CDE Detailed Report
Subdomain Name: Perceived Generic and Disease-Specific Health-Related Quality of Life
CRF: welcome
Displaying 1 - 27 of 27
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C21945 | Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale | PedsQLKeepUpSchoolScl | Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL | SCHOOL FUNCTIONING: KEEPING UP SCHOOLWORK: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Keeping up with schoolwork; For all other Age Ranges: In the past month, how much of a problem has your teen had with: Keeping up with schoolwork. Standard Version: Self: In the past one month, how much of a problem has this been for you: I have trouble keeping up with my schoolwork.; Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Keeping up with schoolwork. For all other Age Ranges: In the past 7 days, how much of a problem has your teen had with: Keeping up with schoolwork. Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I have trouble keeping up with my schoolwork. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:46:11.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21959 | Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale | PedsQLSleepScl | Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL | EMOTIONAL FUNCTIONING: TROUBLE SLEEPING: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Trouble sleeping. For all other Age Ranges: In the past month, how much of a problem has your teen had with: Trouble sleeping? Standard Version: Self: In the past one month, how much of a problem has this been for you: I have trouble sleeping. Acute Version: Parent: TEEN: In the past 7 days, how often did the teen have problems with trouble sleeping? For all other Age Ranges: In the past 7 days, how often did the child have trouble sleeping? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I have trouble sleeping. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 16:00:16.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21930 | Pediatric Quality of Life Inventory (PedsQL) - Problem hurt ache scale | PedsQLAchesScl | Scale of problems with having hurts or aches, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with having hurts or aches, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: HURTS/ACHES: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Having hurts or aches; For all the other Age Ranges: In the past month, how much of a problem has your child had with: Having hurts or aches? Standard Version: Self: In the past one month, how much of a problem has this been for you : I hurt or ache. Acute Version: Parent: TEEN: In the past 7 days, how often did the teen have with having hurts or aches; For all the other Age Ranges: In the past 7 days, how often did the child/you have hurts or aches? Acute Version: Self: In the past 7 days, how much of a problem has this been for you : I hurt or ache. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-Usori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-Usori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:26:52.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21946 | Pediatric Quality of Life Inventory (PedsQL) - Problem play energy peer difficulty scale | PedsQLKeepUpScl | Scale of problems with keeping up when playing with other children, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with keeping up when playing with other children, as part of the Pediatric Quality of Life Inventory (PedsQL | SOCIAL FUNCTIONING: KEEPING UP WITH OTHERS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Keeping up with other teens; For all other Age Ranges: In the past month, how much of a problem has your child had with: Keeping up when playing with other children? Standard Version: Self: In the past one month, how much of a problem has this been for you: It is hard to keep up with my peers/when I play with other kids. Acute Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Keeping up with other teens; For all other Age Ranges: In the past month, how much of a problem has your teen had with: Keeping up with other teens? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: It is hard to keep up with my peers/when I play with other kids. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:47:16.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21960 | Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale | PedsQLSportsScl | Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: PLAYING SPORTS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Participating in sports activity or exercise; For all the other Age Ranges: In the past one month, how much of a problem has your child had with: Participating in sports activity or exercise? Standard Version: Self: In the past one month, how much of a problem has this been for you : It is hard for me to do sports activity or exercise. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Participating in sports activity or exercise; For all the other Age Ranges: In the past 7 days, how much of a problem has your child had with: Participating in sports activity or exercise? Acute Version: Self: In the past 7 days, how much of a problem has this been for you : It is hard for me to do sports activity or exercise. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 16:01:26.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21933 | Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale | PedsQLAfraidScl | Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL | EMOTIONAL FUNCTIONING: FEELING SCARED/AFRAID: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Feeling afraid or scared; For all the other Age Ranges: In the past month, how much of a problem has your child had with: Feeling afraid or scared? Standard Version: Self: In the past one month, how much of a problem has this been for you: I feel afraid or scared; Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Feeling afraid or scared; For all the other Age Ranges: In the past 7 days, how much of a problem has your child had with: Feeling afraid or scared;? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I feel afraid or scared. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:30:25.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21948 | Pediatric Quality of Life Inventory (PedsQL) - Problem heavy lift difficulty scale | PedsQLLiftScl | Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: LIFTING: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Lifting something heavy; For all the other Age Ranges: In the past one month, how much of a problem has your child had with: Lifting something heavy? Standard Version: Self: In the past one month, how much of a problem has this been for you : It is hard for me to lift something heavy? Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Lifting something heavy; For all the other Age Ranges: In the past 7 days, how much of a problem has your child had with: Lifting something heavy? Acute Version: Self: In the past 7 days, how much of a problem has this been for you : It is hard for me to lift something heavy. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen. Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:48:29.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21961 | Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale | PedsQLTeasedScl | Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL | SOCIAL FUNCTIONING:BEING TEASED: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Getting teased by other teens? For all the other Age Ranges: In the past month ,how much of a problem has your child had with: Getting teased by other children? Standard Version: Self: In the past one month, how much of a problem has this been for you: Other kids tease me. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Getting teased by other teens? For all the other Age Ranges: In the past 7 days ,how much of a problem has your child had with: Getting teased by other kids? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: Other kids tease me. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 16:02:23.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21934 | Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale | PedsQLAngryScl | Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL | EMOTIONAL FUNCTIONING: FEELING ANGRY: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Feeling angry; For all the other Age Ranges: In the past month, how much of a problem has your child had with: Feeling angry? Standard Version: Self: In the past one month, how much of a problem has this been for you: I feel angry; Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Feeling angry; For all the other Age Ranges: In the past 7 days, how often did the child have with feeling angry? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I feel angry. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:33:56.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21949 | Pediatric Quality of Life Inventory (PedsQL) - Problem doctor hospital appointment school absent difficulty scale | PedsQLMisSchDocScl | Scale of problems with missing school to go to the doctor or hospital, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with missing school to go to the doctor or hospital, as part of the Pediatric Quality of Life Inventory (PedsQL | SCHOOL FUNCTIONING: MISSING SCHOOL/DOCTOR/HOSPITAL VISIT: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Missing school to go the doctor or hospital; For all other Age Ranges: In the past month, how much of a problem has your teen had with: Missing school to go to the doctor or hospital. Standard Version: Self: In the past one month, how much of a problem has your child had with: : I miss school to go the doctor or hospital. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Missing school to go the doctor or hospital; For all other Age Ranges: In the past 7 days, how much of a problem has your child had with: Missing school to go to the doctor or hospital? Acute Version: Self: In the past 7 days, how much of a problem has your child had with: I miss school to go the doctor or hospital. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:49:47.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21962 | Pediatric Quality of Life Inventory(PedsQL) - Total score | PedsQLTtlScore | Total Score as a part of Pediatric Quality of Life Inventory (PedsQL) | Total Score as a part of Pediatric Quality of Life Inventory (PedsQL | Total Score= Sum of al the items over the number of items answered on all the Scales | Numeric Values |
Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf. Step 1: Transform Score: Items are reversed scored and linearly transformed to a 0-100 scale as follows: 0=100, 1=75, 2=50, 3=25,4=0. Step 2: Calculate Scores: Score by Dimensions: If more than 50% of the items in the scale are missing, the Scale Scores should not be computed. Mean Score = Sum of the items over the numbers of items answered. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf " | Pediatric | Supplemental | 1.00 | 2016-06-06 16:03:25.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Free-Form Entry |
0 | 100 | ||||||||
| C21935 | Pediatric Quality of Life Inventory (PedsQL) - Problem school class attention difficulty scale | PedsQLAttClssScl | Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL | SCHOOL FUNCTIONING: PAYING ATTENTION IN CLASS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Paying attention in class? For all other Age Ranges: In the past month, how much of a problem has your child had with: Paying attention in class? Standard Version: Self: In the past one month, how much of a problem has this been for you: It is hard to pay attention in class? Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Paying attention in class. For all other Age Ranges: In the past 7 days, how much of a problem has your child had with: Paying attention in class? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: It is hard to pay attention in class. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:36:11.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21950 | Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale | PedsQLMisSchSickScl | Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL | SCHOOL FUNCTIONING: MISSING SCHOOL/NOT FEELING WELL: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Missing school because of not feeling well; For all other Age Ranges: In the past month, how much of a problem has your child had with: Missing school because of not feeling well. Standard Version: Self: In the past one month, how much of a problem has your child had with: I miss school because of not feeling well?; Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Missing school because of not feeling well; For all other Age Ranges: In the past 7 days, how much of a problem has your teen had with: Missing school because of not feeling well? Acute Version: Self: In the past 7 days, how much of a problem has your child had with: I miss school because of not feeling well. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:51:07.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21964 | Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale | PedsQLWalkScl | Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: WALKING: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Walking more than one block?; For all the other Age Ranges: In the past one month, how much of a problem has your child had with: Walking more than one block? Standard Version: Self: In the past one month, how much of a problem has this been for you : It is hard for me to walk more than one block; Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Walking more than one block?; FOR ALL OTHER AGE RANGES: In the past 7 days, how much of a problem has your child had with: Walking more than one block? Acute Version: Self: In the past 7 days, how much of a problem has this been for you : It is hard for me to walk more than one block. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 16:06:14.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21936 | Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale | PedsQLBathScl | Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: BATH/SHOWER: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Taking a bath or shower by him or herself; For all the other Age Ranges :In the past month, how much of a problem has your child had with: Taking a bath or shower by him or herself; ? Standard Version: Self: In the past one month, how much of a problem has this been for you: It is hard for me to take a bath or shower by myself? Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Taking a bath or shower by him or herself; ; For all the other Age Ranges :In the past 7 days, how much of a problem has your teen had with: Taking a bath or shower by him or herself; Acute Version: Self: In the past 7 days, how much of a problem has this been for you : It is hard for me to take a bath or shower by myself. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:37:41.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21951 | Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale | PedsQLNotDoThingScl | Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL | SOCIAL FUNCTIONING: DOING THINGS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past month, how much of a problem has your child had with: Not being able to do things that other children his or her age can do? Standard Version: Self: In the past one month, how much of a problem has this been for you: I cannot do things that other kids my age can do. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past 7 days, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do. Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I cannot do things that other kids my age can do. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:52:31.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21965 | Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale | PedsQLWorryScl | Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL | EMOTIONAL FUNCTIONING: WORRYING: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Worrying about what will happen to him or her? For all other Age Ranges: In the past month, how much of a problem has your child had with: Worrying about what will happen to him or her. Standard Version: Self: In the past one month, how much of a problem has this been for you: I worry about what will happen to me? Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Worrying about what will happen to him or her. For all other Age Ranges: In the past 7 days, how much of a problem has your child had with: Worrying about what will happen to him or her. Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I worry about what will happen to me? | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 16:07:17.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21938 | Pediatric Quality of Life Inventory (PedsQL) - Problem house chore difficulty scale | PedsQLChoresScl | Scale of problems with doing chores around the house, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with doing chores around the house, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: PERFORMING CHORES: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Doing chores around the house; For all the other Age Ranges: In the past month, how much of a problem has your child had with: Doing chores around the house? Standard Version: Self: In the past one month, how much of a problem has this been for you : It is hard for me to do chores around the house? Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Doing chores around the house; For all the other Age Ranges: In the past 7 days, how much of a problem has your child had with: Doing chores around the house? Acute Version: Self: In the past 7 days, how much of a problem has this been for you : It is hard for me to do chores around the house. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:38:58.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21953 | Pediatric Quality of Life Inventory(PedsQL) - Physical health summary score | PedsQLPhyHeaSumScore | Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL) | Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL | Physical Health Summary Score= Sum of the physical functioning subscale as a part of Pediatric Quality of Life (PedsQL) | Numeric Values |
Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf. Step 1: Transform Score: Items are reversed scored and linearly transformed to a 0-100 scale as follows: 0=100, 1=75, 2=50, 3=25,4=0. Step 2: Calculate Scores: Score by Dimensions: If more than 50% of the items in the scale are missing, the Scale Scores should not be computed. Mean Score = Sum of the items over the numbers of items answered. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:53:45.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Free-Form Entry |
0 | 100 | ||||||||
| C21939 | Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale | PedsQLEnergyScl | Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: LOW ENERGY: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Low energy level; For all the other Age Ranges: In the past month, how much of a problem has your teen had with: Low energy level? Standard Version: Self: In the past one month, how much of a problem has your child had with: I have low energy level. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Low energy level; For all the other Age Ranges: In the past 7 days, how often did the child/you have low energy? Acute Version: Self: In the past 7 days, how much of a problem has your teen had with: I have low energy level? | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarnri, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-Usori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-Usori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:40:04.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21954 | Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score | PedsQLPsyHeaSumScore | Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL) | Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL | Psychosocial Health Summary Score= Sum of the items over the number of items answered in the Emotional, Social, and School Functioning Scales | Numeric Values |
Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf. Step 1: Transform Score: Items are reversed scored and linearly transformed to a 0-100 scale as follows: 0=100, 1=75, 2=50, 3=25,4=0. Step 2: Calculate Scores: Score by Dimensions: If more than 50% of the items in the scale are missing, the Scale Scores should not be computed. Mean Score = Sum of the items over the numbers of items answered. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:55:48.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Free-Form Entry |
0 | 100 | ||||||||
| C21940 | Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale | PedsQLForgetScl | Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL | SCHOOL FUNCTIONING: FORGETTING THINGS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Forgetting things; For all other Age Ranges: In the past month, how much of a problem has your child had with: Forgetting things. Standard Version: Self: In the past one month, how much of a problem has this been for you: I forget things; Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Forgetting things. For all other Age Ranges: In the past 7 days, how much of a problem has your child had with: Forgetting things.? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I forget things. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. | Pediatric | Supplemental | 1.00 | 2016-06-06 15:41:20.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21955 | Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale | PedsQLRunScl | Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL | PHYSICAL FUNCTIONING: RUNNING: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Running. For all other Age Ranges: In the past one month, how much of a problem has your child had with: Running? Standard Version: Self: In the past one month, how often did you have problems : It is hard for me to run. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Running? For all other Age Ranges: In the past 7 days, how much of a problem has your child had with: Running? Acute Version: Self: In the past 7 days, how much of a problem has this been for you : It is hard for me to run. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:56:44.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21942 | Pediatric Quality of Life Inventory (PedsQL) - Problem gain friend difficulty scale | PedsQLFriendsScl | Scale of problems with other kids not wanting to be their friend, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with other kids not wanting to be their friend, as part of the Pediatric Quality of Life Inventory (PedsQL | SOCIAL FUNCTIONING:OTHER TEENS/KIDS: Standard Version: Parent: TEEN: In the past one month , how much of a problem has your teen had with: Other teens not wanting to be his or her friend; For all other Age Ranges: In the past month, how much of a problem has your child had with: Other kids not wanting to be his or her friend? Standard Version: Self: In the past one month , how much of a problem has this been for you: Other kids do not want to be my friend? Acute Version: Parent: TEEN: In the past 7 days , how much of a problem has your teen had with: Other teens not wanting to be his or her friend; For all other Age Ranges: In the past 7 days, how much of a problem has your child had with: Other kids not wanting to be his or her friend? Acute Version: Self: In the past 7 days , how much of a problem has this been for you: Other kids do not want to be my friend | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:43:13.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21956 | Pediatric Quality of Life Inventory (PedsQL) - Problem sad difficulty scale | PedsQLSadScl | Scale of problems with feeling sad or blue, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with feeling sad or blue, as part of the Pediatric Quality of Life Inventory (PedsQL | EMOTIONAL FUNCTIONING: FEELING SAD/BLUE: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Feeling sad or blue; For all the other Age ranges: In the past month, how much of a problem has your teen had with: Feeling sad or blue? Standard Version: Self: In the past one month, how much of a problem has this been for you: I feel sad or blue. Acute Version: Parent: TEEN: In the past 7 days, how often did the teen have with feeling sad or blue; For all the other Age ranges: In the past 7 days, how often did the child have the feeling of being sad or blue? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I feel sad or blue. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:57:45.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21943 | Pediatric Quality of Life Inventory (PedsQL) - Problem harmony peer difficulty scale | PedsQLGetAlongScl | Scale of problems with getting along with other kids, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of problems with getting along with other kids, as part of the Pediatric Quality of Life Inventory (PedsQL | SOCIAL FUNCTIONING: GETTING ALONG: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Getting along with other teens; For all the other Age Ranges: In the past month, how much of a problem has your child had with: Getting along with other children? Standard Version: Self: In the past one month, how much of a problem has this been for you: I have trouble getting along with other kids? Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Getting along with other teens; For all the other Age Ranges: In the past 7 days, how much of a problem has your child had with: Getting along with other children? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I have trouble getting along with other kids | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:45:00.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C21957 | Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale | PedsQLSamSchActScl | Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL) | Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL | SCHOOL FUNCTIONING: SAME SCHOOL ACTIVITIES: Standard Version: Parent: Toddler: In the past one month, how much of a problem has your child had with doing the same school activities as peers? Acute Version: Parent: Toddler: In the past 7 days, how much of a problem has your child had with: Doing the same school activities as peers. | 0;1;2;3;4 | Never;Almost never;Sometimes;Often;Almost Always | Numeric Values |
On the following page is a list of things that might be a problem for you/your child/your teen child . Please tell us how much of a problem each one has been for your child during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help. Please complete this section if your child attends school or daycare |
"Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. " | Pediatric | Supplemental | 1.00 | 2016-06-06 15:58:49.0 | Pediatric Quality of Life Inventory Generic Core Scale (PEDSQL Generic Core Scale) | Perceived Generic and Disease-Specific Health-Related Quality of Life | Outcomes and End Points |
Single Pre-Defined Value Selected |
