CDE Detailed Report
Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 19 of 19
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 19 of 19
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C21318 | Quality of Life - Movement up down step curb ability scale | QolMoveUpDownStepCurbAbltyScl | The scale which represents the extent to which the participant was able to step up and down curbs, as part of Neuro-QOL Lower Extremity Function | The scale which represents the extent to which the participant was able to step up and down curbs, as part of Neuro-QOL Lower Extremity Functio | Are you able to step up and down curbs? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21329 | Quality of Life - Movement flight stair handrail up down difficulty scale | QolMoveFlghtStrUpDwnDiffScl | The scale which represents the amount of difficulty the participant currently has in going up and down a flight of stairs inside, using a handrail, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in going up and down a flight of stairs inside, using a handrail, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have going up and down a flight of stairs inside, using a handrail? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21319 | Quality of Life - Movement in out car ability scale | QolMoveInOutCarAbilityScl | The scale which represents the extent to which the participant was able to get in and out of the car, as part of Neuro-QOL Lower Extremity Function | The scale which represents the extent to which the participant was able to get in and out of the car, as part of Neuro-QOL Lower Extremity Functio | Are you able to get in and out of a car? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21330 | Quality of Life - Movement uneven surface walk difficulty scale | QolMoveUnevenSrfaceWlkDiffScl | The scale which represents the amount of difficulty the participant currently has in walking on uneven surfaces (e.g., grass, dirt road or sidewalk), as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in walking on uneven surfaces (e.g., grass, dirt road or sidewalk), as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have walking on uneven surfaces (e.g., grass, dirt road or sidewalk)? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21320 | Quality of Life - Movement bed chair ability scale | QolMoveBedChairAbilityScl | The scale which represents the extent to which the participant was able to get out of bed into a chair, as part of Neuro-QOL Lower Extremity Function | The scale which represents the extent to which the participant was able to get out of bed into a chair, as part of Neuro-QOL Lower Extremity Functio | Are you able to get out of bed into a chair? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21331 | Quality of Life - Movement single floor walk difficulty scale | QolMoveSingleFloorWalkDiffScl | The scale which represents the amount of difficulty the participant currently has in walking around one floor of their home, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in walking around one floor of their home, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have walking around one floor of your home? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21321 | Quality of Life - Movement push open heavy door ability scale | QolMovePshOpnHvyDoorAblityScl | The scale which represents the extent to which the participant was able to push open a heavy door, as part of Neuro-QOL Lower Extremity Function | The scale which represents the extent to which the participant was able to push open a heavy door, as part of Neuro-QOL Lower Extremity Functio | Are you able to push open a heavy door? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21322 | Quality of Life - Movement errand shop ability scale | QolMoveErrandShopAbilityScl | The scale which represents the extent to which the participant was able to run errands and shop, as part of Neuro-QOL Lower Extremity Function | The scale which represents the extent to which the participant was able to run errands and shop, as part of Neuro-QOL Lower Extremity Functio | Are you able to run errands and shop? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21323 | Quality of Life - Movement without assistance floor stand ability scale | QolMoveWthoutAsstnFlrAbltyScl | The scale which represents the extent to which the participant was able to get up off the floor from lying on their back without help, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility | The scale which represents the extent to which the participant was able to get up off the floor from lying on their back without help, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobilit | Are you able to get up off the floor from lying on your back without help? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21237 | Quality of Life - Movement twenty minute duration brisk walk difficulty scale | QoLMoveTwtyMnDrtnBrskWkDiffScl | The scale which represents the amount of difficulty the participant currently has in taking a 20-minute brisk walk, without stopping to rest, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in taking a 20-minute brisk walk, without stopping to rest, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have taking a 20-minute brisk walk, without stopping to rest? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21324 | Quality of Life - Movement walk fifteen minute duration ability scale | QolMoveWlkFftnMinDurAbltyScl | The scale which represents the extent to which the participant was able to go for a walk of at least 15 minutes, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility | The scale which represents the extent to which the participant was able to go for a walk of at least 15 minutes, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobilit | Are you able to go for a walk of at least 15 minutes? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21238 | Quality of Life - Movement outdoor slippery surface walk difficulty scale | QoLMoveOutdrSlprySrfcWkDiffScl | The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have walking on a slippery surface, outdoors? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21325 | Quality of Life - Movement armless straight chair stand up difficulty scale | QoLMoveArmlssStrghtChrAbltyScl | The scale which represents the amount of difficulty the participant currently has in standing up from an armless straight chair (e.g., dining room chair), as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in standing up from an armless straight chair (e.g., dining room chair), as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have standing up from an armless straight chair (e.g., dining room chair)? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21239 | Quality of Life - Movement no handrail stair climb difficulty scale | QoLMoveNoHandrlStrClmbDiffScl | The scale which represents the amount of difficulty the participant currently has in climbing stairs step over step without a handrail (alternating feet), as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in climbing stairs step over step without a handrail (alternating feet), as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have climbing stairs step over step without a handrail? (alternating feet)? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21326 | Quality of Life - Movement chair sit stand difficulty scale | QolMoveChrSitStndDifAbltyScl | The scale which represents the amount of difficulty the participant currently has in sitting down on and standing up from a chair with arms, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in sitting down on and standing up from a chair with arms, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have stitting down on and standing up from a chair with arms? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21240 | Quality of Life - Movement dark room no fall walk difficulty scale | QoLMoveDrkRmNoFallWalkDiffScl | The scale which represents the amount of difficulty the participant currently has in walking in a dark room without falling, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in walking in a dark room without falling, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have walking in a dark room without falling? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21327 | Quality of Life - Movement bed sit lay down difficulty scale | QolMoveBedSitLayDownDiffScl | The scale which represents the amount of difficulty the participant currently has in moving from sitting at the side of the bed to lying down on their back, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in moving from sitting at the side of the bed to lying down on their back, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have moving from sitting at the side of the bed to lying down on your back? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21317 | Quality of Life - Movement sit stand toilet seat scale | QoLMoveSitStndToiletSeatScl | The scale which represents the extent to which the participant was able to get on and off the toilet, as part of Neuro-QOL Lower Extremity Function | The scale which represents the extent to which the participant was able to get on and off the toilet, as part of Neuro-QOL Lower Extremity Functio | Are you able to get on and off the toilet? | 5;4;3;2;1 | Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21328 | Quality of Life - Movement low soft couch stand difficulty scale | QoLMoveLowSoftCouchStndDiffScl | The scale which represents the amount of difficulty the participant currently has in standing up from a low, soft couch, as part of Neuro-QOL Lower Extremity Function | The scale which represents the amount of difficulty the participant currently has in standing up from a low, soft couch, as part of Neuro-QOL Lower Extremity Functio | How much DIFFICULTY do you currently have standing up from a low, soft couch? | 5;4;3;2;1 | No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do | Numeric Values |
Part of Neuro-QOL Adult Bank - Lower Extremity Function |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-17 09:23:23.0 | Neuro-QOL Adult Bank - Lower Extremity Function | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
