CDE Detailed Report
Disease: content
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 45 of 45
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: welcome
Displaying 1 - 45 of 45
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C21191 | Quality of Life - Work shorter time period past week scale | QoLWorkShorterTimePeriodScl | The scale representing how often the participant had to do their work for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to do their work for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had to do their work for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21159 | Quality of Life - Friendship maintain past week scale | QoLFriendshipMaintainScl | The scale representing how often the participant was able to maintain friendships as much as they would like in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to maintain friendships as much as they would like in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to maintain my friendships as much as I would like. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21170 | Quality of Life - Leisure activity satisfactory complete past week scale | QoLExpLeisrActvStsfctCmpltScl | The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21149 | Quality of Life - Social interaction friend ability past week scale | QoLSocialInterctnFrndAbltyScl | The scale representing how often the participant was able to socialize with their friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to socialize with their friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to socialize with my friends. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21181 | Quality of Life - Work usual complete past week scale | QoLWorkUsualCompleteScl | The scale representing how often the participant was accomplishing as much as usual at work for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was accomplishing as much as usual at work for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was accomplishing as much as usual at work for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21160 | Quality of Life - Friend need satisfactory complete past week scale | QoLFriendNeedSatsfctryCmpltScl | The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21171 | Quality of Life - Hobby leisure activity decrease time period past week scale | QoLHbbyLeisrActvtyDecrseTmeScl | The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21150 | Quality of Life - Regular friend activity ability complete past week scale | QoLRegFrndActvtyAbltyCmplteScl | The scale representing how often the participant was able to do all of their regular activities with friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of their regular activities with friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to do all of my regular activities with friends. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21182 | Quality of Life - Good work ability complete past week scale | QoLGoodWorkAbilityCompleteScl | The scale representing how often the participant's ability to do their work was as good as it could be (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant's ability to do their work was as good as it could be (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant's ability to do their work was as good as it could be (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21161 | Quality of Life - Friend satisfy expectation activity ability past week scale | QoLFriendSatisfExpecAbilityScl | The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21172 | Quality of Life - Social activity outside home limit complete past week scale | QoLSocAcvtyOutsdHmeLmtCmpltScl | The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21151 | Quality of Life - Social commitment maintain past week scale | QoLSocialCommitmentMaintainScl | The scale representing how often the participant was able to keep up with their social commitments in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to keep up with their social commitments in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I can keep up with my social commitments. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21183 | Quality of Life - Work everything ability past week scale | QoLWorkEverythingAbilityScl | The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21162 | Quality of Life - Friend visit limit ability past week scale | QoLFriendVisitLimtAbilityScl | The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21173 | Quality of Life - Social communication maintanence trouble past week scale | QoLSocCommnctnMaintnceTrblScl | The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21152 | Quality of Life - Activity leisure participate past week scale | QoLActvtyLeisurPartcptScl | The scale representing how often the participant was able to participate in leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to participate in leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to participate in leisure activities. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21184 | Quality of Life - Regular chore trouble complete past week scale | QoLReglrChoreTrbleCompleteScl | The scale representing how often the participant had trouble doing their regular chores or tasks in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had trouble doing their regular chores or tasks in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had trouble doing their regular chores or tasks in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21163 | Quality of Life - Friend activity satisfactory past week scale | QoLFriendActivitySatisfactScl | The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21174 | Quality of Life - Participant leisure activity satisfactory complete past week scale | QoLLeisrActvtyStsfctryCmpltScl | The scale representing how often the participant could do all of the leisure activities that they wanted in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant could do all of the leisure activities that they wanted in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant could do all of the leisure activities that they wanted in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21153 | Quality of Life - Daily routine perform past week scale | QoLDailyRoutnPerformScl | The scale representing how often the participant was able to perform their daily routines in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to perform their daily routines in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to perform my daily routines. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21185 | Quality of Life - All work satisfactory complete past week scale | QoLAllWorkSatsfactryCmpletScl | The scale representing how often the participant was able to do all of the work that people expected of them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the work that people expected of them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of the work that people expected of them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21164 | Quality of Life - Friend visit limit time past week scale | QoLFriendVisitLimitTimeScl | The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21175 | Quality of Life - Community activity ability complete past week scale | QoLCommActivityAbilityComplScl | The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21154 | Quality of Life - Work responsibility maintain ability past week scale | QoLWrkRspnsbltyMaintnAbltyScl | The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I can keep up with my work responsibilities (include work at home). | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21186 | Quality of Life - Work home limit complete past week scale | QoLWorkHomeLimitCompleteScl | The scale representing how often the participant was limited in doing their work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was limited in doing their work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was limited in doing their work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21165 | Quality of Life - Home fun limit activity past week scale | QoLHomeFunLimitActivityScl | The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21176 | Quality of Life - Outside home entertainment want satisfication past week scale | QoLOutsdeEntrtnmntWntStfctnScl | The scale representing how often the participant was able to go out for entertainment as much as I want in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to go out for entertainment as much as I want in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to go out for entertainment as much as I want in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21155 | Quality of Life - Family need satisfaction problem past week scale | QoLFamNeedSatisfactnProblemScl | The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I have trouble meeting the needs of my family. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21187 | Quality of Life - Work home decrease time period ability past week scale | QoLWrkHmeDecreasTmeAbltyScl | The scale representing how often the participant had to do their work for shorter periods of time than usual for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to do their work for shorter periods of time than usual for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had to do their work for shorter periods of time than usual for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21166 | Quality of Life - Regular leisure activity ability complete past week scale | QoLRegLesurActvtyAbltyCmpltScl | The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21177 | Quality of Life - Outside home entertainment limit ability past week scale | QoLOutsdeHmEntrtnmtLmtAbltyScl | The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21156 | Quality of Life - Regular family activity limit ability past week scale | QoLRegFamActivtyLimitAblityScl | The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I have to limit my regular family activities. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21188 | Quality of Life - Work usual ability past week scale | QoLWorkUsualAbilityScl | The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21167 | Quality of Life - Hobby leisure activity limit complete past week scale | QoLHobbyLeisrActvtyLmtCmpltScl | The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21178 | Quality of Life - Group social activity decrease complete past week scale | QoLGrpSocActvtyDecrsCompltScl | The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21157 | Quality of Life - Family activity expectation complete past week scale | QoLFamActvtyExpctatnCompletScl | The scale representing how often the participant was able to do all of the family activities that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the family activities that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to do all of the family activities that people expect me to do. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21189 | Quality of Life - Work limit complete past week scale | QoLWorkLimitCompleteScl | The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21168 | Quality of Life - Hobby activity complete past week scale | QoLHobbyActivityCompleteScl | The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21147 | Quality of Life - Family responsibility maintain past week scale | QoLFamlyResponsbltyMaintainScl | The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I can keep up with my family responsibilities. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21179 | Quality of Life - No difficulty errand complete past week scale | QoLNoDiffcultyErrndCompleteScl | The scale representing how often the participant was able to run errands without difficulty in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to run errands without difficulty in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to run errands without difficulty in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21158 | Quality of Life - Family activity want complete past week scale | QoLFamilyActivtyWantComplScl | The scale representing how often the participant was able to do all of the family activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the family activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to do all of the family activities that I want to do. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21190 | Quality of Life - Work satisfactory complete past week scale | QoLWorkSatisfactoryCompleteScl | The scale representing how often the participant was able to do all of the work that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the work that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of the work that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21169 | Quality of Life - Community activity want complete past week scale | QoLCommActivityWantCompletScl | The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21148 | Quality of Life - Regular family activity ability past week scale | QoLRegulrFamilyActvityAbltyScl | The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | In the past 7 days I am able to do all of my regular family activities. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21180 | Quality of Life - Work usual abililty complete past week scale | QoLWorkUsualAbilityCompleteScl | The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA | The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SR | The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA |
Adult;Pediatric | Supplemental | 1.00 | 2015-07-15 16:11:38.0 | Neuro-QOL Adult Bank - Ability to Participate in SRA | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
