CDE Detailed Report
Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 5 of 5
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 5 of 5
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C21228 | Quality of Life - Conversation familiar people difficulty scale | QoLConverstnFamiliarPplDiffScl | The scale which represents the amount of difficulty the participant currently has in carrying on a conversation with a small group of familiar people (e.g., family or a few friends), as part of Neuro-QOL Communication | The scale which represents the amount of difficulty the participant currently has in carrying on a conversation with a small group of familiar people (e.g., family or a few friends), as part of Neuro-QOL Communicatio | How much DIFFICULTY do you currently have carrying on a conversation with a small group of familiar people (e.g., family or a few friends)? | 5;4;3;2;1 | None;A little;Somewhat;A lot;Cannot do | Numeric Values |
Part of Neuro-QOL Adult Bank - Communication |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Communication | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21229 | Quality of Life - Verbal communication organization difficulty scale | QoLVerblCommnctnOrgnztnDiffScl | The scale which represents the amount of difficulty the participant currently has in organizing what they want to say, as part of Neuro-QOL Communication | The scale which represents the amount of difficulty the participant currently has in organizing what they want to say, as part of Neuro-QOL Communicatio | How much DIFFICULTY do you currently have organizing what you want to say? | 5;4;3;2;1 | None;A little;Somewhat;A lot;Cannot do | Numeric Values |
Part of Neuro-QOL Adult Bank - Communication |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Communication | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21230 | Quality of Life - Clear telephone speech difficulty scale | QoLClearTlphoneSpeechDiffScl | The scale which represents the amount of difficulty the participant currently has in speaking clearly enough to use the telephone, as part of Neuro-QOL Communication | The scale which represents the amount of difficulty the participant currently has in speaking clearly enough to use the telephone, as part of Neuro-QOL Communicatio | How much DIFFICULTY do you currently have speaking clearly enough to use the telephone? | 5;4;3;2;1 | None;A little;Somewhat;A lot;Cannot do | Numeric Values |
Part of Neuro-QOL Adult Bank - Communication |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Communication | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21226 | Quality of Life - Write task list difficulty scale | QoLWriteTaskListDiffScl | The scale which represents the amount of difficulty the participant currently has in writing notes to himself/herself or 'to do' lists, as part of Neuro-QOL Communication | The scale which represents the amount of difficulty the participant currently has in writing notes to himself/herself or 'to do' lists, as part of Neuro-QOL Communicatio | How much DIFFICULTY do you currently have writing notes to yourself or 'to do' lists? | 5;4;3;2;1 | None;A little;Somewhat;A lot;Cannot do | Numeric Values |
Part of Neuro-QOL Adult Bank - Communication |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Communication | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21227 | Quality of Life - Family friend phone understand difficulty scale | QoLFamFrndPhneUndrstndDiffScl | The scale which represents the amount of difficulty the participant currently has in understanding family and friends over the phone, as part of Neuro-QOL Communication | The scale which represents the amount of difficulty the participant currently has in understanding family and friends over the phone, as part of Neuro-QOL Communicatio | How much DIFFICULTY do you currently have understanding family and friends on the phone? | 5;4;3;2;1 | None;A little;Somewhat;A lot;Cannot do | Numeric Values |
Part of Neuro-QOL Adult Bank - Communication |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Communication | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
