CDE Detailed Report

Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome

Displaying 1 - 21 of 21
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C20787 Quality of Life - Nervousness assessment past week scale PROMISFeltNrvousScale The scale which represents how often the participant felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt nervous. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX22 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21196 Quality of Life - Death worry past week scale QoLDeathWorryScl The scale representing how often the participant worried about dying in the past 7 days, as part of Neuro-QOL Anxiety The scale representing how often the participant worried about dying in the past 7 days, as part of Neuro-QOL Anxiet In the past 7 days I worried about dying. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20789 Quality of Life - Worry many situation assessment past week scale PROMISManySitsMadeWorryScale The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days many situations made me worry. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX24 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21197 Quality of Life - Shyness assessment past week scale QoLShynessAssessmentScl The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiety The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiet In the past 7 days I felt shy. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20790 Quality of Life - Sleep difficultly assessment past week scale PROMISDifficultySleepingScale The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I had difficulty sleeping. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX25 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20766 Quality of Life - Anxiousness assessment past week scale PROMISFeltAnxiousScale The scale which represents how often the participant felt anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt anxious. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX04 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20791 Quality of Life - Relax trouble assessment past week scale PROMISTroubleRelaxingScore The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I had trouble relaxing. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX26 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20768 Quality of Life - Anxiety assistance assessment past week scale PROMISFltHlpNeedFrAnxietyScale The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt like I needed help for my anxiety. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX05 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20792 Quality of Life - Uneasiness assessment past week scale PROMISFeltUneasyScale The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt uneasy. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX27 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20775 Quality of Life - Sudden panic assessment past week scale PROMISSuddenFeelingsOfPncScale The scale which represents how often the participant had sudden feelings of panic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant had sudden feelings of panic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I had sudden feelings of panic. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX10 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20793 Quality of Life - Tension assessment past week scale PROMISFeltTenseScale The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt tense. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX28 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20776 Quality of Life - Startle ease assessment past week scale PROMISEasilyStartledScale The scale which represents how often the participant was easily startled in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant was easily startled in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I was easily startled. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX11 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20794 Quality of Life - Calmness difficulty assessment past week scale PROMISDifficultyCalmDownScale The scale which represents how often the participant had difficulty calming down in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant had difficulty calming down in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I had difficulty calming down. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX29 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20779 Quality of Life - Fidgety assessment past week scale PROMISFeltFidgetyScale The scale which represents how often the participant felt fidgety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt fidgety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt fidgety. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX14 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21192 Quality of Life - Normal routine disturbance nervousness past week scale QoLNrmRoutnDisturbncNrvsnssScl The scale representing how often the participant felt nervous when their normal routine was disturbed in the past 7 days, as part of Neuro-QOL Anxiety The scale representing how often the participant felt nervous when their normal routine was disturbed in the past 7 days, as part of Neuro-QOL Anxiet In the past 7 days I felt nervous when my normal routine was disturbed. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20780 Quality of Life - Fear terrible future occurrence past week scale PROMISSomethingAwflHappenScale The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt something awful would happen. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX15 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21193 Quality of Life - Future fear assessment past week scale QoLFutureFearAssessmentScl The scale representing how often the participant felt fearful about their future in the past 7 days, as part of Neuro-QOL Anxiety The scale representing how often the participant felt fearful about their future in the past 7 days, as part of Neuro-QOL Anxiet In the past 7 days I felt fearful about my future. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20781 Quality of Life - Worry assessment past week scale PROMISFeltWorriedScale The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days I felt worried. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX16 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21194 Quality of Life - Physical health worry past week scale QoLPhysicalHealthWorryScl The scale which represents how often the participant worried about their physical health, as part of Neuro-QOL Anxiety The scale which represents how often the participant worried about their physical health, as part of Neuro-QOL Anxiet In the past 7 days I worried about my health. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C20785 Quality of Life - Overwhelm worry assessment past week scale PROMISWorriesOverwhelmedScale The scale which represents how often the participant's worries overwhelmed him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety The scale which represents how often the participant's worries overwhelmed him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiet In the past 7 days my worries overwhelmed me. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Anxiety EDANX20 Adult;Pediatric Supplemental 1.00 2015-05-20 17:42:14.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
C21195 Quality of Life - No reason fear assessment past week scale QoLNoReasonFearAssessmentScl The scale which represents how often the participant suddenly felt scared for no reason in the past 7 days, as part of Neuro-QOL Anxiety The scale which represents how often the participant suddenly felt scared for no reason in the past 7 days, as part of Neuro-QOL Anxiet In the past 7 days I suddenly felt scared for no reason. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Anxiety

 Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Anxiety Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected
CSV