CDE Detailed Report

Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome

Displaying 1 - 24 of 24
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C20690 Quality of Life - Worthlessness assessment past week scale PROMISFeltWorthlessScale The scale which represents how often the participant felt worthless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt worthless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt worthless. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP04 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20730 Quality of Life - Unhappiness assessment past week scale PROMISFeltUnhappyScale The scale which represents how often the participant felt unhappy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt unhappy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt unhappy. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP22 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21235 Quality of Life - Depression help need past week scale QoLDepressionHelpNeedScl The scale representing how often the participant felt like they needeed help for their depression in the past 7 days, as part of Neuro-QOL Depression Adult Bank The scale representing how often the participant felt like they needeed help for their depression in the past 7 days, as part of Neuro-QOL Depression Adult Ban In the past 7 days I felt like I needed help for my depression. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20691 Quality of Life - Nothing interest future assessment past week scale PROMISNothingLookForwardScale The scale which represents how often the participant felt that he/she had nothing to look forward to in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt that he/she had nothing to look forward to in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt that I had nothing to look forward to. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP05 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20731 Quality of Life - Life no reason assessment past week scale PROMISFltNoReasnForLivingScale The scale which represents how often the participant felt he/she had no reason for living in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt he/she had no reason for living in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt I had no reason for living. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP23 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21236 Quality of Life - Enjoyment trouble past week scale QoLEnjoymentTroubleScl The scale representing how often the participant had trouble enjoying things that they used to enjoy in the past 7 days, as part of Neuro-QOL Depression Adult Bank The scale representing how often the participant had trouble enjoying things that they used to enjoy in the past 7 days, as part of Neuro-QOL Depression Adult Ban In the past 7 days I had trouble enjoying things that I used to enjoy. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20692 Quality of Life - Helplessness assessment past week scale PROMISFeltHelplessScale The scale which represents how often the participant felt helpless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt helpless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt helpless. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP06 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20732 Quality of Life - Hopelessness assessment past week scale PROMISFeltHopelessScale The scale which represents how often the participant felt hopeless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt hopeless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt hopeless. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP24 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20693 Quality of Life - Other people withdrawal assessment past week scale PROMISWithdrewFromOthPplScale The scale which represents how often the participant withdrew from other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant withdrew from other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I withdrew from other people. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP07 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20735 Quality of Life - Nothing interest assessment past week scale PROMISNothngWsInterestingScale The scale which represents how often the participant felt that nothing was interesting in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt that nothing was interesting in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt that nothing was interesting. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP27 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20694 Quality of Life - Nothing happy assessment past week scale PROMISNothingCheersMeUpScale The scale which represents how often the participant felt that nothing could cheer him up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt that nothing could cheer him up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt that nothing could cheer me up. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP08 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20736 Quality of Life - Pessimism assessment past week scale PROMISFeltPessimisticScale The scale which represents how often the participant felt pessimistic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt pessimistic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt pessimistic. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP28 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20696 Quality of Life - Sadness assessment past week scale PROMISFeltSadScale The scale which represents how often the participant felt sad in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt sad in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt sad. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP10 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20737 Quality of Life - Life empty assessment past week scale PROMISFeltLifeWasEmptyScale The scale which represents how often the participant felt that life was empty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt that life was empty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt that my life was empty. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP29 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20697 Quality of Life - Hope loss assessment past week scale PROMISWantGivUpOnEvrythngScale The scale which represents how often the participant wanted to give up on everything in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant wanted to give up on everything in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt that I wanted to give up on everything. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP11 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20739 Quality of Life - Emotional exhaustion assessment past week scale PROMISFeltEmotExhaustedScale The scale which represents how often the participant felt emotionally exhausted in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt emotionally exhausted in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt emotionally exhausted. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP31 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20704 Quality of Life - Loneliness assessment past week scale PROMISFeltLonelyScale The scale which represents how often the participant felt lonely in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt lonely in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt lonely. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP17 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21231 Quality of Life - Everything extra effort complete past week scale QoLEverythExtrEffrtCompltScl The scale representing how often the participant felt that everything they did was an effort in the past 7 days, as part of Neuro-QOL Depression The scale representing how often the participant felt that everything they did was an effort in the past 7 days, as part of Neuro-QOL Depressio In the past 7 days I felt that everything I did was an effort. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20705 Quality of Life - Depression assessment past week scale PROMISFeltDepressedScale The scale which represents how often the participant felt depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt depressed. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP18 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21232 Quality of Life - Mistake self critical past week scale QoLMistakeSelfCriticalScl The scale representing how often the participant was critical of himself/herself for their mistakes in the past 7 days, as part of Neuro-QOL Depression The scale representing how often the participant was critical of himself/herself for their mistakes in the past 7 days, as part of Neuro-QOL Depressio In the past 7 days I was critical of myself for my mistakes. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20728 Quality of Life - Discouragement future assessment past week scale PROMISDiscouragdAbtFutureScale The scale which represents how often the participant felt discouraged about the future in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant felt discouraged about the future in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I felt discouraged about the future. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP20 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21233 Quality of Life - Feel unloved past week scale QoLFeltUnlovedScl The scale representing how often the participant felt unloved in the past 7 days, as part of Neuro-QOL Depression The scale representing how often the participant felt unloved in the past 7 days, as part of Neuro-QOL Depressio In the past 7 days I felt unloved. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20729 Quality of Life - Overwhelm life assessment past week scale PROMISLifeThingsOverwhelmScale The scale which represents how often the participant found that things in life were overwhelming in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression The scale which represents how often the participant found that things in life were overwhelming in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depressio In the past 7 days I found that things in my life were overwhelming. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP21 Adult;Pediatric Supplemental 1.00 2015-05-20 14:29:32.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21234 Quality of Life - Maintain task thought trouble past week scale QoLMntainTaskThoughtTroublScl The scale representing how often the participant had trouble keeping their mind on what they were doing in the past 7 days, as part of Neuro-QOL Depression The scale representing how often the participant had trouble keeping their mind on what they were doing in the past 7 days, as part of Neuro-QOL Depressio In the past 7 days I had trouble keeping my mind on what I was doing. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Depression

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Depression Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
CSV