRcntAssmntScl The scale representing how often the participant felt their life had meaning lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt their life had meaning lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately my life had meaning. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21256 Quality of Life - Satisfaction lovable recent assessment scale QoLStsfctnLovbleRecntAssmntScl The scale representing how often the participant felt lovable lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt lovable lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I felt lovable. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21246 Quality of Life - Satisfaction cheerful recent assessment scale QoLStsfctnCheerflRcntAssmntScl The scale representing how often the participant felt cheerful lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt cheerful lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I felt cheerful. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21257 Quality of Life - Satisfaction confident recent assessment scale QoLSatisfConfdntRecntAssmntScl The scale representing how often the participant felt confident lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt confident lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I felt confident. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21247 Quality of Life - Satisfaction life functional recent assessment scale QoLStsfcnLfeFunctRcntAssmntScl The scale representing how often the participant felt their life was worth living lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt their life was worth living lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately my life was worth living. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21258 Quality of Life - Satisfaction good life recent assessment scale QoLStsfctnGoodLfeRcntAssmntScl The scale representing how often the participant had a good life, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant had a good life, as part of Neuro-QOL Positive Affect and Well-Bein Lately I had a good life. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21248 Quality of Life - Satisfaction life balance sense recent assessment scale QoLStsfctnLfeBlncRcntAssmntScl The scale representing how often the participant had a sense of balance in their life lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant had a sense of balance in their life lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I had a sense of balance in my life. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21259 Quality of Life - Satisfaction peaceful life recent assessment scale QoLStsfctnPeacLfeRcntAssmntScl The scale representing how often the participant felt their life was peaceful lately, as par of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt their life was peaceful lately, as par of Neuro-QOL Positive Affect and Well-Bein Lately my life was peaceful. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21249 Quality of Life - Satisfaction life many area interest recent assessment scale QoLStsfctnLfeAreaRcntAssmntScl The scale representing how often the participant was interested in many areas of their life lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant was interested in many areas of their life lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately many areas of my life were interesting to me. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21260 Quality of Life - Satisfaction live life fully recent assessment scale QoLStsfctnLivFullRcntAssmntScl The scale representing how often the participant felt they were living life to the fullest lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt they were living life to the fullest lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I was living life to the fullest. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21250 Quality of Life - Satisfaction life enjoyment ability recent assessment scale QoLStsfctnLfeEnjyRcntAssmntScl The scale representing how often the participant was able to enjoy life lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant was able to enjoy life lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I was able to enjoy life. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21261 Quality of Life - Satisfaction close ideal life recent assessment scale QoLStsfctnIdlLfeRcntAssmntScl The scale representing how often the participant felt in most ways their life was close to their ideal lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt in most ways their life was close to their ideal lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately in most ways my life was close to my ideal. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21251 Quality of Life - Satisfaction life purpose recent assesment scale QoLStsfctnLfePurpRcntAssmntScl The scale representing how often the participant felt a sense of purpose in their life lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt a sense of purpose in their life lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I felt a sense of purpose in my life. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21262 Quality of Life - Satisfaction good thought control recent assessment scale QoLStsfctnGoodThouRcntAssmtScl The scale representing how often the participant had good control of their thoughts lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant had good control of their thoughts lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I had good control of my thoughts. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21241 Quality of Life - Satisfaction well being recent asssement scale QoLSatisfWellBngRcntAssmntScl The scale representing how often the participant had a sense of well-being lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant had a sense of well-being lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I had a sense of well-being. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21252 Quality of Life - Satisfaction laugh humor recent assessment scale QoLStsfctnLghHmrRcntAssmntScl The scale representing how often the participant could laugh and see the humor in situations lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant could laugh and see the humor in situations lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I could laugh and see the humor in situations. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21263 Quality of Life - Satisfaction hope during bad episode recent assessment scale QoLStsfctnBadEpsdRcntAssmntScl The scale representing how often the participant still had hope even when things were going badly lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant still had hope even when things were going badly lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately even when things were going badly, I still had hope. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21242 Quality of Life - Satisfaction hopeful recent assessment scale QoLSatisfHopfulRcntAssmntScl The scale representing how often the participant felt hopeful lately, as part of Neuro-QOL Positive Affect and Well-Being The scale representing how often the participant felt hopeful lately, as part of Neuro-QOL Positive Affect and Well-Bein Lately I felt hopeful. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Positive Affect and Well-Being

 Adult;Pediatric Supplemental 1.00 2015-07-17 09:23:23.0 Neuro-QOL Adult Bank - Positive Affect and Well-Being Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
CSV